Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2017

On behalf on my mum 81 diagnosed 2012

Wanting to hear from people of my mums age who have had treatment

Wanting to hear from people of my mums age who have had treatment

•7 years ago

Enlarged spleen

Quick update since my last post about spleen pain. I went for an ultrasound and my spleen size and weight has basically doubled. They've taken more bloods for...

Quick update since my last post about spleen pain. I went for an ultrasound and ...

•7 years ago

Swollen Cervical lymph nodes on my Neck on left side at level 5.

Severe pain in neck movement. After Ultrasound Doctor wants Cervical Lymphodenopathy. Excisional Biopsy. I am not agree for this. What will happen? Kindly...

Severe pain in neck movement. After Ultrasound Doctor wants Cervical Lymphodenop...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Here’s why the 2017 flu season was so bad in Australia

Australia has recorded 221,853 flu infections so far in 2017, more than any other year. This article analyses why the 2017 flu vaccine wasn't as effective as...

Australia has recorded 221,853 flu infections so far in 2017, more than any othe...

Administrator•7 years ago

A not-so-dumb question about IGHV clonal evolution

As part of a discussion a week ago titled "Warning this may be a dumb question" (...

As part of a discussion a week ago titled "Warning this may be a dumb question" ...

•7 years ago

Post FCR treatment 3 months blood test just taken results lower then expected

Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I am now 3 months post treatment. I have been feeling good but have to make sure...

Hi everyone! I am new to this site. I completed a 6 month cycle of FCR and I a...

•7 years ago

Drop in platelets

My daughter is 17 and has a platelet count of 146. I understand that isn't near dangerously low. However I looked back at older blood work and several years...

My daughter is 17 and has a platelet count of 146. I understand that isn't near ...

•7 years ago

Drop in platelet count

My daughter is 17 and has a platelet count of 146. I understand that isn't near dangerously low. However I looked back at older blood work and several years...

My daughter is 17 and has a platelet count of 146. I understand that isn't near...

•7 years ago

Post-treatment results

My OH had 4 FCR treatments, each one reduced from the previous one because of his reactions (low platelets, fatigue). Last treatment was early August....

My OH had 4 FCR treatments, each one reduced from the previous one because of hi...

shoppingtrolley

•7 years ago

Healing CLL naturally

Hi there, my partner who is 46 has been diagnosed with CLL a few months ago and the doctors said he wouldn’t need chemo for around 6 months based on his...

Hi there, my partner who is 46 has been diagnosed with CLL a few months ago and ...

•7 years ago

Very high neutrophils

Hi My husband has been prescribed injections twice weekly to boost his neutrophils which had gone as low as 0.6. He had a blood test yesterday which showed...

Hi My husband has been prescribed injections twice weekly to boost his neutrophi...

•7 years ago

My Itchy skin

Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for about a year . Ever since my second treatment of chemo I had all kind of skin...

Hi I have CLL since Feb. 2015 and had 6 cycles of FCR . I was in remission for a...

•7 years ago

Watch out for the shell fish!

Hi to you all. As all fellow CLLers should know, it is advisable to avoid shell fish. Well all I can say is now, take heed of this advice, as in my case it...

Hi to you all. As all fellow CLLers should know, it is advisable to avoid shell...

•7 years ago

15th day on Ibrutinib and some side effects.

Well it's been 15 days since I started IB on the clinical trial with Venetoclax . I have had several minor side effects so far that are worth mentioning. I...

Well it's been 15 days since I started IB on the clinical trial with Venetoclax ...

•7 years ago

Year after CLL diagnosis~

After a yr of this CLL diagnosis I am still frustrated with the "wait and see" approach. I understand for older patients waiting but I am 54 and have been an...

After a yr of this CLL diagnosis I am still frustrated with the "wait and see" a...

•7 years ago

Igg infusions

Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been...

Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbe...

•7 years ago

1st 3 month Appointment

I had my first 3 month appointment witness my hematologist/ oncologist. Although blood work declined still on W & W. Next appointment in 4 months this time...

I had my first 3 month appointment witness my hematologist/ oncologist. Although...

•7 years ago

Kidney stone and Venteclax

Hi my husband has been on Venteclax for 4 weeks,just about to move up to 400mg and has developed a kidney stone. This has grown very quickly and is to large to...

Hi my husband has been on Venteclax for 4 weeks,just about to move up to 400mg a...

•7 years ago

Research survey on CLL/SLL

Hi We are doing some research in follow up to our abstract from ASH 2016 and would appreciate your help. Participate in an important Survey for Patients with...

Hi We are doing some research in follow up to our abstract from ASH 2016 and wou...

CLL CURE Hero•7 years ago

Radiation as sll treatment

Hello! I saw my cll specialist for the first time today and since I have sll (p17 del) in the early stages he is referring me to a radiation oncologist for a...

Hello! I saw my cll specialist for the first time today and since I have sll (p1...

•7 years ago

Just wondering...

Hi all. I was diagnosed with low cll beginning of the year, with population under 5 so not officially cll yet. Over the last months I developed swollen nodes...

Hi all. I was diagnosed with low cll beginning of the year, with population unde...

•7 years ago

1
...
3
4