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CLL Support

22,519 members • 38,681 posts

All posts for February 2017

Reporting medical news is too important to mess up

'News stories regarding the latest in the world of medicine are often popular. After all, most people are interested in their own health and that of their...

'News stories regarding the latest in the world of medicine are often popular. A...

AussieNeil

Administrator•7 years ago

3 Replies

Why sitting is not the ‘new smoking’

'Sitting has been branded the “new smoking” for its supposed public health risks, especially for people with sit-down office jobs. Over the past 15 years...

'Sitting has been branded the “new smoking” for its supposed public health risks...

AussieNeil

Administrator•7 years ago

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2 YEAR REMISSION CLL OVER

JERRY just started imbruvica a month ago. Going smoothly so far. December was last blood work before getting upper and lower GI scans because he had bed...

JERRY just started imbruvica a month ago. Going smoothly so far. December was l...

deb1610

•7 years ago

7 Replies

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New Australian drug regulator proposals should give Aussies a better idea whether complementary medicines do what they say on the packet

One change proposed by the Therapeutic Goods Administration (TGA) is a “stamp of approval” on the packaging and promotional material of some vitamins,...

One change proposed by the Therapeutic Goods Administration (TGA) is a “stamp of...

AussieNeil

Administrator•7 years ago

2 Replies

Just a cold!

Hi I was dx nearly a year ago and am on W and W with 6 monthly blood tests so I generally try to put my CLL on a back burner, with just the odd reminder when...

Hi I was dx nearly a year ago and am on W and W with 6 monthly blood tests so I ...

Saska-Jul31

•7 years ago

13 Replies

Travel Insurance

Hello to You All. I wonder if anyone out there has had the same problems as I have finding an affordable health travel insurance. I had a successful course of...

Hello to You All. I wonder if anyone out there has had the same problems as I ha...

jaypax

•7 years ago

16 Replies

Chemo advised for anaemia follow up

Hi everyone I have had my consultation with a different specialist at the Northern Centre for Cancer Care regarding above. The meeting went well My family and...

Hi everyone I have had my consultation with a different specialist at the Northe...

annmcgowan

•7 years ago

15 Replies

Cll and solvents

Hi folks, I am wondering if there is any info on here about the link between CLL and solvents?

Hi folks, I am wondering if there is any info on here about the link between CLL...

KHuff

•7 years ago

20 Replies

Live Patient Power CLL event is on.....

The live event is on now, got o patient power website to register. Dr. Keating and Lamana are on the panel.

The live event is on now, got o patient power website to register. Dr. Keating ...

nkferg

•7 years ago

2 Replies

low hemaglobin

I was checking to know if they now have a hemaglob I test at home. This is great and probably life saving and so glad I am not alone .4times in my life for no...

I was checking to know if they now have a hemaglob I test at home. This is great...

shortfemale

•7 years ago

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RECENTLY RESEARCHED ......EGCG

Being unable to sleep I did some research and came across a paper regarding the above. It was written by a Karl W Oestreich in June 2010. The trials...

Being unable to sleep I did some research and came across a paper regarding the ...

Susiecarer

•7 years ago

7 Replies

Ear Thermometers

My Doctor told me that the electronic thermometer I recently purchased will be unreliable and at least a degree out - ( It's an under arm, under tongue one -...

My Doctor told me that the electronic thermometer I recently purchased will be u...

Juliette02

•7 years ago

12 Replies

Platelets

I posted recently about my platelets dropping to 127 - anyway after 2 lots of Antibiotics and the cough is finally subsiding, my GP sent me for a Blood test....

I posted recently about my platelets dropping to 127 - anyway after 2 lots of An...

TheFlyer

•7 years ago

5 Replies

Celebrating a special 3 year anniversary

I realized this week that Feb. 12 was the 3rd anniversary of the approval of ibrutinib in the USA that changed the whole treatment landscape in CLL, so I...

I realized this week that Feb. 12 was the 3rd anniversary of the approval of ibr...

bkoffman

CLL CURE Hero•7 years ago

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Just grateful for the excellent care

I am an 83 year old male living in Australia. Some 13 years ago during a routine yearly health check my GP discovered CLL and referred me to a specialist. The...

I am an 83 year old male living in Australia. Some 13 years ago during a routine...

Jupiter10

•7 years ago

6 Replies

Advice please!

After 4 years on w and w , my consultant found 1 auxiliary nymph node was definitely enlarged. She was concerned because CLL usually manifests in similar...

After 4 years on w and w , my consultant found 1 auxiliary nymph node was defini...

Drayton1

•7 years ago

6 Replies

CLL : Stage Zero.

I am 65 male in India. I want to find non chemo options to cure or arrest disease progression. Vinnet

I am 65 male in India. I want to find non chemo options to cure or arrest diseas...

vinnet

•7 years ago

17 Replies

Newly Diagnosed stage IV CLL/SLL 1/18/17

I'm less than a month in with my knowledge of diagnosis so very new to all this cancer language. Extreme fatigue for some time and swollen neck node presented...

I'm less than a month in with my knowledge of diagnosis so very new to all this ...

jenxgen

•7 years ago

13 Replies

Newbie to group

Hi! My bio pretty much says it all. 57 Diagnosed last July, after a routine physical. I'm "watching & waiting"..... blood draw every 3 months. I live in Utah,...

Hi! My bio pretty much says it all. 57 Diagnosed last July, after a routine phys...

LuvUtah

•7 years ago

9 Replies

CLL AND MPN/ET

My question is to the prevalence of a dual diagnosis of CLL and MPN/Essential Thrombocythemia. Currently my WBC is 70K and Platelets are 600K. I have not...

My question is to the prevalence of a dual diagnosis of CLL and MPN/Essential Th...

Kjohnsonmay

•7 years ago

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My introduction

I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr...

I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps...

Anilbhard

•7 years ago

5 Replies

BTK C481S-Mediated Resistance to Ibrutinib in Chronic Lymphocytic Leukemia

It gets kinda technical but this is some great research on ibrutinib resistance by Dr. Woyach. http://ascopubs.org/doi/pdf/10.1200/JCO.2016.70.2282 will give...

It gets kinda technical but this is some great research on ibrutinib resistance ...

bkoffman

CLL CURE Hero•7 years ago

5 Replies

Canada and UK Patients: Speak Up about Your CLL?

Greetings CLL friends - especially those from Canada or UK. We are often asked whether we know patients who would be willing to be interviewed over the phone...

Greetings CLL friends - especially those from Canada or UK. We are often asked w...

andrewschorr

•7 years ago

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Blood count drop

Was diagnosed last July with CLL. Blood count went from 14000 to 19000 this past December. Today had another blood test and it dropped to 15000 Wow Wow! Not...

Was diagnosed last July with CLL. Blood count went from 14000 to 19000 this past...

Teddy405

•7 years ago

6 Replies

I'm new and just been diagnosed age 46

Hi, I've just been diagnosed with CLL/SLL. I am a 46 year old female otherwise fit and well. Last November I had a wisdom tooth removed. 2 weeks later felt...

Hi, I've just been diagnosed with CLL/SLL. I am a 46 year old female otherwise...

PopEine

•7 years ago

19 Replies

Richter Transformation treatments

I was diagnosed with Richter Transformation of CLL last April and was fearing the worst. I had several different chemotherapy types, each with two or three...

I was diagnosed with Richter Transformation of CLL last April and was fearing th...

Christian057

•7 years ago

27 Replies

Don't Miss Live Town Hall with Experts Saturday

Forgive me if you already know about this, but I will host a LIVE town hall meeting from MD Anderson Cancer Center in Houston this coming Saturday 2/18. It's...

Forgive me if you already know about this, but I will host a LIVE town hall meet...

andrewschorr

•7 years ago

2 Replies

How Ibrutinib works over time

Hi, At ASH 2016 in San Diego, CA, I had the honor of once again interviewing Dr. Wiestner from the NIH (National Institute of Health) about the prototype BTK...

Hi, At ASH 2016 in San Diego, CA, I had the honor of once again interviewing Dr....

bkoffman

CLL CURE Hero•7 years ago

12 Replies

Feeling abit desperate

Hi, I am a 58 yr old from UK. I was diagnosed 3 1/2yrs ago and have been W/W since then. Last October my lymph nodes in neck got enlarged and have got...

Hi, I am a 58 yr old from UK. I was diagnosed 3 1/2yrs ago and have been W/W s...

sallyplest

•7 years ago

31 Replies

Travel insurance

Hi all, have a quick question re travel insurance abroad. Our insurance is due for renewal - we are living in the UK and renew annually. Only plans this...

Hi all, have a quick question re travel insurance abroad. Our insurance is due f...

Kathp

•7 years ago

25 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2017

Reporting medical news is too important to mess up

Why sitting is not the ‘new smoking’

2 YEAR REMISSION CLL OVER

New Australian drug regulator proposals should give Aussies a better idea whether complementary medicines do what they say on the packet

Just a cold!

Travel Insurance

Chemo advised for anaemia follow up

Cll and solvents

Live Patient Power CLL event is on.....

low hemaglobin

RECENTLY RESEARCHED ......EGCG

Ear Thermometers

Platelets

Celebrating a special 3 year anniversary

Just grateful for the excellent care

Advice please!

CLL : Stage Zero.

Newly Diagnosed stage IV CLL/SLL 1/18/17

Newbie to group

CLL AND MPN/ET

My introduction

BTK C481S-Mediated Resistance to Ibrutinib in Chronic Lymphocytic Leukemia

Canada and UK Patients: Speak Up about Your CLL?

Blood count drop

I'm new and just been diagnosed age 46

Richter Transformation treatments

Don't Miss Live Town Hall with Experts Saturday

How Ibrutinib works over time

Feeling abit desperate

Travel insurance

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