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CLL Support

22,532 members • 38,709 posts

All posts for January 2017

2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation

Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day...

Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday an...

Howie40

•7 years ago

21 Replies

CLL Patient, unmutated CD 38-, FCR 10/13 - 4/14, MRD-, best blood results since then even t-Cells climbing to normal, IgG 650, IgA, IgM norm

After now three years ending FCR I am still pleased to feel great, no health problems at all. Blood counts in best shape. three times a week gym for 1 1/2...

After now three years ending FCR I am still pleased to feel great, no health pro...

seoul

•7 years ago

5 Replies

How to manage sores and cuts on fingers with Ibrutinib? (Started treatment after seven years with SLL)

I have been taking imbruvica for four months for sll. First diagnosed in 2009. I feel much better and my wbc has gone down from 246,000 to 76,000. Dramatic...

I have been taking imbruvica for four months for sll. First diagnosed in 2009. ...

ellislm

•7 years ago

17 Replies

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In Coutre trial control. Obinituzimab + Chlorambucil

I have had two rounds of infusion plus one dose of Chlorambucil. Have had amazing response (WBC normal after being 350K at start). So I'm not complaining. Day...

I have had two rounds of infusion plus one dose of Chlorambucil. Have had amazin...

Walt424

•7 years ago

8 Replies

DOWNLOAD OR ORDER FREE INFORMATION BOOKLETS FROM LLS

http://www.lls.org/resource-center/download-or-order-free-publications?language=English&category=Treatment&sortby=alpha&el-view=card-view

http://www.lls.org/resource-center/download-or-order-free-publications?language=...

SouthFloridaLady

•7 years ago

6 Replies

Zydelig (idelalisib) first line... NO!

I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct...

I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for...

Cllcanada

Lumps in neck

Hello everyone. I was diagnosed with CLL in 2014. Still stage A watch and wait. Until recently I had no symptoms at all but over the last 6-12 months have...

Hello everyone. I was diagnosed with CLL in 2014. Still stage A watch and wait. ...

Eebie1234

•7 years ago

7 Replies

Good News or Bad News - Travel Insurance in Australia for US trip

Hi all, Hope everyone had a happy christmas. So whats ahead in 2017. Had a visit to my Oncologist yesterday. Good news and bad news. My ALC has declined from...

Hi all, Hope everyone had a happy christmas. So whats ahead in 2017. Had a visit...

Hidden

•7 years ago

18 Replies

PAN Foundation Fund for CLL Reopened Today

Hi, GREAT NEWS! After a 4 week hiatus, we've been informed that the PAN CLL financial assistance fund reopened today, Friday, January 20, 2017. We know it in...

Hi, GREAT NEWS! After a 4 week hiatus, we've been informed that the PAN CLL fin...

bkoffman

CLL CURE Hero•7 years ago

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Pelargonium for cold relief

Is it safe to take Pelargonium for a cold when on W&W? I understand echinacea is not safe to take with Cll blood condition. Thanks for any advice. Mary

Is it safe to take Pelargonium for a cold when on W&W? I understand echinacea i...

FranceMary

•7 years ago

9 Replies

Ibrutinib + whatever helps not having side effects

My mother is about to start treatment with Ibrutinib, I couldn´t convince the hematologist to start directly with Acalmbrutinib because is not aprove by the...

My mother is about to start treatment with Ibrutinib, I couldn´t convince the he...

nicolas_12

•7 years ago

11 Replies

UTI's !!

Does anyone have problems with frequent UTI's? The doctor at Ohio State says that most of us could struggle with sinus infections or whatnot but some can have...

Does anyone have problems with frequent UTI's? The doctor at Ohio State says tha...

momof12

•7 years ago

6 Replies

CLL FLAIR trial

Hi everyone I was diagnosed 3 1/2 years ago and have been W&W since then. My consultant has now told me that I may qualify for the FLAIR trial as my lymph...

Hi everyone I was diagnosed 3 1/2 years ago and have been W&W since then. My co...

sallyplest

•7 years ago

10 Replies

Imbruvica issue?

I have been taking Imbruvica for 7 months. I do not have a rash but I get sores that start off looking like fire ant bites. Anyone else have this? I am still...

I have been taking Imbruvica for 7 months. I do not have a rash but I get sores ...

Huckfin1

•7 years ago

9 Replies

T cell prolymphocytic leukemia

Has anyone on this forum ever been treated with Ibrutinib for T cell prolymphocytic leukemia? If so were the results positive/

Has anyone on this forum ever been treated with Ibrutinib for T cell prolymphocy...

Jince45

•7 years ago

1 Reply

I am new here but have been reading

I have been diagnosed with CLL a extremly rare form I have been told. Nobody to compare to. It s been about 3 years and I have looked ansd read and continue...

I have been diagnosed with CLL a extremly rare form I have been told. Nobody to ...

tigergal

•7 years ago

4 Replies

Bendamustine vs FCR

My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below...

My consultant is discussing treatment options with me. Been in W and W for almos...

Clovelly

•7 years ago

4 Replies

Should over 50’s avoid that afternoon coffee? Maybe.

With fatigue commonly reported as one of the more difficult symptoms of CLL to manage, achieving adequate sleep is a challenge for many of us. While not CLL...

With fatigue commonly reported as one of the more difficult symptoms of CLL to m...

AussieNeil

Administrator•7 years ago

12 Replies

Beta 2 Microglobulin

My newest Hem/Onc just ran a B2M test on me. It was 3.4. The last time this was done was at DX 15 years ago. It was 1.1. Does anyone know that current thinking...

My newest Hem/Onc just ran a B2M test on me. It was 3.4. The last time this was ...

johnl

•7 years ago

4 Replies

New to forum, hoping for advice.

Hi everyone. I am new to the site and have found some really informative posts. My husband who is 76 years old was diagnosed with CLL in 2008 and was on WW...

Hi everyone. I am new to the site and have found some really informative posts. ...

Crafty-girl

•7 years ago

21 Replies

Imbruvica and pain meds

I'm interested in knowing if there are any anti-inflammatory drugs like Celebrex that one can take while on Imbruvica. If not, are there other options? Tylenol...

I'm interested in knowing if there are any anti-inflammatory drugs like Celebrex...

Margobleu

•7 years ago

9 Replies

Fingers crossed

Haven't been on the site for a while , put the whole cll thing in the bottom drawer and tried to forget it , not too hard as I am told by two specialists at...

Haven't been on the site for a while , put the whole cll thing in the bottom dra...

Nigel-Q

•7 years ago

11 Replies

Post-inactivity muscle pain when walking.

Hurray! I'm in remission. I just have 4-weekly immunoglobulin infusions to help support my immune system. I had chemo (FCR) in 2015 and tomorrow my chest...

Hurray! I'm in remission. I just have 4-weekly immunoglobulin infusions to h...

snowdroprose

•7 years ago

10 Replies

Traveling with cll

Hello everyone, I am wondering about traveling on a plane and all it entails what with people All over and maybe carrying what illnesses,who knows. I'm not...

Hello everyone, I am wondering about traveling on a plane and all it entails wha...

Grandmajoanie

•7 years ago

32 Replies

CLL w/ 17p deletion & probiotics

I'm new here, and thought I posted this earlier today but can't find it anywhere so I'll repeat it. Diagnosed SLL March 2015; diagnoses changed to CLL w/ p17...

I'm new here, and thought I posted this earlier today but can't find it anywhere...

amale

•7 years ago

3 Replies

Keeping safe from winter bugs...ways with alternative #1 (more to follow) written by @Bellabee

So @Bellabee has come upbwith the following but at the moment is being a lityle shy and ask that i post!!!!!! We have the answers to all your neutropenic...

So @Bellabee has come upbwith the following but at the moment is being a lityle ...

Bethan49

•7 years ago

11 Replies

Surveillance on PCYC-116-CA (Extension study RESONATE-2) MRD +ve

Happy New Year to all. I haven't been here for quite a while but I have dropped in occasionally to try to keep up. After my third bone marrow biopsy at the...

Happy New Year to all. I haven't been here for quite a while but I have droppe...

Mikey47

•7 years ago

46 Replies

CLL and US Marine Corps

The news on Jan 12 may affect a small percentage of persons on this blog. President Obama signed a law passed by congress authorizing disability payments to...

The news on Jan 12 may affect a small percentage of persons on this blog. Presi...

ohiojim

•7 years ago

1 Reply

Curious

How does being on a chemo pill (in my case hydroxyurea) relate to chemo infusions and radiation ?

How does being on a chemo pill (in my case hydroxyurea) relate to chemo infusion...

kitcat49

•7 years ago

6 Replies

Wisdom tooth extraction

Had a wisdom tooth extracted 2 days ago and would expect some swelling but it's about 2" or 3" always from site. Could extraction (took him forever to get the...

Had a wisdom tooth extracted 2 days ago and would expect some swelling but it's ...

kitcat49

•7 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for January 2017

2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation

CLL Patient, unmutated CD 38-, FCR 10/13 - 4/14, MRD-, best blood results since then even t-Cells climbing to normal, IgG 650, IgA, IgM norm

How to manage sores and cuts on fingers with Ibrutinib? (Started treatment after seven years with SLL)

In Coutre trial control. Obinituzimab + Chlorambucil

DOWNLOAD OR ORDER FREE INFORMATION BOOKLETS FROM LLS

Zydelig (idelalisib) first line... NO!

Lumps in neck

Good News or Bad News - Travel Insurance in Australia for US trip

PAN Foundation Fund for CLL Reopened Today

Pelargonium for cold relief

Ibrutinib + whatever helps not having side effects

UTI's !!

CLL FLAIR trial

Imbruvica issue?

T cell prolymphocytic leukemia

I am new here but have been reading

Bendamustine vs FCR

Should over 50’s avoid that afternoon coffee? Maybe.

Beta 2 Microglobulin

New to forum, hoping for advice.

Imbruvica and pain meds

Fingers crossed

Post-inactivity muscle pain when walking.

Traveling with cll

CLL w/ 17p deletion & probiotics

Keeping safe from winter bugs...ways with alternative #1 (more to follow) written by @Bellabee

Surveillance on PCYC-116-CA (Extension study RESONATE-2) MRD +ve

CLL and US Marine Corps

Curious

Wisdom tooth extraction

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