Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for November 2016

Just had staging scan after cycle 3 of FCR

I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged...

I was a little disappointed to be told yesterday, following a staging scan, that...

Grannajan

•7 years ago

11 Replies

limits on numbers of posts

It seems like after reading a certain number of posts I have to log in to see the rest. Usually I don't bother. Don't see why the limit although admittedly...

It seems like after reading a certain number of posts I have to log in to see th...

dougstalbans

•7 years ago

4 Replies

visit to my primary doctor

Had a small mole frozen off yesterday and my doctor found a large lump under my right arm. It is not sore, but more fatty like. He has me seeing the surgeon...

Had a small mole frozen off yesterday and my doctor found a large lump under my ...

cemax

•7 years ago

6 Replies

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The end is in sight but I'm a blubbering wreck!

Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I...

Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have ...

Bethan49

•7 years ago

24 Replies

FCR and nausea

Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend...

Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horr...

Kenn123

•7 years ago

29 Replies

New Treatments

I just had my three month check up. My doctor informed me of some new and upcoming treatments. I thought I would share: There are several new treatments that...

I just had my three month check up. My doctor informed me of some new and upcom...

Jemisavs5

•7 years ago

24 Replies

CLL My Way program mapping a path to better support for Australians

'“The chronic nature of CLL can be very challenging so personalised support is vital when it comes to staying on track with treatment and taking steps to a...

'“The chronic nature of CLL can be very challenging so personalised support is v...

AussieNeil

Administrator•7 years ago

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Methylation focus on CLL

I have recently returned from Clinical Trial monitoring at OSU and was granted a tour of OSU research labs. This tour was synchronistic as I have been...

I have recently returned from Clinical Trial monitoring at OSU and was granted a...

ThreeWs

•7 years ago

20 Replies

CRISPR gene-editing tested in a person for the first time, treating aggressive lung cancer

'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique. On 28...

'A Chinese group has become the first to inject a person with cells that contain...

AussieNeil

Administrator•7 years ago

1 Reply

Posting bug on Health Unlocked last weekend

Over the weekend, some of us found that we were unable post or edit posts. When trying to post, a red error message appeared ‘Service unavailable’ and if you...

Over the weekend, some of us found that we were unable post or edit posts. When ...

AussieNeil

Administrator•7 years ago

3 Replies

Anxiety About Health Takes Toll on Cardiovascular Health

'People with high levels of health anxiety have about a 70% increased risk of ischemic heart disease (IHD), after taking into account other known risk...

'People with high levels of health anxiety have about a 70% increased risk of is...

AussieNeil

Administrator•7 years ago

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CLL BLOOD WORK

Hi, does the BIG blood test for CLL also detect other cancers....thank you. my dr advised me to put my CLL in the back of my mind.....still watch and wait is...

Hi, does the BIG blood test for CLL also detect other cancers....thank you. my ...

mamajama

•7 years ago

12 Replies

Ritusimab/Fludarabine

It has been recommended by my specialist that I have a six month round of treatment with the above two drugs. One month on the tablets, one month intravenous,...

It has been recommended by my specialist that I have a six month round of treatm...

halfdiamond

•7 years ago

10 Replies

Onychomycosis + Ibrutnib.

After 8mos. on ibrutnib; blood just about normal and no swollen nodes. But my finger tips have swelled/angry red and painful... onychomycosis. Has anyone...

After 8mos. on ibrutnib; blood just about normal and no swollen nodes. But my fi...

suz02

•7 years ago

9 Replies

CLL Lobbying

I met my MP Iain Stewart Con MP for MK South, two weeks ago as part of my support for Lobbying. Good meeting wants to help set up a Westminster Forum to...

I met my MP Iain Stewart Con MP for MK South, two weeks ago as part of my suppor...

UK-Sparky

•7 years ago

8 Replies

Is imbruvica side effect reversible?

Dear community.. My mom is 86 yo and she has leukemia and was prescribed imbruvica. We had a discussion with RN about possible side effects and RN was very...

Dear community.. My mom is 86 yo and she has leukemia and was prescribed imbruv...

mymomida

•7 years ago

12 Replies

Ibrutinib and dialysis

Bonjour a tous I am looking for a patient under ibrutinib and having renal impairment needing dialysis. Regards Herve

Bonjour a tous I am looking for a patient under ibrutinib and having renal i...

hervec

•7 years ago

2 Replies

CLL treatment near Paris?

CLL treatment in France? moving to France from the U.S. Any suggestions for good Oncologists in Paris or Pau? Thanks. Don

CLL treatment in France? moving to France from the U.S. Any suggestions for good...

Dmeyer7183

•7 years ago

3 Replies

London conference

Brilliant conference in London yesterday. Well done to all!

Meic13

•7 years ago

4 Replies

Skin patches instead of needles: can nanotechnology vaccinate the world?

'Mark Kendall and his colleagues have shown they are able to coat nanopatch microprojections with a vaccine, apply the nanopatch to the skin and achieve...

'Mark Kendall and his colleagues have shown they are able to coat nanopatch micr...

AussieNeil

Administrator•7 years ago

6 Replies

WEBINAR- Cancer & Fertility

FREE WEBINAR. Do you know your cancer treatment may impact your fertility? Are you concerned about your ability to have a family after treatment? Join Laura...

FREE WEBINAR. Do you know your cancer treatment may impact your fertility? Are y...

LCAdmin

•7 years ago

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Young Aussie inventor builds a better Band-Aid dispenser

'After being diagnosed with leukaemia 18 months ago, a 10-year-old girl from Australia was inspired to invent a new device for dispensing Band-Aids. Dubbed...

'After being diagnosed with leukaemia 18 months ago, a 10-year-old girl from Aus...

AussieNeil

Administrator•7 years ago

5 Replies

Alternative treatments. ..what's the harm?!

Chris beat his own cancer through nutrition. This is his response to an article from Cancer Research UK. https://youtu.be/FtMPbHHGGzc

Chris beat his own cancer through nutrition. This is his response to an article ...

Apricot77

•7 years ago

19 Replies

Poo transplants and probiotics – does anything work to improve the health of our gut?

'For more than one hundred years, we believed avoiding bugs or removing them from our system was the simplest way to improve our health. But while...

'For more than one hundred years, we believed avoiding bugs or removing them fro...

AussieNeil

Administrator•7 years ago

4 Replies

Sudden lump appeared

I've had CLL for many years, just had my W&W check and everything ok, bloods stable (13q deletion so one of the lucky ones). However, I have had endometrial...

I've had CLL for many years, just had my W&W check and everything ok, bloods sta...

sassy1261

•7 years ago

11 Replies

New to the community!

Greetings! My apologies for not introducing myself prior to responding to posts! I didn't realize that the newcomer information was not integrated with posting...

Greetings! My apologies for not introducing myself prior to responding to posts!...

Fiona2014

•7 years ago

12 Replies

Antibody-dependent enhancement and the challenge for a Zika vaccine

'Antibodies are made to attach to certain proteins on the surface of an invading organism, called antigens. By sticking to these antigens, antibodies block...

'Antibodies are made to attach to certain proteins on the surface of an invading...

AussieNeil

Administrator•7 years ago

2 Replies

ASH Abstract and Off to Serbia

Today in the Conference Coverage section of the CLL Society website http://cllsociety.org , we’ve posted a summary and link to the ASH abstract we wrote based...

Today in the Conference Coverage section of the CLL Society website http://cllso...

bkoffman

CLL CURE Hero•7 years ago

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CLL and Pseudohyperkalimia?

Does anyone know about this? My doctor asked me to retake a blood test because my potassium is elevated. I need to get cleared for my other cancer surgery :(...

Does anyone know about this? My doctor asked me to retake a blood test because m...

NPMK

•7 years ago

9 Replies

5 viruses, 1 metal and 1 solvent tagged as new cancer causers in US agency report

'Five of the new substances added are actually viruses that either cause cancer directly or make it easier for other cancer-causing viruses to do their...

'Five of the new substances added are actually viruses that either cause cancer ...

AussieNeil

Administrator•7 years ago

3 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2016

Just had staging scan after cycle 3 of FCR

limits on numbers of posts

visit to my primary doctor

The end is in sight but I'm a blubbering wreck!

FCR and nausea

New Treatments

CLL My Way program mapping a path to better support for Australians

Methylation focus on CLL

CRISPR gene-editing tested in a person for the first time, treating aggressive lung cancer

Posting bug on Health Unlocked last weekend

Anxiety About Health Takes Toll on Cardiovascular Health

CLL BLOOD WORK

Ritusimab/Fludarabine

Onychomycosis + Ibrutnib.

CLL Lobbying

Is imbruvica side effect reversible?

Ibrutinib and dialysis

CLL treatment near Paris?

London conference

Skin patches instead of needles: can nanotechnology vaccinate the world?

WEBINAR- Cancer & Fertility

Young Aussie inventor builds a better Band-Aid dispenser

Alternative treatments. ..what's the harm?!

Poo transplants and probiotics – does anything work to improve the health of our gut?

Sudden lump appeared

New to the community!

Antibody-dependent enhancement and the challenge for a Zika vaccine

ASH Abstract and Off to Serbia

CLL and Pseudohyperkalimia?

5 viruses, 1 metal and 1 solvent tagged as new cancer causers in US agency report

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