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CLL Support

22,526 members • 38,689 posts

All posts for April 2017

Clinical Transformation

What exactly is "clinical transformation" as opposed to Richter's transformation in SLL?

What exactly is "clinical transformation" as opposed to Richter's transformation...

Mintchochip

•7 years ago

5 Replies

Effect of Alcohol with Ibrutinib

I enjoy one or two drinks of say 30-45 ml each per 7-10 days. Now on Ibrutinib for 7 weeks, can I take ; also what is likely effect of alcohol on this...

I enjoy one or two drinks of say 30-45 ml each per 7-10 days. Now on Ibrutinib f...

Anilbhard

•7 years ago

20 Replies

Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL

The current study compared the effectiveness of FCR to FC alone. 817 patients were randomly assigned to FCR treatment or FC treatment. None of the patients had...

The current study compared the effectiveness of FCR to FC alone. 817 patients we...

wmay13241

•7 years ago

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Introduction

Hi about to start treatment on ibrutinin for 17p been in ww 2 years feel fine other then the usual tiredness still working etc any tips grateful

Hi about to start treatment on ibrutinin for 17p been in ww 2 years feel fine ot...

cartwheels

•7 years ago

14 Replies

Chronic sinusitis following FCR?

My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road but not common form. A year later he had FCR with great results but the...

My husband was diagnosed with CLL 6 years ago, Trisomy 12, a middle of the road ...

Jls123

•7 years ago

7 Replies

Skin rash

I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. After my 5th IVIG infusion (Feb 1, 2017), I developed a skin rash that started on...

I've had CLL for almost 9 years. WBC count had been mostly stable around 20K. Af...

CLLBill

•7 years ago

29 Replies

First experience of Ibrutinin and rituximab

This week I started treatment and so far so good. 100ml on Thursday with no adverse effects then 500ml yesterday again no problems Making sure I hydrate and...

This week I started treatment and so far so good. 100ml on Thursday with no adve...

KAS8

•7 years ago

6 Replies

Carrots and pumpkin might reduce your risk of cancer, but beware taking them in pill form

'The value of the global vitamins and dietary supplements market is predicted to reach US$59.6 billion by 2020; : Yet, the vast majority of this mass...

'The value of the global vitamins and dietary supplements market is predicted to...

AussieNeil

Administrator•7 years ago

15 Replies

Drug Trial update - Gazyva with TGR-1202

Hi CLL friends, I started my infusions Tuesday at OHSU in Oregon, no treatment prior. The first day was a little rough due to the massive steroids and...

Hi CLL friends, I started my infusions Tuesday at OHSU in Oregon, no treatment p...

ChrisLovesLife

•7 years ago

16 Replies

Hepatic Hemangioma

I am new to the forum. I have CLL and I am a UK patient on watch and wait. I was diagnosed in 2015 and have had the condition since 2011. I am in general good...

I am new to the forum. I have CLL and I am a UK patient on watch and wait. I was...

MrsB1963

•7 years ago

3 Replies

Explainer: what is the blood-brain barrier and how can we overcome it?

'The blood–brain barrier is generally very effective at preventing unwanted substances from accessing the brain, which has a downside. The vast majority of...

'The blood–brain barrier is generally very effective at preventing unwanted subs...

AussieNeil

Administrator•7 years ago

2 Replies

Lymph nodes that are multiplying

Hi i am trying to understand my lymph nodes and how they are connected to my CLL. I am in good shape, blood work good, not tired to much. I wouldn't even know...

Hi i am trying to understand my lymph nodes and how they are connected to my CLL...

meggylng

•7 years ago

23 Replies

FCR and Bladder irritation

Hello All, I just thought I would pose a quick question to ask if these symptoms I have are common place or unrelated to FCR. I have just...

Hello All, I just thought I would pose a quick question to ask i...

Rich316

•7 years ago

12 Replies

Non-Drug Therapies Found Best for Managing Cancer Fatigue. Exercise, CBT may be more effective at stages of treatment

AussieNeil

Administrator•7 years ago

1 Reply

Rituximab concerns

Early hours of the morning and I can't sleep. I start FLair trial Monday morning with FCR arm. Have a chest infection but taking antibiotics so will...

Early hours of the morning and I can't sleep. I start FLair trial Monday mornin...

sallyplest

•7 years ago

25 Replies

Weighing the risks and benefits of CT scans in childhood - and the implications for adult scans

While thankfully, CLL specialists are now recommending significantly less use of CT scans for monitoring CLL than has historically been the case, those of us...

While thankfully, CLL specialists are now recommending significantly less use of...

AussieNeil

Administrator•7 years ago

9 Replies

Moderate Overweight: Protective or Not?"Obesity paradox" takes a hit from new study

Of interest to those trying to get their BMI into a healthy range: 'Using data from three large cohort studies, comprising over 225,000 individuals, the...

Of interest to those trying to get their BMI into a healthy range: 'Using data f...

AussieNeil

Administrator•7 years ago

4 Replies

CLL with CNS involvement

My partner was diagnosed with CLL 3 years ago as a fit and very active 61year old. Lymphocytes have always been low level (around 28) so was on watch and wait...

My partner was diagnosed with CLL 3 years ago as a fit and very active 61year ol...

MaggieMcL

•7 years ago

11 Replies

Busy day -week 8

Week eight of trial and a busy day today. Sitting waiting to be checked in for CT scan. Once through that off to another department for a BMB. Will add this...

Week eight of trial and a busy day today. Sitting waiting to be checked in for ...

Oleboyredw-uk

•7 years ago

15 Replies

Irish Cll Community First ever Public Information Day

We are overwhelmed with the great response to our upcoming Information Day - due to the high demand we've moved venue to the Ashling Hotel so we can...

We are overwhelmed with the great response to our upcoming Information Day - due...

KateEvaLen

•7 years ago

1 Reply

FCR lite for relapsed SLL

After having CR for 5 years, oncologist decided to start treatment in next few days. Primary driver is node size and weight loss. My 1st line of treatment was...

After having CR for 5 years, oncologist decided to start treatment in next few d...

mag1309

•7 years ago

6 Replies

Post FCR - stopping Aciclovir

I finished FCR just over 3 months ago. I actually only had 5 sessions as I had responded so well. For the first 6 weeks or so, I was on cloud nine, but then...

I finished FCR just over 3 months ago. I actually only had 5 sessions as I had ...

Grannajan

•7 years ago

5 Replies

Feeling worse after FCR treatment.

Anyone here had FCR treatment? I have post chemo questions. I have a question...post-chemo question. Did you feel mentally different? Some days I feel so down...

Anyone here had FCR treatment? I have post chemo questions. I have a question......

sunflwerchild

•7 years ago

16 Replies

Counting the sleeps till treatment

I was diagnosed in August 2016 following an unexpected collapse at home ages 47 ( to the day!) Having tracked my bloods for 6 months I was told to go live...

I was diagnosed in August 2016 following an unexpected collapse at home ages 47...

KAS8

•7 years ago

13 Replies

CancerCare CLL Update Teleconference this Thursday with Dr. John Pagel and Dr. Jennifer Brown and yours truly

Hi, I am excited and humbled to be part of the Cancercare faculty doing a CLL Update teleconference on April 6 at 1:30 PM EST. The heavy lifting on all things...

Hi, I am excited and humbled to be part of the Cancercare faculty doing a CLL Up...

bkoffman

CLL CURE Hero•7 years ago

4 Replies

EGCG

Hi everyone! Just wondering if anyone is seeing a benefit from taking EGCG? I would like to begin taking it, but I don't want it to lower my platelet count.

Hi everyone! Just wondering if anyone is seeing a benefit from taking EGCG? I ...

GeriGi

•7 years ago

16 Replies

Living healthy still!

Hi all! I am new to this post! I've been on my CLL "journey" for 11 years. Still no treatment. Just wanted to say HI! Geri

Hi all! I am new to this post! I've been on my CLL "journey" for 11 years. Sti...

GeriGi

•7 years ago

46 Replies

CLL / P17 with Mutation

My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion with mutation. She has BWC of 213,000 and swollen lymph nodes. She was put on...

My sister in law who is 60 yrs. old has been diagnosed with CLL / P17 deletion w...

brison2

•7 years ago

34 Replies

Muscle fatigue on Ibrutinib

Hi - first time posting and great to know there are others out there. I was diagnosed with CLL in 2014 and now been on Ibrutinib for 4 months. In the last...

Hi - first time posting and great to know there are others out there. I was diag...

MaggieMcL

•7 years ago

31 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2017

Clinical Transformation

Effect of Alcohol with Ibrutinib

Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL

Introduction

Chronic sinusitis following FCR?

Skin rash

First experience of Ibrutinin and rituximab

Carrots and pumpkin might reduce your risk of cancer, but beware taking them in pill form

Drug Trial update - Gazyva with TGR-1202

Hepatic Hemangioma

Explainer: what is the blood-brain barrier and how can we overcome it?

Lymph nodes that are multiplying

FCR and Bladder irritation

Non-Drug Therapies Found Best for Managing Cancer Fatigue. Exercise, CBT may be more effective at stages of treatment

Rituximab concerns

Weighing the risks and benefits of CT scans in childhood - and the implications for adult scans

Moderate Overweight: Protective or Not?"Obesity paradox" takes a hit from new study

CLL with CNS involvement

Busy day -week 8

Irish Cll Community First ever Public Information Day

FCR lite for relapsed SLL

Post FCR - stopping Aciclovir

Feeling worse after FCR treatment.

Counting the sleeps till treatment

CancerCare CLL Update Teleconference this Thursday with Dr. John Pagel and Dr. Jennifer Brown and yours truly

EGCG

Living healthy still!

CLL / P17 with Mutation

Muscle fatigue on Ibrutinib

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