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CLL Support

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All posts for October 2017

Rituximab for skin condition -- plus caretaker needs mental health check

My husband has been told he may need to start rituximab to combat the immune-related skin lesions he's had for the past two months. Prednisone (now at 60...

My husband has been told he may need to start rituximab to combat the immune-rel...

Akapiratequeen

•6 years ago

13 Replies

Cll I just got diagnosed with cll my white blood count is 20,000

I have been diagnosed with cll my white blood cell count is 20,000 no other symptoms I feel fine

I have been diagnosed with cll my white blood cell count is 20,000 no other symp...

Pinafi

•6 years ago

3 Replies

CT Scan, is it necessary in the beginning?

Hi CLL friends, I have a question about CAT Scan. I just diagnosed with CLL, initial stage 0, and my hematologist ordered CT Scan just to check what's going...

Hi CLL friends, I have a question about CAT Scan. I just diagnosed with CLL, ini...

Zheny

•6 years ago

19 Replies

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Skin allergies

Why do I suddenly have a skin allergic reaction but goes away shortly and reappears later or other days later and goes away shortly.....I thought it was my...

Why do I suddenly have a skin allergic reaction but goes away shortly and reappe...

Hidden

•6 years ago

15 Replies

IGVH Mutation Status

I'm posting in response to the discussion a couple of days ago about mutation status where it was suggested that a borderline mutated/unmutated status...

I'm posting in response to the discussion a couple of days ago about mutation st...

gardening-girl

•6 years ago

7 Replies

Statins any effect on CLL

Hi all my GP wants to put me on statins I tried years ago but could not take the side effects aching in every joint ,says new ones now to try ,just wondered if...

Hi all my GP wants to put me on statins I tried years ago but could not take the...

therev55

•6 years ago

1 Reply

IMBRUVICA COMPLICATIONS IN LUNG. NEXT IN LINE IS ZYDELIG ALONE. LOOKING FOR INFO PLEASE.

Well as it turned out, JERRY had about 3 lung drains. Very short breath as if drowning. CLL doc called in a Thoracic Surgeon and that's all she wrote. Surgeon...

Well as it turned out, JERRY had about 3 lung drains. Very short breath as if dr...

deb1610

•6 years ago

5 Replies

Consult with “world expert” and insurance

Hello Everyone, My husband was recently diagnosed CLL probably stage 0- no symptoms. We are reading that many have traveled to seek specialist advice at Mayo...

Hello Everyone, My husband was recently diagnosed CLL probably stage 0- no sympt...

Kwilson

•6 years ago

4 Replies

Anxious

I am 70 ys old and have Medicare A&B, an AARP Medicare Supplement and a Humana Part D prescription plan.I was just told I am supposed to start taking Ibrutinib...

I am 70 ys old and have Medicare A&B, an AARP Medicare Supplement and a Humana P...

pwebster

•6 years ago

25 Replies

FCR after failing B/R?

I am 5 months post treatment with B/R and my ALC is moving up. My oncologist mentioned the possibility of FCR at some point. I am 72 years old and in good...

I am 5 months post treatment with B/R and my ALC is moving up. My oncologist men...

SueVG

•6 years ago

5 Replies

Acute Lymphoblastic Leukemia

Is there a site like this for people diagnosed with ALL? A friend of a friend in her late 20's was just diagnosed a couple of weeks ago. I was hoping to...

Is there a site like this for people diagnosed with ALL? A friend of a friend i...

Farrpottery

•7 years ago

7 Replies

Anemia

I've had CLL for 3 yrs. with a W/W for now. I also have reflux and been taking PPI's for years, now my blood work says anemia. I know prolonged use of PPI's...

I've had CLL for 3 yrs. with a W/W for now. I also have reflux and been taking P...

Winsey

•7 years ago

25 Replies

Update after 1.5 years

I went for a follow up with my oncologist after 1.5 years. Still no swelling in lymph nodes or spleen. White blood cells holding steady, she said bone...

I went for a follow up with my oncologist after 1.5 years. Still no swelling in...

CCLandwell

•7 years ago

3 Replies

Five claims about coconut oil debunked

By the well respected Rosemary Stanton, Nutritionist & Visiting Fellow, UNSW: 'Solid white coconut oil ... is now the darling of celebrities and bloggers,...

By the well respected Rosemary Stanton, Nutritionist & Visiting Fellow, UNSW: 'S...

AussieNeil

Administrator•7 years ago

1 Reply

Blood Tests - accuracy and precision; why trends are important

With more queries recently about blood test results, I though it appropriate to explain a couple of significant reasons why looking at trends is important....

With more queries recently about blood test results, I though it appropriate to ...

AussieNeil

Administrator•7 years ago

10 Replies

Does any science/research point to our body having a back up immune reaction, when our white blood cells stop doing their Jobs?

I ask this question because I just had a CBC and a few other tests and did very well. Doc says I am INDOLENT. My doc was intrigued with a BCL-2 translocation...

I ask this question because I just had a CBC and a few other tests and did very ...

jettyguy1

•7 years ago

24 Replies

Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin

Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw my onc today and my lymph nodes are elevated (5.7) saw her last month and they...

Hello Members: In mid-June I finished 6 months of Bendamustine/Rituxin. I saw m...

SueVG

•7 years ago

2 Replies

Just finished FIRST round FCR - what will happen next?

I just finished three days of FCR infusion. They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine all three days....

I just finished three days of FCR infusion. They waited for the third day to in...

Marie-54

•7 years ago

33 Replies

Gamma globulins or monoclonal antibodies

My husband's CLL numbers are still quite low (he was diagnosed this past July, unmutated IgVH, otherwise unexceptionable), but his immune system has been...

My husband's CLL numbers are still quite low (he was diagnosed this past July, u...

Akapiratequeen

•7 years ago

6 Replies

Lymph #

Yes my husband had a Leydig cell Carcinoma tumor removed from testicular area a year ago, he is have scans done and blood work done every 6 months, his Lymph #...

Yes my husband had a Leydig cell Carcinoma tumor removed from testicular area a ...

Hidden

•7 years ago

3 Replies

Failed Cll 13 trial test.

I failed to get on the clinical trial because of impaired kidney function. Creat. 83. Now I’m offered standard treatment of BR as I’m 70 yrs. my bloods are...

I failed to get on the clinical trial because of impaired kidney function. Creat...

Abc123qaz

•7 years ago

4 Replies

uti, cough, fever and other virus related symptoms

I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March in 2015. The gap was due to my oncologist suddenly dying. This combo put me in...

I was diagnosed Stage 4 SLL in December 2014 and started FCR the following March...

springie

•7 years ago

5 Replies

Moyeam Tea

I heard about this tea today. Anyone ever try it? Vine tea-moyeam tea Moyeam, botanic name Ampelopsis grossedentata (Hand.Mazz.) W. T. Wang, belongs to...

I heard about this tea today. Anyone ever try it? Vine tea-moyeam tea Moyeam,...

R16728

•7 years ago

3 Replies

Raising levels of LDH in CLL

Hi, long time since last post. My mother seems to be doing well on Ibrutinib. She is 17p deletion and trysome 12, her levels of WBC were from 130 when started...

Hi, long time since last post. My mother seems to be doing well on Ibrutinib. Sh...

nicolas_12

•7 years ago

8 Replies

Taking Multivitamins

Hi everyone This may be a silly question but should CLLers take multivitamins? I was diagnosed 6 months ago with anemia too and don't know my Vit D levels. My...

Hi everyone This may be a silly question but should CLLers take multivitamins? ...

Tretops-UK

•7 years ago

6 Replies

Neutrophils 3x high

Went to cancer Dr on the 23rd..Havnt been feeling well. Wbc 48000 and neutrophils 3x high. Dr doesn't have a clue. Ordered ct on chest, abdomen/pelvis and MRI...

Went to cancer Dr on the 23rd..Havnt been feeling well. Wbc 48000 and neutrophil...

truff4507

•7 years ago

9 Replies

A faint ill-defined band of IgG, type Lambda, isdetected.

Hello You all I have been a member in this community on behalf of my Mom who has been diagnosed with CLL about a year ago. Reading your notes and translating...

Hello You all I have been a member in this community on behalf of my Mom who has...

lashkari110

•7 years ago

4 Replies

My oncologist is retiring (told today)

I had a visit with my CLL doctor today, and was told he was retiring. I live in a rural area of Virginia and have been looking for a CLL doctor at UVA in...

I had a visit with my CLL doctor today, and was told he was retiring. I live in ...

wendyc40

•7 years ago

8 Replies

What's the law in canada

What is the law here in Canada ??? For severely neutropenia at hospital

Hidden

•7 years ago

2 Replies

Typhoid fever and natural remedies

What can you do to eradicate typhoid from your system after all medical attempts fail? Maybe natural remedies stand a chance?

What can you do to eradicate typhoid from your system after all medical attempts...

Dintar

•7 years ago

1 Reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2017

Rituximab for skin condition -- plus caretaker needs mental health check

Cll I just got diagnosed with cll my white blood count is 20,000

CT Scan, is it necessary in the beginning?

Skin allergies

IGVH Mutation Status

Statins any effect on CLL

IMBRUVICA COMPLICATIONS IN LUNG. NEXT IN LINE IS ZYDELIG ALONE. LOOKING FOR INFO PLEASE.

Consult with “world expert” and insurance

Anxious

FCR after failing B/R?

Acute Lymphoblastic Leukemia

Anemia

Update after 1.5 years

Five claims about coconut oil debunked

Blood Tests - accuracy and precision; why trends are important

Does any science/research point to our body having a back up immune reaction, when our white blood cells stop doing their Jobs?

Elevated Lymphocyte Count 4 Months After Bendamustine/Rituxin

Just finished FIRST round FCR - what will happen next?

Gamma globulins or monoclonal antibodies

Lymph #

Failed Cll 13 trial test.

uti, cough, fever and other virus related symptoms

Moyeam Tea

Raising levels of LDH in CLL

Taking Multivitamins

Neutrophils 3x high

A faint ill-defined band of IgG, type Lambda, isdetected.

My oncologist is retiring (told today)

What's the law in canada

Typhoid fever and natural remedies

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