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CLL Support

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All posts for February 2017

Gaining weight with Imbruvica

I've probably asked this before...has anyone been able to stem the weight gain that seems to go with Imbruvica? My weight was stable through about month 6 and...

I've probably asked this before...has anyone been able to stem the weight gain t...

RJR1

•7 years ago

14 Replies

How many cancers can I get?

Hello!! I got diagnosed 6 months ago and doing wait and watch. I got refeared to an ENT because they think I have sleep apnea. He had my neck ultrasound ....

Hello!! I got diagnosed 6 months ago and doing wait and watch. I got refeared to...

Lizlashley1

•7 years ago

12 Replies

Recent update

Hi Just had the results from hubbys blood test yesterday. WBC now 117 was 125 HB now 98 was 85 Platelets 162 dropped slightly but still in the zone. Nurse was...

Hi Just had the results from hubbys blood test yesterday. WBC now 117 was 125 H...

Susiecarer

•7 years ago

4 Replies

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Another 12 weeks with CLL

After nine months on venetoclax down to seeing prof every 12 weeks rather than 4. Look at this photo! I say with CLL. Actually I'm Mrd but life ain't...

After nine months on venetoclax down to seeing prof every 12 weeks rather than 4...

Corin850

•7 years ago

13 Replies

2nd amazing mdanderson visit

Hello, I love my dr and mdacc. I finally have the real watch and wait reasoning. Take this as my opinion. I believe they are seeing fantastic results with...

Hello, I love my dr and mdacc. I finally have the real watch and wait reasoning...

Swissnology

•7 years ago

8 Replies

Muscle pain on Ibrutinib

Has anyone else experienced muscle pain and stiffness on Ibrutinib? I started it as frontline treatment back in October and have been sailing along without...

Has anyone else experienced muscle pain and stiffness on Ibrutinib? I started i...

kimiD

•7 years ago

34 Replies

Hypothyroidism and iron defiancy anaemia

Hi Can anyone of you lovely people on here throw any light on the above. My friend who had hypothyroidism also suffered IDA. Could there be a link do you...

Hi Can anyone of you lovely people on here throw any light on the above. My fri...

Susiecarer

•7 years ago

3 Replies

Calcium build up on #8 rib

Good Morning, I went to Patient First on Monday morning after feeling sick for about a week. (cold like symptoms) The doctors had a chest x-ray done and found...

Good Morning, I went to Patient First on Monday morning after feeling sick for a...

mejiae

•7 years ago

2 Replies

Calling all treated with Venetoclax/Venclexa/ABT-199 - and all others interested in supporting Australians to gain non-chemo CLL treatment

Final call to support affordable CLL non-chemo treatment for Australians - and improve the chances of your country approving this very effective drug when the...

Final call to support affordable CLL non-chemo treatment for Australians - and i...

AussieNeil

Administrator•7 years ago

5 Replies

3 Years past FCR

After a FCR ride from 10/13 -4/14, with more or less no side effects, I went in CR and MRD -! Since then, blood counts were always in normal range. I have been...

After a FCR ride from 10/13 -4/14, with more or less no side effects, I went in ...

seoul

•7 years ago

7 Replies

Daytime Sleepiness Improved by Weight Loss Interventions

Having trouble staying awake during the day and blaming CLL? If you are overweight, a review of 42 studies "suggests that weight loss interventions improve...

Having trouble staying awake during the day and blaming CLL? If you are overwei...

AussieNeil

Administrator•7 years ago

9 Replies

When CLL Goes Bad

A week after the 2016 ASH meeting, the CLL Society held our 2nd annual CLL Patient Educational Forum at City of Hope in Duarte, CA. After the forum, I had a...

A week after the 2016 ASH meeting, the CLL Society held our 2nd annual CLL Patie...

bkoffman

CLL CURE Hero•7 years ago

2 Replies

Shingles and fucidin

I have shingles since 24th Dec. Some are still weeping on my back despite being treated with Acicllovir. My GP has prescribed Fucidin today. When I applied it...

I have shingles since 24th Dec. Some are still weeping on my back despite being ...

Paidraigin

•7 years ago

21 Replies

Blood results

Hi what does it mean a Hb of 135 Platelets 91 Lymphocytes 1 Normal chemistry please

Hi what does it mean a Hb of 135 Platelets 91 Lymphocytes 1 Normal chemistry ple...

Saidie

•7 years ago

6 Replies

First update

Hi Susiecarer here. Hubby had his first follow up appointment yesterday at the Churchill. They are going to do more tests i.e., endoscopy x2 and depending on...

Hi Susiecarer here. Hubby had his first follow up appointment yesterday at the C...

Susiecarer

•7 years ago

8 Replies

Venetoclax is being considered for approval in Australia - Aussies, please support this application! Closing date 8th Feb

Venetoclax for relapsed/refractory CLL will be considered at the next Pharmaceutical Benefits Advisory Committee (PBAC) meeting in March, 2017 for...

Venetoclax for relapsed/refractory CLL will be considered at the next Pharmaceut...

AussieNeil

Administrator•7 years ago

19 Replies

Salmonella

I've been on W W for year and half. 2 months ago after eating in a restaurant I felt really sick Stomach aches and was tested positive for Salmonella. On...

I've been on W W for year and half. 2 months ago after eating in a restaurant I ...

annabelle63

•7 years ago

3 Replies

Lookin for a dr in ky or tn

Anyone know,if a cll/sll specialist in ky or tn

dcamp

•7 years ago

10 Replies

Platelet count going down

I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet...

I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The ...

budm

•7 years ago

2 Replies

SLL with unexplained history

Hi, I was diagnosed this past November, 42yo male. I have the SLL variant. My story is that I experience classic B symptoms 18 mo before my diagnoses. For 8...

Hi, I was diagnosed this past November, 42yo male. I have the SLL variant. My st...

AlexanderP

•7 years ago

3 Replies

OSU Trial Update Cycle 9, Day 1

Hi everyone, I got back yesterday from OSU. After 8 cycles are completed, they do interim testing, and so I had neck, chest, abdomen and pelvic CT scans, blood...

Hi everyone, I got back yesterday from OSU. After 8 cycles are completed, they d...

thompsonellen

•7 years ago

14 Replies

Feeling sorry for myself

Hi Everyone, I'm having a bad day and thought you guys could possibly be the only ones that would understand. I have posted before - I was diagnosed May 2016,...

Hi Everyone, I'm having a bad day and thought you guys could possibly be the onl...

Jackim

•7 years ago

39 Replies

Initiating Treatment

https://youtu.be/lg47sQJyAEg

Cllcanada

Nonresponsivity to Rituxin

I was diagnosed with CLL in 2008, with no negative markers on the FISH test. I was deemed to have all the good markers on other tests, CD38 negative, ZAP 70...

I was diagnosed with CLL in 2008, with no negative markers on the FISH test. I ...

Ezjacobs

•7 years ago

7 Replies

OncLive Peer Exchange...The Role of Maintenance Therapy in CLL

https://youtu.be/_wEzHqwPZWs

Cllcanada

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2017

Gaining weight with Imbruvica

How many cancers can I get?

Recent update

Another 12 weeks with CLL

2nd amazing mdanderson visit

Muscle pain on Ibrutinib

Hypothyroidism and iron defiancy anaemia

Calcium build up on #8 rib

Calling all treated with Venetoclax/Venclexa/ABT-199 - and all others interested in supporting Australians to gain non-chemo CLL treatment

3 Years past FCR

Daytime Sleepiness Improved by Weight Loss Interventions

When CLL Goes Bad

Shingles and fucidin

Blood results

First update

Venetoclax is being considered for approval in Australia - Aussies, please support this application! Closing date 8th Feb

Salmonella

Lookin for a dr in ky or tn

Platelet count going down

SLL with unexplained history

OSU Trial Update Cycle 9, Day 1

Feeling sorry for myself

Initiating Treatment

Nonresponsivity to Rituxin

OncLive Peer Exchange...The Role of Maintenance Therapy in CLL

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