Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2017

Balooning lymph nodes

Male 62y, 7.5 years since diagnosis, last wbc at 60k which was 20k higher than about 18 months previously. Lymph node swellings in neck and shoulders have...

Male 62y, 7.5 years since diagnosis, last wbc at 60k which was 20k higher than a...

•7 years ago

Sleep problems

I don't know if insomnia is linked to CLL but I constantly have insomnia. I manage to fall asleep when I go to bed but wake a couple of hours later unable to...

I don't know if insomnia is linked to CLL but I constantly have insomnia. I man...

•7 years ago

Daily digest

I just found something very frustrating with HU. Some while ago I changed my email address and userid to add the UK so people could see where I come from...

I just found something very frustrating with HU. Some while ago I changed my em...

•7 years ago

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FCR 18 months later

I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD...

I finished up 4 rounds of FCR in March of 2015. I realize it is not always sugg...

•7 years ago

Has anyone run into bloody fluid on lung?

Hi, JERRY has been on Imbruvica about a year and recently had a pet scan showing fluid on lung. They drained 2 1/4 liters of red fluid this time. Was sent...

Hi, JERRY has been on Imbruvica about a year and recently had a pet scan showin...

•7 years ago

Trying to settle into my new norm

Diagnosed in early July with count around 21k, probably had it since late 2015 when my count was at 12k during a physical, my GP thought I was fighting...

Diagnosed in early July with count around 21k, probably had it since late 2015 w...

•7 years ago

Hi. I'm new to this site

I name is Todd, I am 52 years old and live in Florida. I was diagnosed almost exactly 10 years ago from lab work from what I thought was a routine physical....

I name is Todd, I am 52 years old and live in Florida. I was diagnosed almost e...

•7 years ago

Excellent summary of different types of treatments.

Hello all, No updates as we're in summer holiday mode here in Spain, so next blood test is on the 11th of this month (FISH test) with the results expected...

Hello all, No updates as we're in summer holiday mode here in Spain, so next bl...

•7 years ago

CLLSA Cancer Awareness Month

A video for you to share has been posted on the CLLSA Facebook page and Twitter along with a request to answers to a few questions that might help others when...

A video for you to share has been posted on the CLLSA Facebook page and Twitter ...

•7 years ago

FCR DIET?

I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!

I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/chee...

•7 years ago

Ibrutinib/Vebetoclax Journey August update

Well, another trip to hospital yesterday, delayed slightly as holiday in UK caused a lot of appointment moves. Nothing significant to report on the numbers...

Well, another trip to hospital yesterday, delayed slightly as holiday in UK caus...

•7 years ago

FR treatment 4 of 6

I just finished my 4th of 6 treatments of FR. The recovery is longer each weekend after treatment. The first month I was sick for a day. The second round a...

I just finished my 4th of 6 treatments of FR. The recovery is longer each weeke...

•7 years ago

In the arms of an angel

Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your...

Three days ago my beloved father passed away peacefully in his sleep. He is now ...

•7 years ago

What next

OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more...

OH has now had 4 cycles of FCR, and last blood test show almost complete (but no...

shoppingtrolley

•7 years ago

Blood work results 😕

My hubby's last blood work results. We have CT scan scheduled because of his nausea and fatigue. What do you think ?

My hubby's last blood work results. We have CT scan scheduled because of his na...

•7 years ago

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