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CLL Support

22,532 members • 38,709 posts

All posts for February 2016

appointment

I have my second heamatology appointment tomorrow in Plymouth. Feeling upset and down today. Hope it goes ok. I know hardly anything about this CLL that I...

I have my second heamatology appointment tomorrow in Plymouth. Feeling upset an...

janloveslife

•8 years ago

15 Replies

Does anyone know of a cll specialist in London?

My husband has been treated here in north London by a team of haematologists/oncologists and last year participated in the Rialto Trial (Ofatumabub...

My husband has been treated here in north London by a team of haematologists/onc...

TrishaG

•8 years ago

13 Replies

BR and persistant cough

Hi, My husband has had 4 rounds of BR chemotherapy and for most of that time he has had a persistent productive cough, despite several courses of antibiotics....

Hi, My husband has had 4 rounds of BR chemotherapy and for most of that time he ...

alice111

•8 years ago

11 Replies

Want to take advantage of all our features? Just log in!

For anybody in despair !

Just thought i would pop in and say hi to everyone. Also thought it might be nice to do a little update in the hope that it might in some strange way help...

Just thought i would pop in and say hi to everyone. Also thought it might be nic...

grizzlebear

•8 years ago

22 Replies

FCR follow up is CT necessary?

Hi, we are coming up on two years since my husband finished a 6 month treatment with fcr. We had been told he had a "complete response with incomplete...

Hi, we are coming up on two years since my husband finished a 6 month treatment ...

dwolden

•8 years ago

3 Replies

ginger

Info on ginger. www.virainovelty.net

goneblonder

•8 years ago

5 Replies

Memory-Enhancing Supplements: What's the Evidence?

While not CLL related, given the impact of CLL related fatigue on our ability to think clearly, along with concerns about age related memory decline, I thought...

While not CLL related, given the impact of CLL related fatigue on our ability to...

AussieNeil

Administrator•8 years ago

1 Reply

Check it out

Please check out " 22 benefits of ginger". There's also some other articles on Japanese scientists just confirmef that Properties in ginger Makes cancer cells...

Please check out " 22 benefits of ginger". There's also some other articles on J...

goneblonder

•8 years ago

4 Replies

My 2nd opinion at Ohio State

So yesterday I went to OSU for my second opinion. Let me tell you, that place is huge! Its funny, there was hand sanitizer EVERYWHERE! I loved it! Anyways, I...

So yesterday I went to OSU for my second opinion. Let me tell you, that place is...

momof12

•8 years ago

9 Replies

Here's how to teach youngsters how to keep themselves and YOU in better health

Many of us are torn between enjoying the company of the younger members of our family and worrying about them sharing more than just their company with us,...

Many of us are torn between enjoying the company of the younger members of our f...

AussieNeil

Administrator•8 years ago

Be the first to reply

CLL and Secondary Cancer

Hello! My brother has had CLL for a long time, years. About a year ago, the 'watch and wait' period was over and he needed to begin treatment. First, was...

Hello! My brother has had CLL for a long time, years. About a year ago, the '...

AbrahamB

•8 years ago

29 Replies

Vaccinations

Does anyone know if I can have typhoid and tetanus vaccinations? I have been diagnosed with CLL but have minimum symptoms and no treatment.

Does anyone know if I can have typhoid and tetanus vaccinations? I have been dia...

Mazzmar

•8 years ago

3 Replies

Hemotologist wants to do a follow up visit.

I have been hiding from this since last October. I walked out when I had an appointment to get my CT scan results. I reluctantly made a appointment for next...

I have been hiding from this since last October. I walked out when I had an app...

CCLandwell

•8 years ago

10 Replies

Richter's Transformation and on the Road Again

Friends, This week in the Beyond the Basics section of the CLL Society website, we have posted an interview from ASH 2015 with Dr. Januario Castro, although...

Friends, This week in the Beyond the Basics section of the CLL Society website, ...

bkoffman

CLL CURE Hero•8 years ago

3 Replies

Does Pharma 'Highjack' FDA Public Comment on Cancer Drugs?

About one-third of "public" speakers at US Food and Drug Administration (FDA) advisory committee meetings on yet-to-be-approved cancer drugs in recent...

About one-third of "public" speakers at US Food and Drug Administration (FDA) a...

Cllcanada

Chicken Pox Virus Reactivation ..

Anyone experienced reactivation Chicken Pox Virus aka Herpes Zoster .. This talk of Zika Virus being associated with Herpes Zooster & Chicken Pox...

Anyone experienced reactivation Chicken Pox Virus aka Herpes Zoster .. This talk...

Hidden

•8 years ago

24 Replies

Flu vaccine for CLL and seniors

I have CLL and have been concerned about the flu. Because CLLers don't respond as strongly as others to the vaccine it was suggested to me to get a second...

I have CLL and have been concerned about the flu. Because CLLers don't respond ...

Ezjacobs

•8 years ago

2 Replies

Persistent sore throat

I have had a sore throat on and off since November 2015 with laryngitis and cough. Have had 2 courses of antibiotics but sore throat has never really gone...

I have had a sore throat on and off since November 2015 with laryngitis and coug...

Marisa

•8 years ago

12 Replies

FDA Expands Approval of Emend, a single-dose intravenous, (injectable) treatment for Nausea/Vomiting

I found the following informative explanation of the different phases of chemotherapy induced nausea and vomiting very helpful (per my emphasis in bold)....

I found the following informative explanation of the different phases of chemoth...

AussieNeil

Administrator•8 years ago

1 Reply

UK Cancer Drugs Fund - PAC's report

Article of interest to UK people. The Public Accounts Committee has produced a report on the CDF. My interpretation is CDF needs to do better for patients....

Article of interest to UK people. The Public Accounts Committee has produced a ...

Oleboyredw-uk

•8 years ago

1 Reply

When will your specialist be replaced by a computer?

"As Australian, British and American universities continue to graduate increasing numbers of medical students, the obvious question is where will these new...

"As Australian, British and American universities continue to graduate increasin...

AussieNeil

Administrator•8 years ago

8 Replies

Hospital unable to do viral studies. Ibrutinib?

I saw my specialist who wanted to make sure there was no underlying viral cause to all of my symptoms before doing any more invasive testing. I waited...

I saw my specialist who wanted to make sure there was no underlying viral cause ...

Jilltap

•8 years ago

Be the first to reply

World Cancer Day

Friends, February 4th is World Cancer Day and there is so much we can do. Visit their website: http://www.worldcancerday.org and learn the many ways that we...

Friends, February 4th is World Cancer Day and there is so much we can do. Visit ...

bkoffman

CLL CURE Hero•8 years ago

4 Replies

Going to OSU for Second Opinion

Hello Thanks so much for everyone on this site! I was just diagnosed with CLL on Dec 18th and I started chemo (BR) on Dec. 21st. I was completely healthy then...

Hello Thanks so much for everyone on this site! I was just diagnosed with CLL on...

momof12

•8 years ago

15 Replies

pain

Hi there, I have a pain in my left side under my ribs and I am worried about it, it hurts after I have eaten. I have my second heamotology appointment next...

Hi there, I have a pain in my left side under my ribs and I am worried about i...

janloveslife

•8 years ago

8 Replies

Dr. Kanti Rai on the Future of CLL Therapy

Friends, This week we have posted an interview with one and only Dr. Kanti Rai when he sat down to chat with me during a break from the International Workshop...

Friends, This week we have posted an interview with one and only Dr. Kanti Rai ...

bkoffman

CLL CURE Hero•8 years ago

8 Replies

Unsure

Hello, I am new on this site. I started on Imbruvica a week ago and was told that the side effects are minimal and was curious if this is true. I am already...

Hello, I am new on this site. I started on Imbruvica a week ago and was told t...

Deborah1363

•8 years ago

12 Replies

Why we don’t have a vaccines for Zika and other mosquito-borne viruses

This article by Suresh Mahalingam, Principal Research Leader, Institute for Glycomics, Griffith University and Michael Rolph, Senior research fellow, Griffith...

This article by Suresh Mahalingam, Principal Research Leader, Institute for Glyc...

AussieNeil

Administrator•8 years ago

3 Replies

CLL Global Alliance January Newsletter

This newsletter contains the following CLL Global Alliance Meeting Highlights, which I'm sure will be welcome news to us all! "On January 15-16, 2016, CLL...

This newsletter contains the following CLL Global Alliance Meeting Highlights, w...

AussieNeil

Administrator•8 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2016

appointment

Does anyone know of a cll specialist in London?

BR and persistant cough

For anybody in despair !

FCR follow up is CT necessary?

ginger

Memory-Enhancing Supplements: What's the Evidence?

Check it out

My 2nd opinion at Ohio State

Here's how to teach youngsters how to keep themselves and YOU in better health

CLL and Secondary Cancer

Vaccinations

Hemotologist wants to do a follow up visit.

Richter's Transformation and on the Road Again

Does Pharma 'Highjack' FDA Public Comment on Cancer Drugs?

Chicken Pox Virus Reactivation ..

Flu vaccine for CLL and seniors

Persistent sore throat

FDA Expands Approval of Emend, a single-dose intravenous, (injectable) treatment for Nausea/Vomiting

UK Cancer Drugs Fund - PAC's report

When will your specialist be replaced by a computer?

Hospital unable to do viral studies. Ibrutinib?

World Cancer Day

Going to OSU for Second Opinion

pain

Dr. Kanti Rai on the Future of CLL Therapy

Unsure

Why we don’t have a vaccines for Zika and other mosquito-borne viruses

CLL Global Alliance January Newsletter

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