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CLL Support

22,532 members • 38,709 posts

All posts for November 2017

Happy Thanksgiving

I know many of you do not celebrate this holiday but I wanted to take this time to let you all know how thankful I am for finding you. I wish the best for all...

I know many of you do not celebrate this holiday but I wanted to take this time ...

migirlusa

•6 years ago

4 Replies

Sex Life

Hello, my partner is on Ibrutinib (also known as Imbruvica) - started one week ago. I have two questions. 1. Will the drug affect our sex life? Do we need...

Hello, my partner is on Ibrutinib (also known as Imbruvica) - started one week a...

pollyg2016

•6 years ago

20 Replies

Reaction to test for Obinutuzumab

Yesterday I was to start cycle 1 of Obinutuzumab. They tried twice with test amount but I reacted both times within 5 mins of infusion. I had piriton before...

Yesterday I was to start cycle 1 of Obinutuzumab. They tried twice with test amo...

Abc123qaz

•6 years ago

3 Replies

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CLL Treatments using Ibrutinib

Just joined. Diagnosed in 2011, and in 2014, was treated with older chemo drugs which didn't work. Started Ibrutinib in 2015 and had to stop after 3 months to...

Just joined. Diagnosed in 2011, and in 2014, was treated with older chemo drugs...

jaysearch

•6 years ago

3 Replies

Z-Paks... what is the thinking about them?

I'm newly diagnosed CLL and on W&W. Sore throat started to bring wheezing in chest last week and doc gave me a Z-Pak. The cold seems to actually have gotten...

I'm newly diagnosed CLL and on W&W. Sore throat started to bring wheezing in che...

Butitisme

•6 years ago

11 Replies

Horrible cramps

I was on imbruvica for 11 months and each month I am getting cramps thru out my body, so bad I was rushed to ER 3 days ago.. I have stopped taking it for 3...

I was on imbruvica for 11 months and each month I am getting cramps thru out my ...

Hidden

•6 years ago

15 Replies

Watch and wait... but for what?

First of all, much respect for all those not so lucky as me. I've been W&W for four years now. Every time I see the consultant, I'm so quick to get out (in...

First of all, much respect for all those not so lucky as me. I've been W&W for f...

DMF_online

•6 years ago

33 Replies

Travel Insurance and clinical trial

In a way this is a repeat of previous discussions on travel insurance, however with a specific angle. Please respond if you have the specific information or...

In a way this is a repeat of previous discussions on travel insurance, however w...

Oleboyredw-uk

•6 years ago

6 Replies

Symptoms related to CLL

Hello all, As I'm still quite new on this forum, I don't know if these questions have been asked before, probably yes, but I am going to ask them regardless...

Hello all, As I'm still quite new on this forum, I don't know if these questions...

Jan_Zon

•6 years ago

5 Replies

Needing information

Help! I have had a lymph node removed with biopsy. Came back metastatic lymph node. This is second one. Was behind my ear. First tumor is still waiting for...

Help! I have had a lymph node removed with biopsy. Came back metastatic lymph no...

Manzanopeek17

•6 years ago

2 Replies

User name

I got to reset oassword but user name box or reset did not appear

onu1tadi2

•6 years ago

1 Reply

Help re new user name

Does anyone know how i can change user name here. Mine was a mistake. Thank you

Does anyone know how i can change user name here. Mine was a mistake. Thank you ...

onu1tadi2

•6 years ago

1 Reply

Late breaking CLL abstract at ASH 2017 - VR vs BR

https://ash.confex.com/ash/2017/webprogram/Paper109076.html Conclusion The primary analysis of MURANO, the first Phase 3 study of V in R/R CLL, shows a...

https://ash.confex.com/ash/2017/webprogram/Paper109076.html Conclusion The pri...

avzuclav

•6 years ago

12 Replies

Acalabrutinib & Proton Pump Inhibitors

Hi Everyone - I have been struggling on and off with Ibrutinib side effects the main ones being uncontrolled blood pressure spikes, anxiety attacks and...

Hi Everyone - I have been struggling on and off with Ibrutinib side effects the ...

Roydeane

•6 years ago

15 Replies

Low PLT Count

Had a bone marrow biopsy in August 2014 and was inconclusive. My PLT was 134. Continued monitoring every 3 months. PLT continued to raise and was in range...

Had a bone marrow biopsy in August 2014 and was inconclusive. My PLT was 134. ...

Happyman1946

•6 years ago

2 Replies

Fractional chemo?

Anyone ever hear of it? Heard it's less costly, milder, less side effects.

GMa27

•6 years ago

2 Replies

Venetoclax CLL 11q, Trisomy 12, MDS

Good day to everyone. I observed for a couple of weeks and felt the love. So I decided to post and share my story. Husband was Diagnosed with CLL with MDS...

Good day to everyone. I observed for a couple of weeks and felt the love. So I ...

Midgey_

•6 years ago

26 Replies

Skin sores

My husband completed his chemotherapy forCLL 10 months ago, and is in total remission. He has been having skin "erruptions" which include various combinations...

My husband completed his chemotherapy forCLL 10 months ago, and is in total remi...

Hidden

•6 years ago

10 Replies

New to this forum

Hello all, I just discovered this forum and I'm very glad I did. I was diagnosed with CLL in February 2017 after a nose throat and ear doctor discovered some...

Hello all, I just discovered this forum and I'm very glad I did. I was diagnosed...

Jan_Zon

•6 years ago

28 Replies

Road to a BMT... oops just got there (Day+2)

Day +2 has been a challenge, Mark spiked a fever in the night and was very nauseous. The fever came on rather quick and the Dr.'s were surprised but I found...

Day +2 has been a challenge, Mark spiked a fever in the night and was very nause...

NMMP

•6 years ago

11 Replies

Hematolog needed

Hi I a writting on behalf my very good friend. She had ultrasound few days back which showed enlarged lymph nodes now on both sides of her neck. 6 months ago...

Hi I a writting on behalf my very good friend. She had ultrasound few days back ...

Mo39

•6 years ago

6 Replies

Enlarged spleen - further developments

Since my last post, I saw Dr Claire Dearden at The Royal Marsden in London for a second opinion. What a lovely lady. This hospital is a centre of...

Since my last post, I saw Dr Claire Dearden at The Royal Marsden in London for ...

Mandy56

•6 years ago

3 Replies

Is chemotherapy still prescribed as a frontline treatment for CLL if the patient also has osteoporosis?

For those of us with CLL and osteoporosis, do you know whether chemotherapy is still prescribed as a frontline treatment for CLL? I read that chemotherapy can...

For those of us with CLL and osteoporosis, do you know whether chemotherapy is s...

Hidden

•6 years ago

3 Replies

Cannabidiol Concentration, Labeling Varies Widely in Products Sold Online

This post is not about the merits of cannabidiol for CLL, but an illustration of why greater regulation is needed for the supplements/herbal remedy industry....

This post is not about the merits of cannabidiol for CLL, but an illustration of...

AussieNeil

Administrator•6 years ago

Be the first to reply

Road to a BMT... oops just got there

Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come...

Hello Health Unlocked community, Since this forum and community offered me a gre...

NMMP

•6 years ago

24 Replies

Sores

Sores all over body, side effect from Imbruvica, anyone any treatments that work to ease or get rid off , greatly appreciate all feed back .

Sores all over body, side effect from Imbruvica, anyone any treatments that work...

Chintzy

•6 years ago

5 Replies

Venetoclax info

My father started venetoclax 1 week ago. He is a 71y/o, 17p CLL patient. He must be an inpatient at UPENN for fear of TLS for each ramp up week. When he was...

My father started venetoclax 1 week ago. He is a 71y/o, 17p CLL patient. He mus...

Stevediam

•6 years ago

3 Replies

Stage 0 CLL with mucus issues

Recently diagnosed with CLL stage 0. I do have excess mucus and nasal issues. Not sure if they are connected.

Recently diagnosed with CLL stage 0. I do have excess mucus and nasal issues. No...

Deedeelee

•6 years ago

8 Replies

Chemo Might Be Next

I had check up with oncologist this week. Last January she told me that chemo would be sooner than later. I was able to avoid it all year. I have had CLL for...

I had check up with oncologist this week. Last January she told me that chemo wo...

GMa27

•6 years ago

24 Replies

Influenza vaccine

Hello every one I hasn't been active for a vile I wanted to know if it ok to have influenza vaccine with CLL. Agnes

Hello every one I hasn't been active for a vile I wanted to know if it ok to h...

agneshun

•6 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2017

Happy Thanksgiving

Sex Life

Reaction to test for Obinutuzumab

CLL Treatments using Ibrutinib

Z-Paks... what is the thinking about them?

Horrible cramps

Watch and wait... but for what?

Travel Insurance and clinical trial

Symptoms related to CLL

Needing information

User name

Help re new user name

Late breaking CLL abstract at ASH 2017 - VR vs BR

Acalabrutinib & Proton Pump Inhibitors

Low PLT Count

Fractional chemo?

Venetoclax CLL 11q, Trisomy 12, MDS

Skin sores

New to this forum

Road to a BMT... oops just got there (Day+2)

Hematolog needed

Enlarged spleen - further developments

Is chemotherapy still prescribed as a frontline treatment for CLL if the patient also has osteoporosis?

Cannabidiol Concentration, Labeling Varies Widely in Products Sold Online

Road to a BMT... oops just got there

Sores

Venetoclax info

Stage 0 CLL with mucus issues

Chemo Might Be Next

Influenza vaccine

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