Posts - CLL Support | HealthUnlocked

I am just back from OSU and my visit with Dr. Byrd. Labs were good for the most part. My blog has more details: http://bkoffman.blogspot.com We leave for...

Good news

I am just back from OSU and my visit with Dr. Byrd. Labs were good for the most ...

bkoffman

CLL CURE Hero•8 years ago

The exercise clinic is actually co-located with the chemotherapy or radiation therapy wards at Edith Cowan University in Perth, Australia, because it makes...

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Exercise is the best medicine after surgery or cancer treatment. Introducing a new field of study "Exercise Oncology Research".

The exercise clinic is actually co-located with the chemotherapy or radiation th...

Administrator•8 years ago

'Long-term follow-up of single-agent ibrutinib at the approved dose of 420 mg daily confirms that the Bruton’s tyrosine kinase inhibitor produces rapid and...

Ibrutinib produces rapid and endurable responses. PFS and DOR not reached at up to 44 months -Steven Coutre's Lymphoma & Myeloma 2015 update

'Long-term follow-up of single-agent ibrutinib at the approved dose of 420 mg da...

Not specific to CLL, but to NHL and HL lymphomas, specifically DLBCL: "Dr Ansell suggested there are 3 main approaches to treating patients. One is going...

Administrator•8 years ago

8 Replies

Reprogramming the immune system - the potential for a combined approach with checkpoint inhibitors and immune signal activators

Not specific to CLL, but to NHL and HL lymphomas, specifically DLBCL: "Dr Ansell...

Administrator•8 years ago

"Despite enormous advances in therapies for chronic lymphocytic leukemia (CLL) that target the B-cell receptor (BCR) signaling pathway, there is still room...

The search continues for additional targets in CLL - an introduction to Axl receptor tyrosine kinase and its inhibitor TP-0903

"Despite enormous advances in therapies for chronic lymphocytic leukemia (CLL) t...

Administrator•8 years ago

Hi all...My mum is on ibruvica and it has helped her enlarged glands and spleen but she struggles with the side effects...initually it was dizzyness and...

Ibrutinib / imbruvica skin cancer

Hi all...My mum is on ibruvica and it has helped her enlarged glands and spleen ...

swineherd

•8 years ago

Dr.Richard Furman and Dr. Jennifer Brown MD PHd explain adverse effects of Imbruvica and treatment in this video....

Imbruvica adverse effects.

Dr.Richard Furman and Dr. Jennifer Brown MD PHd explain adverse effects of Imbru...

MsCLL

CLL CURE Hero•8 years ago

14 Replies

Immune function in CLL

Friends, This week on http://cllsociety.org we share Dr. John Gribben's talk about Immune Strategies in CLL which was taped during the Patient Empowerment and...

Friends, This week on http://cllsociety.org we share Dr. John Gribben's talk ab...

bkoffman

CLL CURE Hero•8 years ago

5 Replies

Venetoclax (ABT-199) response rate on del 17p CLL patients (ASH 2015)

"Patients with CLL harboring 17p deletion [del(17p)] are considered to have very poor prognosis. Venetoclax is an orally bioavailable, selective BCL-2...

"Patients with CLL harboring 17p deletion [del(17p)] are considered to have very...

Administrator•8 years ago

In May 2015 I had this result: - Immunophenotypic evidence of persistent chronic lymphocytic leukemia / small lymphocytic lymphoma (CLL/SLL, ~49.7% of total),...

flow cytometry

In May 2015 I had this result: - Immunophenotypic evidence of persistent chronic...

bonbeat

•8 years ago

Hi all , I am diagoinsed with cell last July and my G P order blood test this week and Has digonised me with macrocytosis Can you please help me what...

Mr

Hi all , I am diagoinsed with cell last July and my G P order blood test this ...

Dogali

•8 years ago

At first decided to stick with tap water on the basis that I was lucky to have clean water at all. But looking into it it does seem that the cryptosporidium...

crypto free bottled water?

At first decided to stick with tap water on the basis that I was lucky to have c...

romarin

•8 years ago

hi, I saved an article about the psychological effects of chronic progressive cancers such as CLL. It was posted sometime ago and I just decided to read it...

Seeking article

hi, I saved an article about the psychological effects of chronic progressive ca...

Seven6

•8 years ago

16 Replies

Overhead rail lines 25000 volts and cll

Anyone else live or work near overhead rail lines and have cll ?

Jsk1950

•8 years ago

At my appointment with the haematologist last week, my blood test results showed a reading for prollymp for the first time. I was wondering if this is common?...

Prolymphocytes - Common or not?

At my appointment with the haematologist last week, my blood test results showed...

Rex12

•8 years ago

8 Replies

Advise needed, please.

Hello to all, Last month, I ended up in the hospital for 2.5 days due to an undetected UTI infection that turned into sepsis. Since then, I have not been able...

Hello to all, Last month, I ended up in the hospital for 2.5 days due to an und...

teb0513

•8 years ago

Hi all Your friendly fundraising Cll patient here just updating you all. Just hit 12k and still going strong. Might of hit a slight snag as the guy who was...

Just hit 12k

Hi all Your friendly fundraising Cll patient here just updating you all. Just h...

Hidden

•8 years ago

I am not my body. That's all. I woke up in terrible pain and started chanting this to myself. It worked better than the pain Meds And I fell back asleep....

I am not my body!

I am not my body. That's all. I woke up in terrible pain and started chanting t...

Jilltap

•8 years ago

I just had a bone marrow biopsy. I will get the results in 3 weeks. What information will this provide and what am I hoping to hear?

What results am I looking for from my bone marrow biopsy?

I just had a bone marrow biopsy. I will get the results in 3 weeks. What inform...

bonbeat

•8 years ago

Hi everyone. Just wanted to update you. Following getting my second opinion with a CLL specialist this week, its now certain that I'm heading for FCR. My...

FCR Bound

Hi everyone. Just wanted to update you. Following getting my second opinion with...

KateEvaLen

•8 years ago

68 Replies

Worried

My neighbour has just had a new hot tub in her garden...she asked me in there today....and thinking it would relax me i went in...we talked and talked and i...

My neighbour has just had a new hot tub in her garden...she asked me in there to...

welshlady52

•8 years ago

13 Replies

You’ve been asked to have your say on NHS England. You just don’t know about it.

Members in England have 3 days (until 23rd November) remaining in which to provide your views on the proposed NHS mandate:...

Members in England have 3 days (until 23rd November) remaining in which to provi...

Hi i was diagnosed after having a mammogram in March 2014 never really ever thought i was ill started my own business after me and my husband split up about...

Administrator•8 years ago

1 Reply

IS THE REST OFF MY LIFE LIVING WITH NO ENERGY

Hi i was diagnosed after having a mammogram in March 2014 never really ever tho...

amanda1965

•8 years ago

9 Replies

Chairman's letter to members - The outcome and next steps - CLLSA Campaign on delisting of CLL drugs from the Cancer Drugs Fund

Thank you to all our members who supported the CLLSA Campaign to appeal against the delisting of Ibrutinib and Bendamustine for the treatment of...

Thank you to all our members who supported the CLLSA Campaign to appeal against ...

HAIRBEAR_UK

Founder Admin•8 years ago

Couldn't sleep last night so I had a lot running through my head. I was diagnosed on March 24 2014 with CLL. I am now WW stage 0. I am wondering how long I had...

Just wondering.

Couldn't sleep last night so I had a lot running through my head. I was diagnose...

meemsdream

•8 years ago

27 Replies

Stage 1

Hello, I posted last week about my mom being diagnosed with CLL. After a CT scan it was found she does have some swollen lymph nodes but nothing affecting her...

Hello, I posted last week about my mom being diagnosed with CLL. After a CT sca...

Prayingformymom

•8 years ago

Friends, Today on the http://cllsociety.org, we share Dr. Januario Castro's lecture from the Patient Empowerment and Education Meeting held at UCSD in April...

Dr. Castro on High Risk CLL and Richter's Transformation

Friends, Today on the http://cllsociety.org, we share Dr. Januario Castro's lec...

bkoffman

CLL CURE Hero•8 years ago