Posts - CLL Support | HealthUnlocked

CLL Support

22,369 members38,475 posts

All posts for February 2017

Joint Pain

Anyone else having finger joints crack with pain and on ACP 196?
Buckeye64 profile image

treatment when liver counts are off?

Hi, I have been deciding about when to do treatment but now I have had a sudden ...
Jill4 profile image

Ibrutinib / Venetoclax

Hi my fellow CLLr's I need some feed back. I just had my 3 month visit to see ...
BCTexas profile image
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How fake drugs end up in our public health system (and how to spot them)

There have been plenty of previous posts about the poor regulation of supplement...
AussieNeil profile image
Administrator

Restarted Ibnutrib

After high grade fever last week, ie after taking 2x140 MG tab for abt one month...
Anilbhard profile image

High Uric Acid level

Have any of you on Imbruvica experienced a high Uric Acid value? iI drink 1 gall...
PThomas profile image

Validation of a vitamin D replacement strategy in vitamin D-insufficient CLL patients...

Vitamin D insufficiency has been linked to poor prognosis in patients with malig...
Cllcanada profile image
Top Poster CURE Hero

Shouting out to the CLL community in Ireland

Please register your interest ASAP as places are limited!
KateEvaLen profile image

Psilocybin Mushrooms and Anxiety over Cancer

You savvy ones have probably read all about the current research about Psilocybi...
DirkTengg profile image

12th Anniversary at Untreated

Just started my 13th year as "untreated" and am healthier and feel better now th...
DirkTengg profile image

Ibnutrib restarted

I started Ibnutrib 2x140 course on 21st Jan. On 7 th Feb my TLC was 271, and on ...
Anilbhard profile image

CLL and appendectomy

Hi, I have CLL and am currently on watch and wait. I had an appendectomy on Fri...
KHuff profile image

Where?

Please consider adding your country to your profile, or stating it in your posts...

Eye and facial problems - CLL or something else?

Sorry for the long post but I am running out of ideas. I am on W and W. I was di...
danielC profile image

Oxford update

Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh ...
TheFlyer profile image

Uninformed

I read quite a few of y'alls posts. And I have to say I had no idea there was ...
Pixiemoon3 profile image

Good news

Good morning fellow CLLer's. I got good news on my test results for my A1. Went ...
Cham2355 profile image

Drugs don’t cure everything – doctors can be helped to prescribe other options. Meet HANDI

Not CLL related, but for those of us that prefer to avoid drugs, the Handbook of...
AussieNeil profile image
Administrator

Fact or fiction – is sugar addictive?

Despite the common alternative cancer treatment myth that reducing our sugar con...
AussieNeil profile image
Administrator

Bleeding

Though my numbers as recently reported are good I've noticed recently that even ...
RJR1 profile image

After abandoning FLAIR Limbo land

Came off Ibrutinib/Riutximab FLAIR trail almost 8 months ago due to bad side eff...
romarin profile image

Health Check: are naps good for us?

When to nap, how long to nap, one nap or two, what's best for us? 'Insufficient ...
AussieNeil profile image
Administrator

Vitamin D protects against colds and flu, finds major global study

New Scientist reports that according to a study led by Queen Mary University of ...
AussieNeil profile image
Administrator

Good Numbers ...Good News

As I've posted here before I was diagnosed in Dec of 2014. Lymph nodes the size ...
RJR1 profile image

Thanks CLL and Sepsis, I'm now holed up at home and a little afraid to go out and about! Plus, how you can have an infection and not know?

Just wondering how others deal with this situation, after having a really nasty ...
AnjiP profile image

Yippee! Just had confirmed 2 more health related talking points; with which, I can bore the pants off everyone I meet. How lucky is that?

First off, be assured that although I post rarely, I do regularly read and diges...
Bribin profile image

Another good result (I think)

Just received hubbys blood test results. Although HB has stayed the same ....93 ...

Ibrutinib resistance mutations often arise early, suggesting potential as a cue for alternative therapy

Mutations in two genes often occurred months before relapse of chronic lymphocyt...
AussieNeil profile image
Administrator

Ibrutinib and weight gain?

So I've been on ibrutinib for about 16 months and doing very well. However, I've...
cook4650 profile image

Help! Slow down the progression of CLL

I could really use some advice. I went for my routine three month checkup yester...
Jemisavs5 profile image