Posts - CLL Support | HealthUnlocked

CLL Support

22,645 members • 38,872 posts

All posts for September 2017

Aggressive pneumonia antibiotics trigger progression ?

Does anyone have any knowledge or experience on how several rounds of various anti-biotics given intravenously can trigger a progression of CLL?

Does anyone have any knowledge or experience on how several rounds of various an...

Todd52

•7 years ago

15 Replies

Is watch and wait still the best early option

I know there are many on the watch and wait which is not easy and sometimes frustrating. With the approval of Ibrutinib and other non chemo break throughs is...

I know there are many on the watch and wait which is not easy and sometimes frus...

Superdad3

•7 years ago

25 Replies

Still no results

Well we are still waiting on our CT results...

Hidden

•7 years ago

2 Replies

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How many stage to bone marrow

Do any one have a stage4 bone marrow

Judiahuntee

•7 years ago

1 Reply

Healthunlocked Health Blogger Awards – Blood cancer & CLL candidate Brian Koffman is shortlisted for health management blogger of the year

We have a candidate to vote for in the Health Management Blogger category during Blood Cancer Awareness Month. Brian has maintained his blog site for many...

We have a candidate to vote for in the Health Management Blogger category during...

HAIRBEAR_UK

Founder Admin•7 years ago

6 Replies

Cracked nails

Hi everyone, am on Ibrutinib and suffering with splitting nails. Any ideas for prevention.?

Hi everyone, am on Ibrutinib and suffering with splitting nails. Any ideas for p...

Broadbent

•7 years ago

13 Replies

Unmutated CLL and MRD-

Hi all - I was just posting this question on the CLL Group for Younger Aged People on Facebook, and I thought I would post it here as well. When you were...

Hi all - I was just posting this question on the CLL Group for Younger Aged Peop...

dsspivak2018

•7 years ago

16 Replies

Nurses' regular use of disinfectants is associated with developing COPD, a potentially fatal lung disease

Regular use of disinfectants is linked to a higher risk of developing chronic obstructive pulmonary disease (COPD), according to new research looking at...

Regular use of disinfectants is linked to a higher risk of developing chronic ob...

AussieNeil

Administrator•7 years ago

4 Replies

Apparent link between vitamin D insufficiency and early clinical failure in patients with follicular lymphoma (a close cousin to CLL)

There appears to be a link between vitamin D insufficiency (VDI) and early clinical failure in patients with follicular lymphoma, according to an...

There appears to be a link between vitamin D insufficiency (VDI) and early clini...

AussieNeil

Administrator•7 years ago

6 Replies

Pneumonia recovery in early CLL

So, I'm about 3 months post hospital discharge from a rather persistent pneumonia that failed to respond to the first three lots of antibiotics. There was...

So, I'm about 3 months post hospital discharge from a rather persistent pneumoni...

AdrianUK

•7 years ago

5 Replies

Duvelisib Drug Succeeds in Late-Stage Trial

I subscribe to Newsmax Health, and this was just released. I've seen this 'in trial' drug mentioned recently for CLL, and this looks like a promising new drug...

I subscribe to Newsmax Health, and this was just released. I've seen this 'in tr...

crystalsky

•7 years ago

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Aciclovir

Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come...

Hi all During my FCR treatment I've had itching in my scalp, neck, back and ches...

sallyplest

•7 years ago

8 Replies

Question about Platelets and Liver markers post FR

Hi: I had 4 out of 6 cycles of FR but they were halted because of low platelets (75-85). My specialists have ordered a CT scan to see where the disease is at...

Hi: I had 4 out of 6 cycles of FR but they were halted because of low platelet...

naddude

•7 years ago

10 Replies

UPDATE ON: Help! 31yr old newly diagnosed CLL.

UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and...

UPDATE: hi everyone.... Just wanted to post an update on my brother and say than...

Jade263

•7 years ago

30 Replies

Update

Well went to hemotologist today. He ordered lots of blood tests. Took 9 viles of blood. My palates were 517 last visit today were 550 . So he will review...

Well went to hemotologist today. He ordered lots of blood tests. Took 9 viles of...

Angiewryan

•7 years ago

4 Replies

TKR and Blood Thinners with CLL

I I was diagnosed with CLL in 2010 I have been on Imbruvica for past three years. I have had minor side effects like some black and blue marks and some Facial...

I I was diagnosed with CLL in 2010 I have been on Imbruvica for past three years...

DaveCll

•7 years ago

1 Reply

Total Knee Replacement

I was diagnosed with CLL in 2010 I have been on Imbruvica for past three years. I have had minor side effects like some black and blue marks and some Facial...

I was diagnosed with CLL in 2010 I have been on Imbruvica for past three years. ...

DaveCll

•7 years ago

5 Replies

Starting treatment

I am getting ready to start treatment and am having a port put in for the infusions and blood work. After I finish the treatments will they remove the port or...

I am getting ready to start treatment and am having a port put in for the infusi...

J-girl

•7 years ago

3 Replies

side effects of ibrutinib - bladder pressure?

Hola. Estoy escribiendo a través del traductor de google. Estoy terminando 8 semanas con ibrutinib mis glóbulos blancos han bajado mucho. pero tengo algunos...

Hola. Estoy escribiendo a través del traductor de google. Estoy terminando 8 sem...

Bixilon

•7 years ago

8 Replies

CLL and Breast Lymph nodes

Hi fellow CLL'ers, I really appreciate this site and all of your posts, such a great resource. Recently I had an abnormal mamogram, first time in 17 years, did...

Hi fellow CLL'ers, I really appreciate this site and all of your posts, such a g...

lorna222

•7 years ago

19 Replies

I refused Chemo 2 months ago and I am trying the natural path

Call me crazy but after alot of research and many nights up late thinking about my situation I decided to tell the pros at MD Anderson that I would wait...

Call me crazy but after alot of research and many nights up late thinking about ...

BCTexas

•7 years ago

96 Replies

UK and Flu vaccine

Had to go to the GPs today to pick up a repeat prescription for hypertension. While I was waiting for the receptionist to finish on the phone I spotted flu...

Had to go to the GPs today to pick up a repeat prescription for hypertension. W...

Oleboyredw-uk

•7 years ago

6 Replies

Is it time to start or not

Hello All, my name is Anna and I'm looking for some info and support for my husband Bernard (63) who is about to start his first round. We're very nervous and...

Hello All, my name is Anna and I'm looking for some info and support for my husb...

AnnaK11

•7 years ago

4 Replies

Verastem, with Phase 3 Results, to Request FDA Approve Oral Duvelisib to Treat Advanced CLL and SLL

Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 trial of patients with relapsed or refractory chronic lymphocytic leukemia (CLL)...

Verastem’s duvelisib was seen to outperform Arzerra (ofatumumab) in a Phase 3 tr...

wmay13241

•7 years ago

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How to directly report inappropriate Private Messages (e.g. scammers/spammers) to HealthUnlocked

Every Private Message and subsequent reply has three dots in the top right of the message. Just click on/select these dots and click on/select 'Report' and...

Every Private Message and subsequent reply has three dots in the top right of th...

AussieNeil

Administrator•7 years ago

3 Replies

Scam

Trustee111 has messaged me on this site asking for money. Anyone else who gets this please do not open!

Trustee111 has messaged me on this site asking for money. Anyone else who gets ...

Hazel33

•7 years ago

8 Replies

My journey with Ibrutini 🏃🏻(Day 19)

It wasn't easy to swallow the first 3 capsules of IB on Aug 18th if it wasn't for the many postings & encouragements that I read from this site. A big thank...

It wasn't easy to swallow the first 3 capsules of IB on Aug 18th if it wasn't fo...

Seok

•7 years ago

16 Replies

South Australian members - Dr George Follows is speaking on Treatment in 2017 and beyond at Flinders Uni on Wed. 13th September, 3 - 4PM

A while ago we had a post asking what's happening with regard to CLL in Australia, specifically South Australia. Regular readers will recognise Dr George...

A while ago we had a post asking what's happening with regard to CLL in Australi...

AussieNeil

Administrator•7 years ago

11 Replies

First post

Hi everyone, I'm reading new posts every day. This site helped me a lot to understand cll. My mom was dx with cll in april 2017. She is on w&w, but for the...

Hi everyone, I'm reading new posts every day. This site helped me a lot to under...

ISanja

•7 years ago

7 Replies

chlorambucil + obinutuzumba

I am 68 and untreated and been on W&W for 5 years. I have an enlarged lymph node on neck and one smaller to side of face. They don't hurt but are bothersome....

I am 68 and untreated and been on W&W for 5 years. I have an enlarged lymph nod...

eoravillo

•7 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2017

Aggressive pneumonia antibiotics trigger progression ?

Is watch and wait still the best early option

Still no results

How many stage to bone marrow

Healthunlocked Health Blogger Awards – Blood cancer & CLL candidate Brian Koffman is shortlisted for health management blogger of the year

Cracked nails

Unmutated CLL and MRD-

Nurses' regular use of disinfectants is associated with developing COPD, a potentially fatal lung disease

Apparent link between vitamin D insufficiency and early clinical failure in patients with follicular lymphoma (a close cousin to CLL)

Pneumonia recovery in early CLL

Duvelisib Drug Succeeds in Late-Stage Trial

Aciclovir

Question about Platelets and Liver markers post FR

UPDATE ON: Help! 31yr old newly diagnosed CLL.

Update

TKR and Blood Thinners with CLL

Total Knee Replacement

Starting treatment

side effects of ibrutinib - bladder pressure?

CLL and Breast Lymph nodes

I refused Chemo 2 months ago and I am trying the natural path

UK and Flu vaccine

Is it time to start or not

Verastem, with Phase 3 Results, to Request FDA Approve Oral Duvelisib to Treat Advanced CLL and SLL

How to directly report inappropriate Private Messages (e.g. scammers/spammers) to HealthUnlocked

Scam

My journey with Ibrutini 🏃🏻(Day 19)

South Australian members - Dr George Follows is speaking on Treatment in 2017 and beyond at Flinders Uni on Wed. 13th September, 3 - 4PM

First post

chlorambucil + obinutuzumba

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