Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for January 2017

Chronic lymphocytic leukemia

Hi I'm new here and have been researching. This is my story. Late oct. 2016 during a routine mammogram an enlarged lymphnode was seen under my left arm. After...

Hi I'm new here and have been researching. This is my story. Late oct. 2016 dur...

•7 years ago

FCR Cycle 4 (For CLL) - Itchy Rash

Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatment after being on 8-9 years W&W. I am on the FLAIR trial, but got randomly...

Hello all CLL enthusiasts. I have just finished cycle 4 of my 6 cycle FCR treatm...

•7 years ago

Confused?

Wish someone would post a glossary of all the acronyms used on this site. I'm new to the exciting world of CLL. That one I know!

Wish someone would post a glossary of all the acronyms used on this site. I'm ne...

•7 years ago

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Green tea extract? And vitamins?

Hi I'm 44 recently diagnosed with CLL, this is my first time posting. I've heard that Green tea extract is very helpful, however I suffer from insomnia and...

Hi I'm 44 recently diagnosed with CLL, this is my first time posting. I've heard...

•7 years ago

GP'S - UK - WBC

Good Morning Good People ! Question - Does your GP (NHS UK) have specific guidelines / timelines as to when a patient should be 'referred' for further tests...

Good Morning Good People ! Question - Does your GP (NHS UK) have specific guide...

•7 years ago

CLL and B Cell lymphoma

My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A year plus after being diagnosed. I was diagnosed with CLL July 2016 at 58yrs old....

My mom at 87 was diagnosed with B Cell lymphoma and passed March of 2016. A ye...

•7 years ago

I'm new here

I am have continuous pain from my left wrist up to my elbow, to my should & slowly travelling up my neck. I need a professional advice on this so your...

I am have continuous pain from my left wrist up to my elbow, to my should & slow...

•7 years ago

Why acetaminophen (paracetamol) is the 'most common cause of liver injury' in Canada

Health Canada's new labelling rules for acetaminophen are not strict enough, and the extra-strength products should be removed from store shelves, some...

Health Canada's new labelling rules for acetaminophen are not strict enough, and...

Top Poster CURE Hero•7 years ago

Health check: is it safe to microwave your food?

Although generally recognised as safe, the internet is awash with articles about the dangers microwave radiation poses to your food. Some claim using...

Although generally recognised as safe, the internet is awash with articles about...

Administrator•7 years ago

Time for a new QOL survey

This survey needs to be redone...anyone want to take this on? Patient concerns change throughout the course of their disease as well, although patients at...

This survey needs to be redone...anyone want to take this on? Patient concerns c...

Top Poster CURE Hero•7 years ago

How quickly does imbruvica cause side effects? stomach issues, ect?

I will be starting on ibruvica soon. Do side effects begin right away ( like one or two days ) or do they take a few weeks to develop? I am told they...

I will be starting on ibruvica soon. Do side effects begin right away ( like one...

•7 years ago

Treading water after finishing chemo; the anxieties as well as the highs!

Hi everyone! Hope you had a great Christmas and new year! . It was so good to have finished chemo for Christmas and be feeling somewhat "Norma! " I do not...

Hi everyone! Hope you had a great Christmas and new year! . It was so good to ...

•7 years ago

Cycle 8, Day 1 OSU Obin/Ibrutinib/Venetoclax Trial Update

I hope everyone relaxed during the holiday season, and that you are all enjoying getting back to your daily routines. This past Tuesday, I had my 8th and final...

I hope everyone relaxed during the holiday season, and that you are all enjoying...

•7 years ago

Sudden increase

Has anyone got any suggestions as to why my lymphocyte count would suddenly increase to over 10,000 I do not have a fever but feel not quite right

Has anyone got any suggestions as to why my lymphocyte count would suddenly incr...

•7 years ago

3 month into flair trial (ibrutinib & retuxinab)

Hi everyone and happy new year! I thought I should post an update as I am now half way through my infusions of retuxinab on the flair trial programme. I take...

Hi everyone and happy new year! I thought I should post an update as I am now ha...

•7 years ago

More Questions on Obinutuzumab (Gazyva) Treatment

Several months ago I posted a question regarding whether my response to initial obinutuzumab treatments were normal. I received dozens of helpful, thoughtful...

Several months ago I posted a question regarding whether my response to initial ...

•7 years ago

IVIG Infusions

Hi, I am four years post FCR and have been suffering with lingering coughs following winter colds. At the end of last year i developed pneumonia following a...

Hi, I am four years post FCR and have been suffering with lingering coughs follo...

•7 years ago

First Haematology

Pleased to find I am on stageA with CLL so another appointment in 5 months,such a relief to be on watch and wait. Long may it continue as there is so much I...

Pleased to find I am on stageA with CLL so another appointment in 5 months,such ...

•7 years ago

Just diagnosed on Dec. 9th 2016. Wait & watch stage.

Hi Everyone. My name is Drajan and I am sorry to be dragged into your club but here I am. I am a 49 yo from Ottawa, Canada that was just diagnosed with CLL...

Hi Everyone. My name is Drajan and I am sorry to be dragged into your club but ...

•7 years ago

CLL Horizons 2016 videos and presentations

Hi all and happy new year. If you missed the first international conference for CLL Patient Advocates last November, you will be happy to know that the...

Hi all and happy new year. If you missed the first international conference for ...

TreatmentPlanner

•7 years ago

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Left side sleeping trouble?

For awhile now I haven't been able to sleep on my left side at all. My stomach gets all upset and makes these uncomfortable noises. I tried looking up possible...

For awhile now I haven't been able to sleep on my left side at all. My stomach g...

•7 years ago

Radiotherapy went well

Hi all, my radiotherapy for my breast cancer went really well and I am now pretty much recovered from it. Looking forward to 2017 and being able to...

Hi all, my radiotherapy for my breast cancer went really well and I am now prett...

•7 years ago

Am I worrying over nothing

Hi can anyone give advice on my last bloods Hemoglobin 121 WBC 128 Platelets 262 Neuts 6.4 LDH 238 Lymphocytes 119 my hematologist said my count doubling...

Hi can anyone give advice on my last bloods Hemoglobin 121 WBC 128 Platelets 262...

•7 years ago

New year greetings

Happy New Year to all. While some may struggle more than others with health this year at least we can be happy that we live in 2017 when we can reach out to...

Happy New Year to all. While some may struggle more than others with health thi...

•7 years ago

lymph nodes palpations during diagnosis.

when i was at clinic meeting my Doctor - i was surprised at how I FELT what HE COULD FEEL! *ugh - i know...* and two days later - i've got pain *is it ghost...

when i was at clinic meeting my Doctor - i was surprised at how I FELT what HE ...

•7 years ago

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