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CLL Support

22,493 members • 38,640 posts

All posts for April 2016

Advice re hospitals in Liverpool area.

Hi, I would like some advice please. At my last consultation my blood count was Haemoglobin 111 g/l WBC 83, Lymphocytes 76 platelets 97 LDH normal. My spleen...

Hi, I would like some advice please. At my last consultation my blood count wa...

Paidraigin

•8 years ago

4 Replies

Glaucoma and monopost side effects

I have glaucoma and have been using monopost in both eyes for a year or so . I have discolouration of the skin of my eyelid and orb of my eye, which is...

I have glaucoma and have been using monopost in both eyes for a year or so . I h...

Neriah

•8 years ago

12 Replies

My names Riley

My names Riley and I am supporting team Jules on his bike ride for CLLSA are you. https://www.justgiving.com/Julian-Twocock3

My names Riley and I am supporting team Jules on his bike ride for CLLSA are you...

Hidden

•8 years ago

13 Replies

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My success with Imbruvica (ibrutinib

I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to...

I've posted before that for almost all of 2015 I was treated for ITB. My platel...

ohiojim

•8 years ago

1 Reply

Glued-together virus-like particles make for simple and effective vaccines

'Active vaccination against infectious diseases has been one of the most effective medical interventions in human history with a tremendous impact on global...

'Active vaccination against infectious diseases has been one of the most effecti...

AussieNeil

Administrator•8 years ago

Be the first to reply

Dr Sharman's inaugural guest blog on Venclexta / Venetoclax / ABT-199, by Tom Boyd; Essential reading if you are considering this treatment

Considering treatment with Venclexta (or its myriad names) or Ibrurinib (and its myriad names) or ACP196/acalabrutinib (and I'm sure it will soon gain another...

Considering treatment with Venclexta (or its myriad names) or Ibrurinib (and its...

AussieNeil

Administrator•8 years ago

4 Replies

Disease evolution: how new illnesses emerge when we change how we live (primarily zoonotic diseases that can jump from animals to us)

Simon Reid, Associate Professor or Communicable Disease Control, The University of Queensland discusses how 'a small “spillover” outbreak from animals...

Simon Reid, Associate Professor or Communicable Disease Control, The University ...

AussieNeil

Administrator•8 years ago

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Stick or Twist...Not Really.

zentangle

•8 years ago

40 Replies

Our long history of fighting viruses - vaccinations have completely eliminated two and can eliminate more if countries give this priority.

What is a virus? Allen Cheng, Associate Professor in Infectious Diseases Epidemiology, Monash University:...

What is a virus? Allen Cheng, Associate Professor in Infectious Diseases Epidem...

AussieNeil

Administrator•8 years ago

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PROBIOTICS?

I see often that people recommend probiotics, and just wanted to say (for whatever is worth) that every time that I have attempted to take them, I seem to have...

I see often that people recommend probiotics, and just wanted to say (for whatev...

Que-sera-sera

•8 years ago

15 Replies

Health Check: what to eat and drink when you have gastro

Unfortunately, we are at more risk of gastrointestinal infections with CLL, particularly if we are neutropenic. Vincent Ho, Lecturer and clinical academic...

Unfortunately, we are at more risk of gastrointestinal infections with CLL, part...

AussieNeil

Administrator•8 years ago

6 Replies

What Next ?

My husband has an appointment with his Consultant on Thursday...his first since he finished 6 rounds of BR on 17th March. After round 4 he had a CT scan and...

My husband has an appointment with his Consultant on Thursday...his first since ...

alice111

•8 years ago

14 Replies

My ankles are hugely swollen, I have large calluses on my big toes, and my heels split and really hurt.

This is my first post. Prior to this I have been a lurker. I feel embarrassed talking about my cancer with friends and family. People ask me how I am--or how I...

This is my first post. Prior to this I have been a lurker. I feel embarrassed ta...

ptprism

•8 years ago

8 Replies

https://www.justgiving.com/Julian-Twocock3

Hidden

•8 years ago

1 Reply

Jakafi

This is being tested at MD Anderson to be used to alleviate CLL symptoms like fatigue and enlarged nodes. Results in 2018. Me and my football players neck...

This is being tested at MD Anderson to be used to alleviate CLL symptoms like fa...

virdieblue

•8 years ago

3 Replies

Naproxen Sodium to help treat hot flashes and night sweats?

Hi everyone, I broke my arm 2 weeks ago. I started taking Naproxen for pain and noticed my hot flashes and night sweats have almost completely disappeared....

Hi everyone, I broke my arm 2 weeks ago. I started taking Naproxen for pain and...

annmariesr1

•8 years ago

20 Replies

Roundup

Hi, I cannot get a straight answer from anybody regarding this issue, so have come here. I have been an occasional user of Roundup Weedkiller for the past ten...

Hi, I cannot get a straight answer from anybody regarding this issue, so have co...

zentangle

•8 years ago

22 Replies

The Use Of Selective HDAC6

In CLL, malignant B cells evade immune detection and lead to immune suppression. Recently, histone deacetylases (HDACs) have been shown to play an active...

In CLL, malignant B cells evade immune detection and lead to immune suppression....

Cllcanada

weekly transfusions going on 4 months

Hi everyone, I'm new to the community. My husband has CLL, just out of a 4 year remission post-FCR. His hemoglobin dropped in January to 8.5, has gone as low...

Hi everyone, I'm new to the community. My husband has CLL, just out of a 4 year ...

Cathrun

•8 years ago

12 Replies

The placebo and the nocebo effect and the ethics of pacebo use.

'What are placebos? It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a...

'What are placebos? It’s important to distinguish between pure and impure place...

AussieNeil

Administrator•8 years ago

Be the first to reply

Salmonella in your salad - the health cost of convenience?

'Illness from prepackaged salads isn’t uncommon. The current salmonella outbreak in Australia comes at the same time as an outbreak, of another bacteria,...

'Illness from prepackaged salads isn’t uncommon. The current salmonella outbreak...

AussieNeil

Administrator•8 years ago

7 Replies

Clive James and Ibrutinib

Not sure if CJ has actually identified his lifesaver as Ibrutinib as yet, but he did so in article in The New Yorker last week. Long may he rabbit on.

Not sure if CJ has actually identified his lifesaver as Ibrutinib as yet, but he...

romarin

•8 years ago

2 Replies

End of FLAIR trail- question of dosage of Ibrutinib

I have now completed the 6 month combination of Ibrutinib and Rituximab on FLAIR trial. Main problem was severe joint and muscle pain, finally stopped Ib for a...

I have now completed the 6 month combination of Ibrutinib and Rituximab on FLAIR...

romarin

•8 years ago

1 Reply

help with finding old posts and messages

Help. I can never find my old posts or messages. I want to update but where are they? What should I be doing. I tried to query this my writing email to...

Help. I can never find my old posts or messages. I want to update but where are...

romarin

•8 years ago

4 Replies

centre of a storm

so folks, how many of you feel you are like the centre of a storm, you are 'coping' or might even have found some calm, but all those around you are in stress,...

so folks, how many of you feel you are like the centre of a storm, you are 'copi...

Meic13

•8 years ago

10 Replies

Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?

My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off Ibrutinib because his Neutrophils were getting low. Then he had a cold and...

My son lives in Canada. He has CLL stage 4 with 11Q deletion. He was taken off I...

karenmarie

•8 years ago

19 Replies

St John’s Wort, the flower that can treat depression - and can interfere with other drugs INCLUDING Ibrutinib!

"A high-standard systematic review conducted in 2009 concluded St John’s Wort extract was superior to placebo in patients with major depression and...

"A high-standard systematic review conducted in 2009 concluded St John’s Wort ex...

AussieNeil

Administrator•8 years ago

1 Reply

I'm short of a wee bit of sympathy, just a little.

Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for...

Greetings all, 2014 September finished six rounds of FCR good result 2015 in...

Bribin

•8 years ago

16 Replies

Exercise can improve cancer recovery and reduce health-care costs

"Exercise has been shown to dramatically improve the lives of people living with cancer, yet it is being underutilised. This is despite the fact it costs...

"Exercise has been shown to dramatically improve the lives of people living with...

AussieNeil

Administrator•8 years ago

4 Replies

Top 10 list of what we need to know about lymphoma

Friends Dr. Leonard is a great teacher and this week we share his top 10 list of what we need to know about lymphoma on our nonprofit's website:...

Friends Dr. Leonard is a great teacher and this week we share his top 10 list of...

bkoffman

CLL CURE Hero•8 years ago

11 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2016

Advice re hospitals in Liverpool area.

Glaucoma and monopost side effects

My names Riley

My success with Imbruvica (ibrutinib

Glued-together virus-like particles make for simple and effective vaccines

Dr Sharman's inaugural guest blog on Venclexta / Venetoclax / ABT-199, by Tom Boyd; Essential reading if you are considering this treatment

Disease evolution: how new illnesses emerge when we change how we live (primarily zoonotic diseases that can jump from animals to us)

Stick or Twist...Not Really.

Our long history of fighting viruses - vaccinations have completely eliminated two and can eliminate more if countries give this priority.

PROBIOTICS?

Health Check: what to eat and drink when you have gastro

What Next ?

My ankles are hugely swollen, I have large calluses on my big toes, and my heels split and really hurt.

https://www.justgiving.com/Julian-Twocock3

Jakafi

Naproxen Sodium to help treat hot flashes and night sweats?

Roundup

The Use Of Selective HDAC6

weekly transfusions going on 4 months

The placebo and the nocebo effect and the ethics of pacebo use.

Salmonella in your salad - the health cost of convenience?

Clive James and Ibrutinib

End of FLAIR trail- question of dosage of Ibrutinib

help with finding old posts and messages

centre of a storm

Are there possibilities other than stem cell transplant in Canada for CLL with 11Q deletion?

St John’s Wort, the flower that can treat depression - and can interfere with other drugs INCLUDING Ibrutinib!

I'm short of a wee bit of sympathy, just a little.

Exercise can improve cancer recovery and reduce health-care costs

Top 10 list of what we need to know about lymphoma

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