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CLL Support

22,516 members • 38,677 posts

All posts for July 2016

Blood cancers debate in UK Parliament - CLL highlighted

This week the challenges of blood cancer patients accessing appropriate treatments information and care resources was raised in a cross party debate among MPs...

This week the challenges of blood cancer patients accessing appropriate treatmen...

HAIRBEAR_UK

Founder Admin•8 years ago

11 Replies

Progress on ACP-196 Trial

Well, went in June for my better half's 3-month checkup. Everthing OK, bloods etc. Results of bone marrow biopsy really good. CLL down to 6% in the bone...

Well, went in June for my better half's 3-month checkup. Everthing OK, bloods e...

babswade

•8 years ago

3 Replies

New to HealthUnlocked

So nice to have found this community. I'm two years in to diagnosis and have had BR treatment. Right now, I'm doing well except for persistent Neutropenia...

So nice to have found this community. I'm two years in to diagnosis and have ha...

Mikka47

•8 years ago

11 Replies

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Losing sense of smell

I am a 66 year old male who has been in W and W for 5 years now. I have noticed recently that my sense of smell is not what it used to be. Anyone else had this...

I am a 66 year old male who has been in W and W for 5 years now. I have noticed ...

Clovelly

•8 years ago

5 Replies

End of an Era (July 7, 2016)

Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I share the news of the official end of my allogeneic hematopoietic stem cell...

Hi, Today, in another personal blog post on http://bkoffman.blogspot.com , I sha...

bkoffman

CLL CURE Hero•8 years ago

3 Replies

Decision made, approval received. Will be starting Acalabrutinib at NIH

Hi all, Well it has been a roller coaster making a decision for my first treatment. I have decided to go with the ACP 196 trial at NIH and was approved today....

Hi all, Well it has been a roller coaster making a decision for my first treatme...

SandiC

•8 years ago

16 Replies

Treatment for CLL

Has anyone ever been treated with ibrutinib for CLL?

Laurag78

•8 years ago

8 Replies

Tingling and 'experience of limbs 'fizzing'

Does anyone else have experience of 'fizzing' and tingling in face, legs and elsewhere?

Does anyone else have experience of 'fizzing' and tingling in face, legs and el...

perfecteverytime

•8 years ago

8 Replies

So the party is just about to start!

Just to let you all know that after my appointment in Tuesday I begin FCR on Friday....tomorrow!! I was initially elated as previously have gone through...

Just to let you all know that after my appointment in Tuesday I begin FCR on ...

Bethan49

•8 years ago

22 Replies

Does CLL begin neonatal?

Remember ...it is a long way from mouse to man, but an interesting study... ... A common feature of B-cell chronic lymphocytic leukemia (CLL)...

Remember ...it is a long way from mouse to man, but an interesting study... ... ...

Cllcanada

Bladder infections

Saw my heamotologist on June 10. He seemed pleased enough that I won't see him again until September. June 14 came down with a bladder infection. Put on...

Saw my heamotologist on June 10. He seemed pleased enough that I won't see him a...

Clsmith

•8 years ago

12 Replies

In rare cases, a dog’s lick can carry more than just love - the risk of infection from pets

Zoonoses are infectious diseases of animals (usually vertebrates) that can naturally be transmitted to humans. Of the 1,415 pathogens known to infect humans,...

Zoonoses are infectious diseases of animals (usually vertebrates) that can natur...

AussieNeil

Administrator•8 years ago

15 Replies

Inquiry regarding Liver Function Test

Hi all members, I am diagnosed with CLL in February 2016, have been on wait & watch, but following flu I had around end of May 2016 caused me swelled glands of...

Hi all members, I am diagnosed with CLL in February 2016, have been on wait & wa...

ezabella

•8 years ago

4 Replies

Positive moments despite CLL

As of 2013 I know about my CLL, chemo- and antibodytherapie started about one year ago, but didn't work because of P53 deletion. As of 2015/11 I am on...

As of 2013 I know about my CLL, chemo- and antibodytherapie started about one ye...

Germangerd

•8 years ago

2 Replies

Lymph System Pain?

Hi there I was diagnosed about a year ago and have received great support from this site so, thank you! I wonder though if someone can help again? I have...

Hi there I was diagnosed about a year ago and have received great support from ...

Mecarr

•8 years ago

3 Replies

Hi there, I'd like to introduce myself

I am Ezabella, from Australia, a new member to the community of CLL, I was recently diagnosed with CLL went through hard emotional time, I'd like to share...

I am Ezabella, from Australia, a new member to the community of CLL, I was recen...

ezabella

•8 years ago

24 Replies

See a CLL Specialist

http://www.cllsociety.org/newsletter/quarter-2-2016-volume-2-issue-2/see-cll-specialist/ Roslyn~

http://www.cllsociety.org/newsletter/quarter-2-2016-volume-2-issue-2/see-cll-spe...

SouthFloridaLady

•8 years ago

20 Replies

Lipemic Index - Hemolytic

I just did some blood tests (for a series of CTs) and the Lipemic and Hemolytic values were very very low. Did some research and didn't understand a word! Can...

I just did some blood tests (for a series of CTs) and the Lipemic and Hemolytic ...

Safta

•8 years ago

5 Replies

CLL Treatment Approaches

http://www.patientpower.info/video/where-are-we-headed-with-frontline-cll-treatment-approaches

http://www.patientpower.info/video/where-are-we-headed-with-frontline-cll-treatm...

SouthFloridaLady

•8 years ago

3 Replies

The Flyer is in Scotland!

Keswick to Moffatt - Cumbria to Scotland - 78 miles The Flyer tributes today's ride to Tricia. It was another tough day with plenty of hills and cycling along...

Keswick to Moffatt - Cumbria to Scotland - 78 miles The Flyer tributes today's r...

TheFlyer

•8 years ago

14 Replies

Recently diagnosed with CLL

I am a 56 year old Male who was diagnosed with having CLL in May 2016. I am also a diabetic (type 2). I'm seeing another hematologist/oncologist in Aug for a...

I am a 56 year old Male who was diagnosed with having CLL in May 2016. I am also...

Petektv

•8 years ago

15 Replies

IGVH-mutation status may be more easily measured via a chromatin profile

The late Prof Terry Hamblin discovered that CLL IGVH mutation status clearly identified probable time to treatment, with patients IGVH mutated typically having...

The late Prof Terry Hamblin discovered that CLL IGVH mutation status clearly ide...

AussieNeil

Administrator•8 years ago

3 Replies

Dementia isn’t passed on via transfusion, team says

This should be reassuring news, given we are more likely to need transfusions with a CLL diagnosis! 'Results of a large, retrospective study suggest...

This should be reassuring news, given we are more likely to need transfusions wi...

AussieNeil

Administrator•8 years ago

1 Reply

Link between GMO foods and Leukemia

Bottom line of this article "Their conclusion is that it is premature to consider GM toxins to be safe in mammals."...

Bottom line of this article "Their conclusion is that it is premature to conside...

Carrot_Top

•8 years ago

6 Replies

Hacking cough

Anyone with a hacking cough ? Have been on ibrutibin for 4 months and a cough for 21/2 weeks. It's horrible any suggestions. All lab tests have come back...

Anyone with a hacking cough ? Have been on ibrutibin for 4 months and a cough fo...

Juryn4

•8 years ago

18 Replies

Everyone knows cancers need sugar to grow right? Well that's not necessarily true!

'Like other tumors, gliomas have been thought to rely upon glycolysis for energy production, yet recent results from human NMR spectroscopy studies suggest...

'Like other tumors, gliomas have been thought to rely upon glycolysis for energy...

AussieNeil

Administrator•8 years ago

6 Replies

To many allergies!!!!

Allergies sick of them!!!! I don't know if anyone is having problems with their allergies. I am allergic to all dairy, eggs, almond milk , all oils and even...

Allergies sick of them!!!! I don't know if anyone is having problems with their...

helenolton

•8 years ago

24 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2016

Blood cancers debate in UK Parliament - CLL highlighted

Progress on ACP-196 Trial

New to HealthUnlocked

Losing sense of smell

End of an Era (July 7, 2016)

Decision made, approval received. Will be starting Acalabrutinib at NIH

Treatment for CLL

Tingling and 'experience of limbs 'fizzing'

So the party is just about to start!

Does CLL begin neonatal?

Bladder infections

In rare cases, a dog’s lick can carry more than just love - the risk of infection from pets

Inquiry regarding Liver Function Test

Positive moments despite CLL

Lymph System Pain?

Hi there, I'd like to introduce myself

See a CLL Specialist

Lipemic Index - Hemolytic

CLL Treatment Approaches

The Flyer is in Scotland!

Recently diagnosed with CLL

IGVH-mutation status may be more easily measured via a chromatin profile

Dementia isn’t passed on via transfusion, team says

Link between GMO foods and Leukemia

Hacking cough

Everyone knows cancers need sugar to grow right? Well that's not necessarily true!

To many allergies!!!!

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