Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for February 2018

We have hope !

Did anyone else in England listen to Find My Cure on BBC radio 4 last week????!!!!! Seriously wow!!!!! A drug trial at St James Hospital, Leeds is having a...

Did anyone else in England listen to Find My Cure on BBC radio 4 last week????!!...

Lizlashley1

•6 years ago

13 Replies

Best day time for Ibrutinib

Hi all, Next week I will receive the prescription for Ibrutinib and I'm interested in knowing when is better moment to take it. Thanking for all your......

Hi all, Next week I will receive the prescription for Ibrutinib and I'm interest...

lilica955

•6 years ago

16 Replies

Newbie with questions

Hello, everyone. I'm so grateful for this blog, which I've been lurking on silently for a few months. I'm not new to CLL. I was diagnosed in 1996. Still here!...

Hello, everyone. I'm so grateful for this blog, which I've been lurking on silen...

sundancing

•6 years ago

18 Replies

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Hoped It Would Never Come ~ Starting Treatment

Well; the time is here. I see Dr. O'Brien on March 12 and she will give me the script for Ibrutinib. I'm a little emotional right now as I had hoped to put...

Well; the time is here. I see Dr. O'Brien on March 12 and she will give me the ...

ladyprescott

•6 years ago

69 Replies

CLL meds

I have lymphoma + CLL & am on both Lyrica for 18 months & Imbruvica for 6 months. Imbruvica seems to be working great. But 2 side effects have been: weight...

I have lymphoma + CLL & am on both Lyrica for 18 months & Imbruvica for 6 months...

BSMI

•6 years ago

2 Replies

CLL and Infra-Red Massage Beds

I’m about to try this new business in my neighborhood that has these massage beds that you met infra-red rays, they want me to sign a release which has alerted...

I’m about to try this new business in my neighborhood that has these massage bed...

Anastasia1

•6 years ago

11 Replies

FLAIR Trial allocated Ibrutinib and Rituximab any advice?

Hi just heard I have been allocated the Ibrutinib and Rituximab arm on the FLAIR trial today. I will be starting very soon. Anyone out there been on this arm...

Hi just heard I have been allocated the Ibrutinib and Rituximab arm on the FLAIR...

annmcgowan

•6 years ago

23 Replies

Blood pressure and cll

I have cll and suddenly got high blood pressure 160/ 90 is it common and anything to worry about

I have cll and suddenly got high blood pressure 160/ 90 is it common and anythin...

Cornishdwarf1960

•6 years ago

11 Replies

I think my body Thermostat is broken

Back in November I was diagnosed with CLL and AIHA. At that time I was suffering from night sweats. The prescription of Prednisone stopped that until it was...

Back in November I was diagnosed with CLL and AIHA. At that time I was sufferin...

DaveGH

•6 years ago

6 Replies

I would like to know how many of those taking Prednisone for CLL have experienced an abnormally high blood sugar and high A1C?

CLL and excessive A1C count

Hidden

•6 years ago

22 Replies

Oncological Nutrition Consult

Hello everyone...hope you all are doing ok. I came across an on line article written by the wife of a cll patient re diet. Before I get into it suffice it to...

Hello everyone...hope you all are doing ok. I came across an on line article wr...

Ladydi49

•6 years ago

13 Replies

CLL just diagnosed

Hi, I am happy to have joined this group. I am also new to this site and would appreciate any guidance anyone may have. I am 44 and was diagnosed with CLL less...

Hi, I am happy to have joined this group. I am also new to this site and would a...

SaEva

•6 years ago

7 Replies

IBRUTINIB shorter time treatment - e.g. for one month

Did they ever do a clinical trial on a person taking Ibrutineb for only a month? What if some of us only need to take this drug for a short time. I would...

Did they ever do a clinical trial on a person taking Ibrutineb for only a month?...

hmo1

•6 years ago

24 Replies

Son diagnosed with Chronic Lymphocytic Leukemia,

Update on my son , he had his blood work appointment a week ago , his WBC was 4.7 it's now 9.9, his hemoglobin is very good, platelet's are very good, bone...

Update on my son , he had his blood work appointment a week ago , his WBC was 4....

deters

•6 years ago

7 Replies

Imbruvica and stomach discomfort. It is not heartburn etc.

I am new here and I am asking if anyone is experiencing a lot gas and stomach discomfort?

I am new here and I am asking if anyone is experiencing a lot gas and stomach d...

156MA019

•6 years ago

9 Replies

Haematology readings

What should our ideal HB, platelets, white cells and neuts be as normal. I should be interested to know.

What should our ideal HB, platelets, white cells and neuts be as normal. I shoul...

Broadbent

•6 years ago

3 Replies

Bendamustine

Has anyone who took Bendamustine have their lymphocytes rise at first cycle instead of begin dropping? Also it is a little red at the vein they used to infuse...

Has anyone who took Bendamustine have their lymphocytes rise at first cycle inst...

greygirl

•6 years ago

2 Replies

MBP

What is MBP?

Bjhayes14

•6 years ago

2 Replies

Venetoclax started

I have been on ibruitinib since April 2017 and having had a good response initially, my WBC has levelled between 72 and 60 in the last 4 months so the decision...

I have been on ibruitinib since April 2017 and having had a good response initia...

KAS8

•6 years ago

14 Replies

Informations help

Hi all, Ibrutinib and osteoporosis drugs .Could be an interaction between these drugs? Thanks for your comments! Lilica

Hi all, Ibrutinib and osteoporosis drugs .Could be an interaction between these ...

lilica955

•6 years ago

5 Replies

Information help plz

Hi, I'm stuck with approx 50.000 WBC for over 15 years now, no treatment ever, just watch and wait. Anemia is mostly my problem, low RBC counts. Is there a way...

Hi, I'm stuck with approx 50.000 WBC for over 15 years now, no treatment ever, j...

melania

•6 years ago

3 Replies

Fasting and CLL

I am reading posts from a couple years ago about CLL and fasting. Does anyone have long term results they’ve experienced/ not experienced. My husband is a big...

I am reading posts from a couple years ago about CLL and fasting. Does anyone ha...

Pnolvr

•6 years ago

12 Replies

Fever post chemo

I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wednesday. My normal temp is 36.6 and Thursday evening it went up to 37.5 for the...

I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wedne...

Marie-54

•6 years ago

4 Replies

Pulmonology visit today, emotional roller coaster of a day

Hi everyone! First of all a ginormous hug to everyone on here for the support and well wishes. Every night before I go to bed I say some prayers for all of...

Hi everyone! First of all a ginormous hug to everyone on here for the support a...

Ladydi49

•6 years ago

9 Replies

receiving Health Unlocked

I used to get Health Unlocked in my emails but I am no longer receiving them. Any idea what I need to do to start getting them back in my emails?

I used to get Health Unlocked in my emails but I am no longer receiving them. A...

Champlain

•6 years ago

1 Reply

Pulmonologist today in Tampa re a lung infection (mycobacterium avium complex)

Hi all hope everyone is doing well. I'm nervous about my appointment today with my pulmonologist. I don't know how long this MAC infection has been present...

Hi all hope everyone is doing well. I'm nervous about my appointment today with...

Ladydi49

•6 years ago

15 Replies

Severe skin reaction to Ibrutinib (Imbruvica)

Hi My husband is currently on the Flair trial, started June 2016. One month into the trial he got fungal pneumonia, was hospitalised for ten days and very...

Hi My husband is currently on the Flair trial, started June 2016. One month in...

Poohey

•6 years ago

4 Replies

Need advice!

Hi i’m Michael I’m 27 years old from the UK. I’m currently In hospital due to a severe lung infection that came on very suddenly. It’s the latest in a long...

Hi i’m Michael I’m 27 years old from the UK. I’m currently In hospital due to a ...

Mj1991

•6 years ago

9 Replies

Falling apart mentally & physically, hate this disease, no energy..can't do the things I use to do

Abdominal CT scan results in, Lump on the left side of my abdomen, total meltdown crying uncontrollably yesterday during 4th ivig infusion, Mycobacterium Avium...

Abdominal CT scan results in, Lump on the left side of my abdomen, total meltdow...

Ladydi49

•6 years ago

37 Replies

I’m sore

Hi everyone I have got swollen lymph glands under my arms to my breasts, and also under my jaw. My body is also aching I’m starting treatment soon. I’d love to...

Hi everyone I have got swollen lymph glands under my arms to my breasts, and als...

581959

•6 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2018

We have hope !

Best day time for Ibrutinib

Newbie with questions

Hoped It Would Never Come ~ Starting Treatment

CLL meds

CLL and Infra-Red Massage Beds

FLAIR Trial allocated Ibrutinib and Rituximab any advice?

Blood pressure and cll

I think my body Thermostat is broken

I would like to know how many of those taking Prednisone for CLL have experienced an abnormally high blood sugar and high A1C?

Oncological Nutrition Consult

CLL just diagnosed

IBRUTINIB shorter time treatment - e.g. for one month

Son diagnosed with Chronic Lymphocytic Leukemia,

Imbruvica and stomach discomfort. It is not heartburn etc.

Haematology readings

Bendamustine

MBP

Venetoclax started

Informations help

Information help plz

Fasting and CLL

Fever post chemo

Pulmonology visit today, emotional roller coaster of a day

receiving Health Unlocked

Pulmonologist today in Tampa re a lung infection (mycobacterium avium complex)

Severe skin reaction to Ibrutinib (Imbruvica)

Need advice!

Falling apart mentally & physically, hate this disease, no energy..can't do the things I use to do

I’m sore

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