Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2016

'Making Healthy Choices' App Useful for Docs and Patients

'The Choosing Wisely initiative has partnered with Consumer Reports to create a website as well as videos and downloadable materials for patients and...

'The Choosing Wisely initiative has partnered with Consumer Reports to create a ...

AussieNeil

Administrator•7 years ago

1 Reply

Shingles, 70, M, 11, unmutated, DX Jan of 16, W&W

Have had shingles for 8 days, started on Valacyclovir just yesterday. Until this misery, I have been very active and had no infections for more than 7 years....

Have had shingles for 8 days, started on Valacyclovir just yesterday. Until thi...

Songster

•7 years ago

5 Replies

Fatigue and O2 SAT?

Sorry for what seems a rather complicated and in some ways trivial first main question. I have had a look at some, just some, of the may posts on fatigue. I...

Sorry for what seems a rather complicated and in some ways trivial first main qu...

Leshere

•8 years ago

14 Replies

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My update, as promised

Last week I asked for information on obinotuzumab treatment for my CLL--were my responses normal? I received tremendously valuable information and support from...

Last week I asked for information on obinotuzumab treatment for my CLL--were my ...

Ducksoup

•8 years ago

3 Replies

3 Month Check Up after beginning Ibrutinib

Just wanted to let everyone know that I had my 3 month check-up after beginning Imbruvica. My WBCs were 23600 down from 89000 in the beginning. Less night...

Just wanted to let everyone know that I had my 3 month check-up after beginning ...

PThomas

•8 years ago

4 Replies

Chemo: Yes. Flu Shot: No. How Come?

'My patients will allow complex, devastating, overwhelming, life-changing surgery, radiation, immunotherapy, genetic therapy, and chemotherapy. They may get...

'My patients will allow complex, devastating, overwhelming, life-changing surger...

AussieNeil

Administrator•8 years ago

8 Replies

Calling all CLLrs in Ireland

Hi to all. If you are, or could be, in Dublin, Ireland on Friday 18th November, perhaps you might consider supporting a really good cause - CLLIreland. We are...

Hi to all. If you are, or could be, in Dublin, Ireland on Friday 18th November, ...

KateEvaLen

•8 years ago

18 Replies

Not sure if I am diagnosed or not

I was at the Royal Brompton for a heart procedure yesterday when it was brought to a halt because of abnormal bloods. Referred to Haematologist whom I see...

I was at the Royal Brompton for a heart procedure yesterday when it was brought ...

Leshere

•8 years ago

7 Replies

CLL Society' s abstract on what we want in our disease management published today in the ASH CLL abstracts.

Hi, I am so excited. If you haven’t already, please check out our ASH abstract,. https://ash.confex.com/ash/2016/webprogram/Paper94576.html If you notice the...

Hi, I am so excited. If you haven’t already, please check out our ASH abstract,....

bkoffman

CLL CURE Hero•8 years ago

6 Replies

Fasting may improve cancer treatment (Solid tumours in mice plus early human trials - needs further exploration and validation for CLL)

'The gold standard treatment for cancer in the last few decades has been a combination of surgery – to remove tumours – and chemotherapy and radiotherapy –...

'The gold standard treatment for cancer in the last few decades has been a combi...

AussieNeil

Administrator•8 years ago

2 Replies

"Cellular CCTV" provides a new tool to monitor how leukaemia cells elude drugs

'Scientists have long wondered how some leukemia cells are able to so effectively evade the forces of chemotherapy to pop up again after multiple...

'Scientists have long wondered how some leukemia cells are able to so effectivel...

AussieNeil

Administrator•8 years ago

2 Replies

David Refuses Chemo and Heals Naturally

Hello everyone. All of us with CLL sometimes find it helpless where to turn when being bombarded with theories from everyone. I never heard about a reversal of...

Hello everyone. All of us with CLL sometimes find it helpless where to turn when...

bacimio

•8 years ago

9 Replies

Side effects of Imbruvica?

I started Imbruvica about a month ago. It was all very fine at the beginning. Apart from gaining very much weight..... One week ago I started to have very much...

I started Imbruvica about a month ago. It was all very fine at the beginning. Ap...

vrenmul

•8 years ago

17 Replies

Vitamin D (D3) - UK

Thought I'd share my experience of the last two weeks with everyone. Most specifically this is for UK people, mileage for others may vary. So, following...

Thought I'd share my experience of the last two weeks with everyone. Most speci...

Oleboyredw-uk

•8 years ago

20 Replies

Flu/ pneumonia injections

Hi I was in clinic last Friday and was put back on w&w but was advised to have flu and pneumonia injections which I did yesterday morning. By bedtime I felt a...

Hi I was in clinic last Friday and was put back on w&w but was advised to have f...

Lolleper

•8 years ago

9 Replies

Watch & wait....its a love - hate relationship

It's been a while since I've ranted on, so here goes....I've been watching and waiting since Jan this year, I had the typical diagnoses....I went in for the...

It's been a while since I've ranted on, so here goes....I've been watching and w...

garrick66

•8 years ago

24 Replies

CLL Research Down Under into BTK cardiotoxicity, e.g. development of AF on Ibrutinib - from CLL Global Research Foundation

From the CLL Global Research Foundation - October / November Issue 'Earlier this year CLL Global was approached by a donor interested in making a...

From the CLL Global Research Foundation - October / November Issue 'Earlier this...

AussieNeil

Administrator•8 years ago

1 Reply

Taking a break

I am taking a short break from answering questions on and off line. I'll be back, but I need to get some projects done that have been too long neglected and...

I am taking a short break from answering questions on and off line. I'll be back...

bkoffman

CLL CURE Hero•8 years ago

13 Replies

Zika

If I go on a Caribbean vacation and use caution by staying out of areas with excessive numbers of mosquitos and use "Off" mosquito repellent spray will I be...

If I go on a Caribbean vacation and use caution by staying out of areas with exc...

Catskillady

•8 years ago

6 Replies

CAT SCAN AND BODY SCAN

I saw my doctor last Thursday. All my numbers are not bad. WBC,26.2, RBC 4.34, Lymphocytes 20.3 and percentage is 77.5. Hgb 13.0, hct 39.6, mcv 91.2 MCH...

I saw my doctor last Thursday. All my numbers are not bad. WBC,26.2, RBC 4.34, ...

lka2251

•8 years ago

4 Replies

Chicago LRF Conference News

Hi everyone, Just a quick highlight from the Conference: We are beginning to see a move from single use of the exciting new targeting agents to see if better...

Hi everyone, Just a quick highlight from the Conference: We are beginning to see...

ThreeWs

•8 years ago

5 Replies

Measles Killer: More Common than Believed

A rare and universally fatal complication of measles is more common than clinicians had thought, a researcher said here. The disease is subacute sclerosing...

A rare and universally fatal complication of measles is more common than clinici...

AussieNeil

Administrator•8 years ago

6 Replies

EHA 2016: Dr. George Follows talks about the changing management of CLL

Today in the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. George Follows where he talks about the changing...

Today in the Conference Coverage section of the CLL Society website, we’ve poste...

bkoffman

CLL CURE Hero•8 years ago

Be the first to reply

Question about needing bone marrow biopsy after treatment

I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically...

I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him abo...

brian_in_Seattle

•8 years ago

37 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2016

'Making Healthy Choices' App Useful for Docs and Patients

Shingles, 70, M, 11, unmutated, DX Jan of 16, W&W

Fatigue and O2 SAT?

My update, as promised

3 Month Check Up after beginning Ibrutinib

Chemo: Yes. Flu Shot: No. How Come?

Calling all CLLrs in Ireland

Not sure if I am diagnosed or not

CLL Society' s abstract on what we want in our disease management published today in the ASH CLL abstracts.

Fasting may improve cancer treatment (Solid tumours in mice plus early human trials - needs further exploration and validation for CLL)

"Cellular CCTV" provides a new tool to monitor how leukaemia cells elude drugs

David Refuses Chemo and Heals Naturally

Side effects of Imbruvica?

Vitamin D (D3) - UK

Flu/ pneumonia injections

Watch & wait....its a love - hate relationship

CLL Research Down Under into BTK cardiotoxicity, e.g. development of AF on Ibrutinib - from CLL Global Research Foundation

Taking a break

Zika

CAT SCAN AND BODY SCAN

Chicago LRF Conference News

Measles Killer: More Common than Believed

EHA 2016: Dr. George Follows talks about the changing management of CLL

Question about needing bone marrow biopsy after treatment

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