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CLL Support

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All posts for November 2015

How Personalised Medicine is used to target variations unique to each cancer tumour

"Cancer is fundamentally a disease of altered genomics – genetic material making up the structure of cells. Because these alterations are different in each...

"Cancer is fundamentally a disease of altered genomics – genetic material making...

AussieNeil

Administrator•8 years ago

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Recentlydiagnosed

Only four weeks ago I went for a routine blood test, and the next day was contacted by my GP ,to inform me my bloods were being sent to oxford for further...

Only four weeks ago I went for a routine blood test, and the next day was contac...

Megellen

•8 years ago

7 Replies

Dry Mouth! Suggestions welcome!

Greeting CLL comrades, I am a 55 yo male who was diagnosed 16 months ago and I am in "watch and wait". Like so many of us I have fatigue, some insomnia,...

Greeting CLL comrades, I am a 55 yo male who was diagnosed 16 months ago and I ...

OzzieNick

•8 years ago

13 Replies

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UCART (Universal Chimeric Antigene Receptor T-cells) - the way forward?

Recent news about the baby ALL sufferer https://www.newscientist.com/article/dn28454-gene-editing-saves-life-of-girl-dying-from-leukaemia-in-world-first/ and...

Recent news about the baby ALL sufferer https://www.newscientist.com/article/dn...

nigeldodd

•8 years ago

1 Reply

Change in Community Home Page format

HealthUnlocked have just changed the format of community home pages to make them more consistent with other pages on the site and to also make the parent...

HealthUnlocked have just changed the format of community home pages to make them...

AussieNeil

Administrator•8 years ago

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The Role of BCL2 Inhibition in CLL

Friends, To understand why BCL-2 is such an attractive target in CLL and with the promise of venetoclax (ABT-199) hopefully coming soon, here is the very easy...

Friends, To understand why BCL-2 is such an attractive target in CLL and with t...

bkoffman

CLL CURE Hero•8 years ago

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Personal Update on my CLL: I am doing well with a near normal MR and no evidence of resistance to Ibrutinib at 42 months

Friends, All good news: routine lab,nodal imaging and testing for mutations that foretell ibrutinib resistance. Details on blog: http://bkoffman.blogspot.com...

Friends, All good news: routine lab,nodal imaging and testing for mutations tha...

bkoffman

CLL CURE Hero•8 years ago

9 Replies

Imbruvica side effects

I've taken Imbruvica (Ibrutinid) for nearly three years and it quickly put my MCL into remission. I quickly had the side effect of diarrhea, causing my dosage...

I've taken Imbruvica (Ibrutinid) for nearly three years and it quickly put my MC...

ralexander

•8 years ago

8 Replies

Dec 12 at City of Hope: Patient Educational Forum and Launch of an Ongoing CLL Society Support Group Meeting in LA and a lot more

Some have asked for a link to the brochure for the City of Hope, LLS and CLL Society meeting that we are all sponsoring just after I and Drs. Siddiqi and Rosen...

Some have asked for a link to the brochure for the City of Hope, LLS and CLL Soc...

bkoffman

CLL CURE Hero•8 years ago

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Big data can improve health but first we need to build the foundations

"There have never been more ways to monitor our personal health and well-being, and share and compare our findings. We can track our activity, diet,...

"There have never been more ways to monitor our personal health and well-being, ...

AussieNeil

Administrator•8 years ago

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CLL

I just had my cbc done. My wbc was 12,400, my absolute lymph is 5.5 & absolute neutrophils 6.0. My understanding is there should be 3 neutrophils for every 1...

I just had my cbc done. My wbc was 12,400, my absolute lymph is 5.5 & absolute n...

cindyrella50

•8 years ago

6 Replies

Mom was recently diagnoses

Hello, I came across this page was frantically searching the web about CLL. My mother was diagnosed a few days ago. She has lived a fairly healthy life and is...

Hello, I came across this page was frantically searching the web about CLL. My ...

Prayingformymom

•8 years ago

20 Replies

Does stress cause your blood results to increase

My husband's blood results 2 weeks ago went from 78 to 112 lyphms. . The white count was 82 up to 114 ... highest results so far in 6.5yrs He has been under...

My husband's blood results 2 weeks ago went from 78 to 112 lyphms. . The white c...

justme3

•8 years ago

13 Replies

Kevin the stem cell scouser shows how easy it is to save a life - help him to get the message out

Feel the force & watch as Kevin the stem cell scouser gives a little of himself to give others life. Kevin explains the odds and shortages involved in matching...

Feel the force & watch as Kevin the stem cell scouser gives a little of himself ...

HAIRBEAR_UK

Founder Admin•8 years ago

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FCR may CURE some of us - Dr Sharman

"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even...

"In today's CLL climate, web informed patients are rebelling against FCR - and i...

AussieNeil

Administrator•8 years ago

5 Replies

Poppies

In Flanders field......

Hidden

•8 years ago

6 Replies

Ibrutinib+Rituximab

Hi All, I am due to entered onto the FLAIR trial (SLL) and if accepted will either have FCR or IR. May I kindly ask our knowledgeable community that once the...

Hi All, I am due to entered onto the FLAIR trial (SLL) and if accepted will eith...

jackhammer

•8 years ago

27 Replies

iFCR Phase II Study Looks Promising

My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously...

My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated ...

ltcbbaker

•8 years ago

2 Replies

ASCO Updates Guidelines on Antiemetics - oral combination of neurokinin, palonosetron and dexamethasone now included

"The American Society of Clinical Oncology (ASCO) has updated their antiemetic guideline to include the use of a novel antiemetic combination for cancer...

"The American Society of Clinical Oncology (ASCO) has updated their antiemetic g...

AussieNeil

Administrator•8 years ago

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A big "Thank you" to everyone who sponsored our son David in “The Great Birmingham Run”.

Last month, David ran the “Great Birmingham Run” dressed as “The Hulk”. He finished in good time, and raised £600 for CLLSA....

Last month, David ran the “Great Birmingham Run” dressed as “The Hulk”. He fin...

PaulaS

Volunteer•8 years ago

10 Replies

Bloodwise news

Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce that NHS England have confirmed that two blood cancer treatments will continue to...

Blood cancer drugs kept on the Cancer Drugs Fund We're delighted to announce tha...

Hidden

•8 years ago

15 Replies

CLL and bronchiectasis

In addition to CLL I have a lung condition bronchiectasis which causes a chronic cough and I produce a lot of mucus. When I saw my lung consultant recently I...

In addition to CLL I have a lung condition bronchiectasis which causes a chronic...

pilch

•8 years ago

8 Replies

Integrating Emerging Evidence Into the Management of CLL Patients; what leading CLL experts recommend in 4 case studies

In this downloadable slideset from a symposium conducted at the NCCN 10th Annual Congress: Hematologic Malignancies™, a group of expert faculty explore the...

In this downloadable slideset from a symposium conducted at the NCCN 10th Annual...

AussieNeil

Administrator•8 years ago

1 Reply

How soon will commercial-scale manufacture of Red Blood Cells be feasible?

Interesting article on recent research into how to boost red blood cell production - possibly via new drugs or through commercial manufacture: Hematology Times...

Interesting article on recent research into how to boost red blood cell producti...

AussieNeil

Administrator•8 years ago

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whats up with me

hello im new to this and i am sorry if im in the wrong place ..ive not be diagnosed all i know is that my blood count is normal alltho all my gp said was there...

hello im new to this and i am sorry if im in the wrong place ..ive not be diagno...

Laxx

•8 years ago

4 Replies

Fish Test Results and Treatment Decisions

Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the...

Hi everyone. I was with my consultant haematologist today and my FISH test resul...

KateEvaLen

•8 years ago

17 Replies

Blood Cancers Alliance response to Cancer Drugs Fund delistings - Letter published in the Times today

CLL Support association is a member of The Blood Cancers Alliance, an informal group of all blood cancer charities; who have written to David Cameron and...

CLL Support association is a member of The Blood Cancers Alliance, an informal g...

HAIRBEAR_UK

Founder Admin•8 years ago

1 Reply

Positive & negative results for CLL treatments following the latest round of reviews by the National Cancer Drugs Fund

Mixed results FOR CLL treatments availble through the CDF as the final verdict following the latest round of the CDF prioritisation review is made...

Mixed results FOR CLL treatments availble through the CDF as the final verdict...

HAIRBEAR_UK

Founder Admin•8 years ago

8 Replies

Starting treatment

Hi group,newbie here ,looking for help and advice for a family member, found out last dec ,starting treatment Tuesday f C R ,all in complete shock and Knw...

Hi group,newbie here ,looking for help and advice for a family member, found out...

Porthcawl

•8 years ago

6 Replies

ABT-199 plus Obinutuzimab

Finally remembered my login! Just a quick note to let you know I started the trial today at Barts (very very lucky to be on it!) - will be blogging...

Finally remembered my login! Just a quick note to let you know I started the tr...

DebinOzinLondon

•8 years ago

27 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2015

How Personalised Medicine is used to target variations unique to each cancer tumour

Recentlydiagnosed

Dry Mouth! Suggestions welcome!

UCART (Universal Chimeric Antigene Receptor T-cells) - the way forward?

Change in Community Home Page format

The Role of BCL2 Inhibition in CLL

Personal Update on my CLL: I am doing well with a near normal MR and no evidence of resistance to Ibrutinib at 42 months

Imbruvica side effects

Dec 12 at City of Hope: Patient Educational Forum and Launch of an Ongoing CLL Society Support Group Meeting in LA and a lot more

Big data can improve health but first we need to build the foundations

CLL

Mom was recently diagnoses

Does stress cause your blood results to increase

Kevin the stem cell scouser shows how easy it is to save a life - help him to get the message out

FCR may CURE some of us - Dr Sharman

Poppies

Ibrutinib+Rituximab

iFCR Phase II Study Looks Promising

ASCO Updates Guidelines on Antiemetics - oral combination of neurokinin, palonosetron and dexamethasone now included

A big "Thank you" to everyone who sponsored our son David in “The Great Birmingham Run”.

Bloodwise news

CLL and bronchiectasis

Integrating Emerging Evidence Into the Management of CLL Patients; what leading CLL experts recommend in 4 case studies

How soon will commercial-scale manufacture of Red Blood Cells be feasible?

whats up with me

Fish Test Results and Treatment Decisions

Blood Cancers Alliance response to Cancer Drugs Fund delistings - Letter published in the Times today

Positive & negative results for CLL treatments following the latest round of reviews by the National Cancer Drugs Fund

Starting treatment

ABT-199 plus Obinutuzimab

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