Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2017

Anyone have CLL q11

Hello I hope you all continue to take good care of yourselves. I'm on here because my brother was diagnosed a couple of years ago with CLL q11. Is these anyone...

Hello I hope you all continue to take good care of yourselves. I'm on here becau...

Lorray

•7 years ago

28 Replies

Update

Hi Everyone As promised we have a further update. Hubby has finally got a date for his stoma reversal op which is the 16th October. Between Dr Schuh and...

Hi Everyone As promised we have a further update. Hubby has finally got a date f...

Susiecarer

•7 years ago

7 Replies

UPDATE ON: Help! 31yr old newly diagnosed CLL

Hi everyone!!! Just wanted to give the newest update on my brother. I found a familial CLL study being conducted at Dana Farber Cancer Hospital (Boston, mass)....

Hi everyone!!! Just wanted to give the newest update on my brother. I found a fa...

Jade263

•7 years ago

2 Replies

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Ibrutinib doing its job well

It's been a couple of months since I last posted and all is going well. WBC is coming down nicely and platelets, haemoglobin etc all in the healthy range....

It's been a couple of months since I last posted and all is going well. WBC is c...

KAS8

•7 years ago

11 Replies

Posting on CAR-T, BLAM, WLADand improved PFS with Venetoclax =R versus Bendamustine +R

Hi, I have been little too busy and way too sick with a slowly resolving chest infection to stay well engaged with the list, but I have been posting almost...

Hi, I have been little too busy and way too sick with a slowly resolving chest i...

bkoffman

CLL CURE Hero•7 years ago

16 Replies

Reaction to FCR or Medicine.

I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash...

I had my first cycle of FCR in August. I had an allergy to something. Most lik...

Jemisavs5

•7 years ago

6 Replies

Neutrophil Level Meaning

I am new here for asking a question but have been reading many of your posts for a couple of months. I was diagnosed with cll in May 2017. After a mammogram...

I am new here for asking a question but have been reading many of your posts for...

Storygirl

•7 years ago

9 Replies

Blood tests - limited results

HI all, I have had a number of blood tests in quick succession - the last two less than six weeks apart. My wbc have gone from 13.4 to 17.5. Is this...

HI all, I have had a number of blood tests in quick succession - the last two l...

Steffi50

•7 years ago

6 Replies

Prednisone

Does anyone taking prednisone for RA ever get enlarged and painful lymph nodes? thanks

Does anyone taking prednisone for RA ever get enlarged and painful lymph nodes? ...

Jmarieob

•7 years ago

3 Replies

Trying to understand

peripheral blood flow cytometric analysis. Is this test to show what kind of cancer someone might have or to find out if you have cancer at all Thank you

peripheral blood flow cytometric analysis. Is this test to show what kind of can...

robinwhipps

•7 years ago

11 Replies

Won't tell me anything

Hi my name is Robin first time on here just trying to find answers I had Blood work done at beginning of month and have to wait until October my primary care...

Hi my name is Robin first time on here just trying to find answers I had Blood w...

robinwhipps

•7 years ago

10 Replies

CLL confrence

Thank you letting the community know about this confrence in the north east. I spoke to my nurse specialist and she is securing me a place as we speak. Look...

Thank you letting the community know about this confrence in the north east. I s...

annmcgowan

•7 years ago

8 Replies

Hello from Michigan

Hi everyone. My nam is Pam. I was diagnosed a year ago at age 70. My doctors assure me I will probably die of old age before CLL. My first year, as you can...

Hi everyone. My nam is Pam. I was diagnosed a year ago at age 70. My doctors ass...

migirlusa

•7 years ago

14 Replies

Dog lovers unite to raise awareness of Leukaemia in Malvern and hills

More pooch pics from a great doggy day. Help us empower GPs to 'Spot Leukaemia' early and reduce the number of emergency presentations. Twelve days of Blood...

More pooch pics from a great doggy day. Help us empower GPs to 'Spot Leukaemia...

HAIRBEAR_UK

Founder Admin•7 years ago

Be the first to reply

Sugar

I love a few treats now and then. Does sugar really effect cll/sll. What about green tea. One lump or two?

I love a few treats now and then. Does sugar really effect cll/sll. What about g...

RobDK

•7 years ago

4 Replies

Dehydrated

Leg cramps. You might be dehydrated. Please drink a lot of water. Keep your body hydrated so the toxins from the meds flush.

Leg cramps. You might be dehydrated. Please drink a lot of water. Keep your body...

joanne17

•7 years ago

8 Replies

New diagnosis

I was DX w/ CLL stage 0 last week. I'll be 60 next month, exercise regularly and am vegan. Thought I was healthy. Scared to death. I get FISH results the end...

I was DX w/ CLL stage 0 last week. I'll be 60 next month, exercise regularly and...

Summer4fun

•7 years ago

35 Replies

Sore, weak, tired, slightly swollen legs?

So part of my current symptoms which I don't know whether they are recovery from pneumonia or the new normal for me has been very tired, sore legs. I find...

So part of my current symptoms which I don't know whether they are recovery from...

AdrianUK

•7 years ago

4 Replies

New to cll

Just got diagnosed, glad to find this site. I'm not that freaked out but not sure. The word cancer is frightening, lost a lot of family to it. BUT, I am 78...

Just got diagnosed, glad to find this site. I'm not that freaked out but not sur...

flugel1

•7 years ago

18 Replies

Just found out

Just found out I have early stage cll. A bit upset but not too bad, as I am pretty old and have had quite a life. I don't think I'll be having any treatment at...

Just found out I have early stage cll. A bit upset but not too bad, as I am pret...

flugel1

•7 years ago

12 Replies

Recently diagnosed and need someone to talk to

I am 59 years old and was recently diagnosed with CLL at the watch and wait stage. My primary doctor doesn't seem too worried at this point. He said my white...

I am 59 years old and was recently diagnosed with CLL at the watch and wait stag...

DeniseQ

•7 years ago

27 Replies

Blood results.

Should i be worried? Had recent blood test - looked online for tesults and my GP has sent a letter to hospital marked urgent - as my WBC has risen from 18...

Should i be worried? Had recent blood test - looked online for tesults and my ...

Newcastle1962

•7 years ago

16 Replies

Labs back on my progressing cll ...thoughts.

Ive been concerned my cll is transforming into Richter's. I just got back two lab numbers. LDH is normal at 134 (87-241 normal) Uric acid is elevated at...

Ive been concerned my cll is transforming into Richter's. I just got back two...

Todd52

•7 years ago

6 Replies

Science or snake oil: is manuka honey really a ‘superfood’ for treating colds, allergies and infections?

Manuka honey regularly gets a mention in replies as something to try for stubborn infections, so this article will be of interest to many of us. Manuka...

Manuka honey regularly gets a mention in replies as something to try for stubbor...

AussieNeil

Administrator•7 years ago

2 Replies

Ct results

No issues. We will make appointment with family doc to go through the no issues and at the same time request a copy. I find it hard to believe the results!...

No issues. We will make appointment with family doc to go through the no issues...

Hidden

•7 years ago

1 Reply

PRIZES & CATEGORIES, Saturday 16th Sept, 'SPOT LEUKAEMIA', FREE dog show, picnic and dog walk

Calling all animal lovers! Just come along and Join us if you can, have a little fun and raise awareness of leukaemia during Blood Cancer Awareness Month....

Calling all animal lovers! Just come along and Join us if you can, have a little...

HAIRBEAR_UK

Founder Admin•7 years ago

1 Reply

Cardiff Support Group Visit Research Labs.

Hi friends. It is with great personal pleasure, I report (second hand) on yesterdays visit to the University Hospital of Wales research labs in Cardiff....

Hi friends. It is with great personal pleasure, I report (second hand) on yeste...

HAIRBEAR_UK

Founder Admin•7 years ago

7 Replies

Feeling tired

Diagnosed with CLL four years ago my outlook on life changed immensly. However, like many of us I have my 'good days' and 'less good' days, and trust me: It...

Diagnosed with CLL four years ago my outlook on life changed immensly. However, ...

MadMina

•7 years ago

25 Replies

Hyper metabolic lymph nodes

I could really use some advice on how to deal with enlarging lymph nodes. I had a pet scan and hyper metabolic lodes was noted. Also had a biopsy and...

I could really use some advice on how to deal with enlarging lymph nodes. I had ...

wiggles123

•7 years ago

4 Replies

Angie4now

Hi my name is Angie, and I was recently diagnosed with CLL stage 0. I have never been a medicine type of person and try to eat healthy and live a healthy life...

Hi my name is Angie, and I was recently diagnosed with CLL stage 0. I have neve...

Angie4now

•7 years ago

33 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2017

Anyone have CLL q11

Update

UPDATE ON: Help! 31yr old newly diagnosed CLL

Ibrutinib doing its job well

Posting on CAR-T, BLAM, WLADand improved PFS with Venetoclax =R versus Bendamustine +R

Reaction to FCR or Medicine.

Neutrophil Level Meaning

Blood tests - limited results

Prednisone

Trying to understand

Won't tell me anything

CLL confrence

Hello from Michigan

Dog lovers unite to raise awareness of Leukaemia in Malvern and hills

Sugar

Dehydrated

New diagnosis

Sore, weak, tired, slightly swollen legs?

New to cll

Just found out

Recently diagnosed and need someone to talk to

Blood results.

Labs back on my progressing cll ...thoughts.

Science or snake oil: is manuka honey really a ‘superfood’ for treating colds, allergies and infections?

Ct results

PRIZES & CATEGORIES, Saturday 16th Sept, 'SPOT LEUKAEMIA', FREE dog show, picnic and dog walk

Cardiff Support Group Visit Research Labs.

Feeling tired

Hyper metabolic lymph nodes

Angie4now

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