Posts - CLL Support | HealthUnlocked

CLL Support

22,476 members • 38,615 posts

All posts for February 2018

CLL Stage 0 and VA Disability

Happy to be aboard. I was diagnosed in 2016 with CLL Stage 0. Vietnam vet with agent orange exposure so I filed a VA claim in November but now I'm hearing that...

Happy to be aboard. I was diagnosed in 2016 with CLL Stage 0. Vietnam vet with a...

tplante

•6 years ago

16 Replies

Urgent Guidance Requested

My dad has gone through Arotic Valve replacement with Bypass(grpht) of one artery. He got operated on 27/01/18. He got his wbc count on higher side so Dr. Made...

My dad has gone through Arotic Valve replacement with Bypass(grpht) of one arter...

SaurabhJagmohan

•6 years ago

1 Reply

Martini before the Bone Marrow Biopsy work well!!!

Hello, I did a Bone Marrow Biopsy (BMB ) yesterday and had a Martini after my blood work but before the procedure. It was much easier ( pain wise) than...

Hello, I did a Bone Marrow Biopsy (BMB ) yesterday and had a Martini after my ...

Hoffy

•6 years ago

47 Replies

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Hemoglobin and Platelets in Blood Work

I recently had a visit to my GP and she asked about doing blood work. I didnt know they were going to blood work, but we did it anyway. I had drank about 4-5...

I recently had a visit to my GP and she asked about doing blood work. I didnt kn...

Ferk71

•6 years ago

10 Replies

Vitamin question

I was diagnosed with CLL and 2015. I am 55 years old. Want to know if it’s OK to take a vitamin B complex.

I was diagnosed with CLL and 2015. I am 55 years old. Want to know if it’s OK to...

Breezie44

•6 years ago

11 Replies

ACP 196 treatment

Hi Every one I am looking for people who are taking ACP 196 This is a trile medication for CLL my father is taking it 2016 november . i would like to now what...

Hi Every one I am looking for people who are taking ACP 196 This is a trile medi...

agneshun

•6 years ago

7 Replies

New to CLL

I was just diagnosed with cll in Jan 2018. I was sick with colds most of the fall on antubiotucs x3 and then had a cold in Jan that I couldn't shake turned in...

I was just diagnosed with cll in Jan 2018. I was sick with colds most of the fal...

lrcooke

•6 years ago

13 Replies

Do we need to avoid hair-color, shampoo and soap etc

I was reading a book about the cancer in which the author has said that we should get rid of all the chemical from the house like dish washing bars, soaps,...

I was reading a book about the cancer in which the author has said that we shoul...

alpha-b

•6 years ago

15 Replies

Newly diagnosed CLL

I am a 63 yo female just diagnosed with Stage 0 CLL after routine annual CBC. Negative CT (done because of multifactorial fatigue) and mutation profile in good...

I am a 63 yo female just diagnosed with Stage 0 CLL after routine annual CBC. Ne...

CLLmoxie

•6 years ago

12 Replies

I have CLL

I'm new I found out in Sept 2017 that I have CLL I'm 51 I am so scare I have been to two cancer doctor the first doctor said that I have had it for a while he...

I'm new I found out in Sept 2017 that I have CLL I'm 51 I am so scare I have bee...

LUCYLU51

•6 years ago

22 Replies

Head cuts not healing, tips?

A minor irritation I know but I have a cut on my scalp that clots but will not heal up. Every time I accidentally knock the scab it bleeds again. Tried...

A minor irritation I know but I have a cut on my scalp that clots but will not h...

UK-Sparky

•6 years ago

24 Replies

Ibrutinib treatment

I have been fighting CLL for 10 years. I was put on Ibrutinib lat month. Except for minor rash and some joint pain, I have not had other problemes. My appetite...

I have been fighting CLL for 10 years. I was put on Ibrutinib lat month. Except ...

Mike-72

•6 years ago

3 Replies

Millions of questions re medicaments/vaccination-CLL

Here I am again with yet more questions:-) As I was recently diagnosed with CLL and still have not done the FISH (scheduled in 2 months) I was wondering what...

Here I am again with yet more questions:-) As I was recently diagnosed with CLL ...

SaEva

•6 years ago

7 Replies

Has anyone tried GCMaf and what are your experiences with this?

I have read different opinions of the GCmaf- protein that was recommended by some people. I would like to learn about the experiences people may have had here....

I have read different opinions of the GCmaf- protein that was recommended by som...

SaEva

•6 years ago

21 Replies

need help - Idelalisib

hi there, I'm needing some info and a reality check. I start Idelalisib rituxsan this week. I'm 90% bone marrow infiltrated (a long story) and 11q deleted. I'm...

hi there, I'm needing some info and a reality check. I start Idelalisib rituxsan...

springie

•6 years ago

9 Replies

Pneumonia Shot

Hello all....was wondering if anyone on here got the pneumonia shot and if so were there any complications? I did get the flu shot last October a couple weeks...

Hello all....was wondering if anyone on here got the pneumonia shot and if so we...

Ladydi49

•6 years ago

13 Replies

CL and turmeric

CLL and turmeric I have seen several references to the benefits of turmeric- vital ingredient curcumin - for CLL. It is also recommended for arthritis. BUT...

CLL and turmeric I have seen several references to the benefits of turmeric- vit...

romarin

•6 years ago

5 Replies

Road to a BMT... oops just got there (Day +101)

Yesterday was another huge milestone on our BMT road, Day 100 - when we stared back in Nov.2017 this day seemed like a life time away. I’m so pleased to share...

Yesterday was another huge milestone on our BMT road, Day 100 - when we stared b...

NMMP

•6 years ago

24 Replies

Lump!

Hi everyone I have a pea sized lump by bottom of ear just above lobe on jaw bone which is painful if prodded! Is this a place where a lymph node could be, in...

Hi everyone I have a pea sized lump by bottom of ear just above lobe on jaw bone...

Ingatrams

•6 years ago

20 Replies

breathlessness

Is breathlessness associated with CLL

FranceMary

•6 years ago

13 Replies

Cause of various symptoms

My husband has CLL, diabetes and a pulmonary embolism. He is a Vietnam Vet and agent orange positive. He recently started running a temp every day, has night...

My husband has CLL, diabetes and a pulmonary embolism. He is a Vietnam Vet and ...

Jerrygel

•6 years ago

11 Replies

Hello from Ali

Hello everyone I just came to know about this site few days ago. I was diagnosed with CLL in Feb 2017 at the age of 37. Had no visible symptoms, just the...

Hello everyone I just came to know about this site few days ago. I was diagnosed...

alpha-b

•6 years ago

12 Replies

Starting CAR-T therapy for my relapsing CLL

Friends and CLL Society supporters: This isn't easy. After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I...

Friends and CLL Society supporters: This isn't easy. After consulting with my w...

bkoffman

CLL CURE Hero•6 years ago

50 Replies

On Ibrutinib for 1.5 years and doing great!

I just discovered this site. So far I’m an Ibrutinib success story. I was diagnosed in April 2014 at age 62 with atypical CLL. WBC 30K. Over the next couple of...

I just discovered this site. So far I’m an Ibrutinib success story. I was diagno...

Rmiller32x

•6 years ago

5 Replies

Article re the woman in the U.K. who started taking Tumeric for her cancer

Here is the place where one can find the article/story that was on The Doctors T.V. show recently. Please note that the doctors on the program absolutely did...

Here is the place where one can find the article/story that was on The Doctors T...

Ladydi49

•6 years ago

1 Reply

Remission with Ibrutinib and Venetoclax

This week marks the sixth period of 28 days with Ibrutinib and 4th period combination with Venetoclax of my trial (Vision trial, Netherlands).I officially...

This week marks the sixth period of 28 days with Ibrutinib and 4th period combin...

Yvbb

•6 years ago

11 Replies

The waiting game

Hello. I have been following this community for awhile now. There is so much great information and it is very helpful. I am 47 yrs old. Mom of an 11 yr old and...

Hello. I have been following this community for awhile now. There is so much gre...

seagal70

•6 years ago

11 Replies

Blood thinners

Good morning. I’m still on watch and wait but I have a question. I’ve had open heart surgery and now have a mechanical aortic valve. I need to be on warfarin...

Good morning. I’m still on watch and wait but I have a question. I’ve had open h...

BarbaraA2

•6 years ago

6 Replies

Update on the woman in the U.K. who is in remission from blood cancer by using Tumeric

Hi all.....I just rolled back the segment on The Doctors T.V. Show about the 67 year old woman in the U.K who stopped treatment after 5 years and she did start...

Hi all.....I just rolled back the segment on The Doctors T.V. Show about the 67 ...

Ladydi49

•6 years ago

7 Replies

coarse skin in hands

Has anyone experienced very dry skin during treatment? I am leukeran +gazyva and my hands get very dry and coarse even treating them with hand cream

Has anyone experienced very dry skin during treatment? I am leukeran +gazyva and...

CAGIULIANO

•6 years ago

21 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2018

CLL Stage 0 and VA Disability

Urgent Guidance Requested

Martini before the Bone Marrow Biopsy work well!!!

Hemoglobin and Platelets in Blood Work

Vitamin question

ACP 196 treatment

New to CLL

Do we need to avoid hair-color, shampoo and soap etc

Newly diagnosed CLL

I have CLL

Head cuts not healing, tips?

Ibrutinib treatment

Millions of questions re medicaments/vaccination-CLL

Has anyone tried GCMaf and what are your experiences with this?

need help - Idelalisib

Pneumonia Shot

CL and turmeric

Road to a BMT... oops just got there (Day +101)

Lump!

breathlessness

Cause of various symptoms

Hello from Ali

Starting CAR-T therapy for my relapsing CLL

On Ibrutinib for 1.5 years and doing great!

Article re the woman in the U.K. who started taking Tumeric for her cancer

Remission with Ibrutinib and Venetoclax

The waiting game

Blood thinners

Update on the woman in the U.K. who is in remission from blood cancer by using Tumeric

coarse skin in hands

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