Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for October 2017

Milk and cancer

i been drinking milk all my life, sometimes more than 2 liters pr day, and youghurt and cheese on top of that. Now I got CLL, i read on the internet that...

i been drinking milk all my life, sometimes more than 2 liters pr day, and you...

•7 years ago

MDS

This site has really helped our family in helping to understand mum's CLL. My husband has MDS. Is there another good site out there to help you with this...

This site has really helped our family in helping to understand mum's CLL. My hu...

•7 years ago

Welcome to the Family by Professor Chris Fegan September 2017

Professor Chris Fegan reviewed and updated his article 'Welcome to the family' during September 2017. His updated article can be found Here....

Professor Chris Fegan reviewed and updated his article 'Welcome to the family' d...

•7 years ago

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CLLSA Conference Jul 2017 Videos available

There were 4 presentations videoed at this meeting Dr. Ben Kennedy a Consultant Hematologist at the Leicester Royal Infirmary started the meeting with a review...

There were 4 presentations videoed at this meeting Dr. Ben Kennedy a Consultant ...

•7 years ago

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Initial appointment/UCSD Dr Michael Choi

I have my initial appointment with Dr. Choi at UCSD this Friday 10/4/17. Only 70 miles from home. If all goes well this will likely be my "go to" CLL...

I have my initial appointment with Dr. Choi at UCSD this Friday 10/4/17. Only 70...

•7 years ago

IVIG infusions

Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including intubation......

Hello there, After six years of terrible infections, including shingles, strep ...

•7 years ago

Does research show that young CLL patients(age 25-45) will have a more aggressive CLL than older patients and require more treatment?

I was asked this question by someone in a support group. Have any of us seen any research that shows that...

I was asked this question by someone in a support group. ...

•7 years ago

IGVH Unmutated and Stereotypes

I have a question that I am going to ask my CLL doctor when I see him, but I am wondering if anyone can answer. I am IGVH unmutated, which I understand is...

I have a question that I am going to ask my CLL doctor when I see him, but I am ...

•7 years ago

Always Tired

Good Morning my Fellow Sufferers, I am a 66 year old ,over weight male that was diagnosed about two years ago with CLL. I am always tired. I am retired but...

Good Morning my Fellow Sufferers, I am a 66 year old ,over weight male that wa...

BlueGillfisherman

•7 years ago

Nearing treatment?

Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have jumped from 10 to 27. My glands are feeling bigger ...especially under my...

Hello! I just had my 3 monthly visit with my haemotologist. My lymphocytes have ...

•7 years ago

New here

Hi, I was diagnosed with SLL in Feb 2016. I am at stage 0/1 and fairly stable. I am 50 and have very young children (had them in my 40s). I've asked my...

Hi, I was diagnosed with SLL in Feb 2016. I am at stage 0/1 and fairly stable. ...

•7 years ago

ABSOLUTE LYMPHOCYTE COUNT

I was diagnosed with CLL in January 2017. I get my CBC completed every three months. When I was diagnosed, my absolute lymphocyte count (ALC) was just over...

I was diagnosed with CLL in January 2017. I get my CBC completed every three mo...

•7 years ago

CLL

Just been diagnosed with CLL, any advice would be very welcome x

Just been diagnosed with CLL, any advice would be very welcome x

•7 years ago

Watch and wait is awful

I was first diagnosed with cell in 1996 I was 48. It was scary. Watch and wait began. Each doctors visit whites weee up but that I found is not the only thing...

I was first diagnosed with cell in 1996 I was 48. It was scary. Watch and wait b...

•7 years ago

Full body vibration machine

Anyone out there with expirrnce with a full body vibration machine? Was told works for draining lymphnodes and getting toxins out of your body.

Anyone out there with expirrnce with a full body vibration machine? Was told w...

•7 years ago

Ibrutinab overdose?

My husband is on the Flair trial, having started it in June 2016. He's had CLL for more than ten years, on watch and wait, but in March 2016 his red blood...

My husband is on the Flair trial, having started it in June 2016. He's had CLL f...

•7 years ago

Nearly 6 months on Venetoclax!

I realise it has been a while since I last posted...Mum is nearing 6 months on Venetoclax and her health has improved so much that the beginning of this...

I realise it has been a while since I last posted...Mum is nearing 6 months on V...

•7 years ago

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