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CLL Support

22,532 members • 38,709 posts

All posts for October 2017

Full blood count

What are the health risks when your platelets are below 127 after a full blood count

What are the health risks when your platelets are below 127 after a full blood c...

Dintar

•7 years ago

2 Replies

Got blood tested after 4 days of fever

Please see the enclosed report and tell us how alarming is this and whether the patient has dengue fever or not

Please see the enclosed report and tell us how alarming is this and whether the ...

sanrit014

•7 years ago

1 Reply

Recent CLL Diagnosis

I am a 68 year old male and was diagnosed about 3 months ago after a routine physical showed a high WBC (it has varied from 22 to 28 to 34 and then back to...

I am a 68 year old male and was diagnosed about 3 months ago after a routine phy...

Elam

•7 years ago

6 Replies

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Introductions

Hi All, I was diagnosed with CLL Oct 2016, age 44, with a Lymphocyte count of 106. A bit of a shock at the time but now a year on I am learning to live with it...

Hi All, I was diagnosed with CLL Oct 2016, age 44, with a Lymphocyte count of 10...

calvinbebb

•7 years ago

7 Replies

Dermatomyositis & similar skin conditions in CLL

On a different forum a member of the CLL community, Eliot asked about patient experience with Dermatomyositis. Here was my reply to him and others with skin...

On a different forum a member of the CLL community, Eliot asked about patient ex...

ThreeWs

•7 years ago

1 Reply

Mysterious Dots

well i just started getting these red flat dots on my arm during school.so is this anything serious?Some are lighter some are darker.

well i just started getting these red flat dots on my arm during school.so is t...

Hidden

•7 years ago

5 Replies

Red Flat Dots

Hey i started getting these red flat dots on my skin they dont itch so can u help me clarify what it is.

Hey i started getting these red flat dots on my skin they dont itch so can u he...

Hidden

•7 years ago

1 Reply

Swelling

I’m still on watch & wait. Had immuno- globulin infusion week before last. Flu & pneumonia jab on Thursday - slight fever Friday night had gone by morning to...

I’m still on watch & wait. Had immuno- globulin infusion week before last. Flu &...

Sepsur

•7 years ago

3 Replies

Upcoming Post ASH CLL Society Patient and Caregiver Educational Forums Dec. 16 in Seattle and Bethesda

Hi, ASH is the most important hematology conference and this year there is sure to be clinically relevant news for those of us with CLL. To learn the latest...

Hi, ASH is the most important hematology conference and this year there is sure ...

bkoffman

CLL CURE Hero•7 years ago

1 Reply

Help with overheating

Hi I'm 35 I have been dealing with over heating for 11 yrs and been to my 3 doctor no one has any anwer or test Where do I go from here thanks if any one has...

Hi I'm 35 I have been dealing with over heating for 11 yrs and been to my 3 doct...

Hidden

•7 years ago

8 Replies

Colds and lymphocyte proliferation

My SLL has been fairly stable for the year and a half that I've been diagnosed. The past 2 months my 5 year old twin girls (who just started school) keep...

My SLL has been fairly stable for the year and a half that I've been diagnosed. ...

Elle_V

•7 years ago

8 Replies

Cost assistance for Ibrutinib in USA

I'm 70 years old and diagnosed with CLL 3 years ago. Been told I need to start Ibrutinib ASAP. Problem is, the monthly cost will be more than my fixed income....

I'm 70 years old and diagnosed with CLL 3 years ago. Been told I need to start I...

pwebster

•7 years ago

23 Replies

Some interesting cancer topics in the news

Not specifically CLL related but some interesting topics....

Myrddin

•7 years ago

1 Reply

Taxpayer-funded drugs 'too expensive for patients’

There should be a difference in price where public funds paid for much of the research. http://www.bbc.co.uk/news/health-41693246

There should be a difference in price where public funds paid for much of the re...

Myrddin

•7 years ago

1 Reply

Thanks

Thanks for all the advice. Love this CLL community. Glad to know we are on the right track.

Thanks for all the advice. Love this CLL community. Glad to know we are on the r...

Hidden

•7 years ago

1 Reply

Persistent congestive cough on ibrutanib

Has anyone experienced a long term congestive cough whilst on the Flair trial? My husband has had this for months now, disrupting sleep and adding to the...

Has anyone experienced a long term congestive cough whilst on the Flair trial? M...

Poohey

•7 years ago

6 Replies

Hubby not to happy

We are at hospital..hubby not to happy about being here but I feel better safe than sorry and he is scowling 🙂

We are at hospital..hubby not to happy about being here but I feel better safe t...

Hidden

•7 years ago

5 Replies

Hospital or no?

My Hubby is severely Neitrapenic..he has had a fever of 38.1 I am making him see Dr today at hospital...hes fever is down to 37.1 He has had Tylenol since it...

My Hubby is severely Neitrapenic..he has had a fever of 38.1 I am making him see...

Hidden

•7 years ago

4 Replies

Stopped Ibrutinib - Side Effects Continue

Hi Everyone - Sorry about the long post BUT I NEED HELP. I was on Ibrutinib (IB) for 2 weeks and after two days got severe headaches mostly in back of head. I...

Hi Everyone - Sorry about the long post BUT I NEED HELP. I was on Ibrutinib (IB...

Roydeane

•7 years ago

14 Replies

Great video on how the immune system works

I'm not sure if this has been posted, but I came upon this series today and found this "Crash Course on the Immune System" to be both enjoyable to watch, and...

I'm not sure if this has been posted, but I came upon this series today and foun...

shoshanaz

•7 years ago

1 Reply

Please sign my petition in respect to UK taxpayers funding new drug research and development and yet the new drugs are not available.

Increasingly new drugs for many diseases and illnesses including cancer treatments are only available at a very high cost to the NHS. Despite the fact that...

Increasingly new drugs for many diseases and illnesses including cancer treatmen...

HappyDave

•7 years ago

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New here on this site

I was wondering if anyone else has had bone marrow issues from the cll?

unazita

•7 years ago

2 Replies

My journey on FLAIR (Ibrutinib & Rituximab)

My journey (so far…) I am a 65 year old man living in the UK and currently on the FLAIR trial (Rituximab / Ibrutinib). Two years ago, my then partner, who was...

My journey (so far…) I am a 65 year old man living in the UK and currently on th...

Naboo

•7 years ago

9 Replies

Waiting for Acalabrutinib

After 100 days of ibrutinib with wonderful results Atrial Fibrillation is ruining it. A-Fib has been controlled with Diltiazem but my Doctor feels that it’s...

After 100 days of ibrutinib with wonderful results Atrial Fibrillation is ruinin...

Samka

•7 years ago

8 Replies

nhl b cell

i am a 59 yr old woman married living with b cell nhl. on watch and wait. i'm new to group. not sure what to share. i am always wondering when and if my cancer...

i am a 59 yr old woman married living with b cell nhl. on watch and wait. i'm ne...

mbh456

•7 years ago

7 Replies

Starting Allopurinol with Ibrutinib?

Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to...

Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged...

CLLdaughters

•7 years ago

8 Replies

getting

How to pay for ibrutinib my doctor said big drug companies help, Just wondering if anyone had exsperience with this also, how do they determine when they will...

How to pay for ibrutinib my doctor said big drug companies help, Just wondering ...

Janmae

•7 years ago

21 Replies

Flu jab and ibrutinib

Flu jab and ibrutinib Off to get my flu jab this morning anyone else on ibrutinib had the jab. Usually get one every year but this is the 1st time I will have...

Flu jab and ibrutinib Off to get my flu jab this morning anyone else on ibrutini...

cartwheels

•7 years ago

12 Replies

Completed 12 months on w&w

Dear fellow CLLers I am 66 M,CLL stage0 ,completed 12months of wnw.I asked onco if he can guess if I can remain on wnw indefinitely. He said it depends upon...

Dear fellow CLLers I am 66 M,CLL stage0 ,completed 12months of wnw.I asked onco...

vinnet

•7 years ago

10 Replies

Hope for others

Having just joined CLLSA, my husband has CLL. I notice that most people have only been diagnosed in the last 4 to 5 years. My husband was diagnosed in 2000,...

Having just joined CLLSA, my husband has CLL. I notice that most people have onl...

Pat1954

•7 years ago

9 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2017

Full blood count

Got blood tested after 4 days of fever

Recent CLL Diagnosis

Introductions

Dermatomyositis & similar skin conditions in CLL

Mysterious Dots

Red Flat Dots

Swelling

Upcoming Post ASH CLL Society Patient and Caregiver Educational Forums Dec. 16 in Seattle and Bethesda

Help with overheating

Colds and lymphocyte proliferation

Cost assistance for Ibrutinib in USA

Some interesting cancer topics in the news

Taxpayer-funded drugs 'too expensive for patients’

Thanks

Persistent congestive cough on ibrutanib

Hubby not to happy

Hospital or no?

Stopped Ibrutinib - Side Effects Continue

Great video on how the immune system works

Please sign my petition in respect to UK taxpayers funding new drug research and development and yet the new drugs are not available.

New here on this site

My journey on FLAIR (Ibrutinib & Rituximab)

Waiting for Acalabrutinib

nhl b cell

Starting Allopurinol with Ibrutinib?

getting

Flu jab and ibrutinib

Completed 12 months on w&w

Hope for others

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