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CLL Support

22,532 members • 38,709 posts

All posts for September 2015

Cancer drug promises to break down barrier to HIV cure (T-cells and antiretroviral treatments)

There are offshoots from HIV research that can help CLL research. HIV is so difficult to cure because "While antiretroviral treatment successfully...

There are offshoots from HIV research that can help CLL research. HIV is so dif...

AussieNeil

Administrator•9 years ago

1 Reply

NHS

Hi All Was Hospital visiting today, my partners niece and uncle. The thing that struct me was how marvellous these people are who work in our Hospitals quite...

Hi All Was Hospital visiting today, my partners niece and uncle. The thing that ...

Hidden

•9 years ago

2 Replies

Suggestions needed!

Hello all. It has been a while since I've posted, but I have a question and need some guidance. For the last 3 weeks, I have been struggling with...

Hello all. It has been a while since I've posted, but I have a question and need...

teb0513

•9 years ago

15 Replies

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Bad knees, Baker's Cysts, and Good Times with CLL plus our newsletter, LRF Meeting in Brooklyn and Patient meeting in Seattle

Hi friends I banged up my already end stage osteoarthritic left knee and am paying the price. Sore and hobbled. Please take a look at my blog...

Hi friends I banged up my already end stage osteoarthritic left knee and am pay...

bkoffman

CLL CURE Hero•9 years ago

4 Replies

Sports fan

I know a different subject for this site but what a start England winning yesterday and unbelievably Japan beating South Africa today i just love Rugby, makes...

I know a different subject for this site but what a start England winning yester...

Hidden

•9 years ago

22 Replies

Why we need to share [u][i]All Data[/i][/u] from clinical trials

"In 2001, a “landmark” study published in the prestigious Journal of the American Academy of Child and Adolescent Psychiatry purported to show the safety...

"In 2001, a “landmark” study published in the prestigious Journal of the America...

AussieNeil

Administrator•9 years ago

5 Replies

LLR response to the proposed cuts sorry Bloodwise

Hi Nick finally got hold of the right person this is there response. Ive been busy drumming up support for Anna Schuh's petition Dear Julian I understand...

Hi Nick finally got hold of the right person this is there response. Ive been bu...

Hidden

•9 years ago

13 Replies

FDA updates warning about Bendamustine (Trenda)

The FDA issued a statement, warning healthcare professionals not to use the chemotherapy drug Treanda Injection (bendamustine hydrochloride) with closed system...

The FDA issued a statement, warning healthcare professionals not to use the chem...

ThreeWs

•9 years ago

2 Replies

Forum in NZealand

120 turned up for a CLL forum on Saturday 12 Sept 2015.Some very interesting speakers and one was very good in explaning how clinical trials that happen. There...

120 turned up for a CLL forum on Saturday 12 Sept 2015.Some very interesting spe...

chrisbee

•9 years ago

9 Replies

Access to Clinical Trials in UK

My husband was diagnosed with CLL in 2011 , at the same time a tumour was discovered in his lung. He had surgery for the lung cancer and did not need any...

My husband was diagnosed with CLL in 2011 , at the same time a tumour was discov...

alice111

•9 years ago

1 Reply

Can ITP be diagnosed for certain without a bone marrow biopsy?

I'm 19 years old and have been diagnosed with ITP. I have had all the blood tests for Hep C, lupus everything else included and they have all came back...

I'm 19 years old and have been diagnosed with ITP. I have had all the blood test...

PaigeEl

•9 years ago

2 Replies

bone marrow biopsy results?

Hello my son is 14. He has had sustained bicytopenia affecting his neutrphils and platelets. Plus a white, pitted tongue that had occasional sores on it (since...

Hello my son is 14. He has had sustained bicytopenia affecting his neutrphils an...

jackie8012

•9 years ago

3 Replies

What to do now ?

Yesterday my doctor phoned to see how I was doing on my treatment . I asked her about having both the pneumonia vaccinations and she said that she would only...

Yesterday my doctor phoned to see how I was doing on my treatment . I asked her ...

PE1234

•9 years ago

14 Replies

Worried wife

HI, my husband was diagnosed in July as having CLL. We were initially told it was a low grade cancer following a biopsy of a lump in his neck, and referred to...

HI, my husband was diagnosed in July as having CLL. We were initially told it wa...

Jenferdog

•9 years ago

19 Replies

MRD negative

After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy...

After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days o...

Fowey2009

•9 years ago

29 Replies

InPractice CLL reference update - Idelalisib+Ofatumumab for relapsed/refractory patients. (Another CLL reference worth bookmarking)

The comprehensive InPractice reference for diagnosing, monitoring and treating CLL is regularly updated, with the latest update incorporating the addition of...

The comprehensive InPractice reference for diagnosing, monitoring and treating C...

AussieNeil

Administrator•9 years ago

1 Reply

Shoulder pain

Every time it starts to turn colder at night I keep waking up with pain in my shoulders, when I get up in a morning and start to use them it goes away. This...

Every time it starts to turn colder at night I keep waking up with pain in my sh...

Poppymillie

•9 years ago

7 Replies

Expert report from the wCLL in Sydney

Greetings: Dr. Phillip Thompson, CLL specialist, from MD Anderson in Houston, served as our correspondent from the iwCLL meeting in Sydney last week. Here’s...

Greetings: Dr. Phillip Thompson, CLL specialist, from MD Anderson in Houston, se...

andrewschorr

•9 years ago

6 Replies

ACP-196

Hi, Well my husband is now into cycle 6 of the trial and all is still going well. There is one thing I would like to ask others on this trial, are you...

Hi, Well my husband is now into cycle 6 of the trial and all is still going well...

babswade

•9 years ago

3 Replies

Walking back to Happiness

"The US Surgeon General last week issued another call to action to get his nation walking. Faced with the fact that 50% of the US adult population (a...

"The US Surgeon General last week issued another call to action to get his natio...

AussieNeil

Administrator•9 years ago

18 Replies

Alcohol and the Immune System

The influence of binge and moderate alcohol drinking, along with the differences observed between beer, wine (specifically red wine) and spirits on the immune...

The influence of binge and moderate alcohol drinking, along with the differences...

AussieNeil

Administrator•9 years ago

6 Replies

Lymph nodes

Is there a certain area on your body that Lymph nodes start to enlarge when you have CLL? Do they all enlarge or only some? Can they all be felt and if not how...

Is there a certain area on your body that Lymph nodes start to enlarge when you ...

meemsdream

•9 years ago

8 Replies

Platelets

My platelets are up to 944(norm is 140 to400)...Dr is getting concerned as I am getting 'ocular migraines'. I also notice more frequent fluttery heartbeat that...

My platelets are up to 944(norm is 140 to400)...Dr is getting concerned as I am ...

kitcat49

•9 years ago

9 Replies

Happy New Year to all our Jewish friends

To all my fellow Jewish CLLers who are celebrating their new year this evening, hoping this year will be a comfortable one, with fewer worries and more...

To all my fellow Jewish CLLers who are celebrating their new year this evening, ...

Safta

•9 years ago

7 Replies

Choosing one's therapy wisely

Chris just posted on how an OSU Medical Center Doc. manages CLL/SLL in which advice is given to avoid Zydelig/Idelalisib for patients with IBS or Irritable...

Chris just posted on how an OSU Medical Center Doc. manages CLL/SLL in which adv...

ThreeWs

•9 years ago

25 Replies

Leukaemia Care - Signs and Symptons of CLL

Hullo All A UK charity that I am involved with has launched a video campaign to raise awareness of the symptons of CLL....

Hullo All A UK charity that I am involved with has launched a video campaign to...

mikedicks

•9 years ago

1 Reply

ITP or Leukemia? (CLL)

I'm a 19 year old female and I was sent straight to hospital for the bruised rash all over my legs, they took blood and discovered that my platelets were at...

I'm a 19 year old female and I was sent straight to hospital for the bruised ras...

PaigeEl

•9 years ago

3 Replies

Understanding Lab Tests

https://labtestsonline.org/global/sites/

SouthFloridaLady

•9 years ago

1 Reply

Medicare Question

Can someone out there that has been through the medicare experience in the U. S. with CLL tell me about what Medicare will and will not pay for? Can I go to a...

Can someone out there that has been through the medicare experience in the U. S....

kathypawpaw

•9 years ago

18 Replies

Does anyone know what is the absolutely most successful drug in knocking CLL out?

I've been reading post after post on the various drug treatments used for CLL that it is hard to know what treatment I should aim for when the time comes. I...

I've been reading post after post on the various drug treatments used for CLL th...

kathypawpaw

•9 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2015

Cancer drug promises to break down barrier to HIV cure (T-cells and antiretroviral treatments)

NHS

Suggestions needed!

Bad knees, Baker's Cysts, and Good Times with CLL plus our newsletter, LRF Meeting in Brooklyn and Patient meeting in Seattle

Sports fan

Why we need to share [u][i]All Data[/i][/u] from clinical trials

LLR response to the proposed cuts sorry Bloodwise

FDA updates warning about Bendamustine (Trenda)

Forum in NZealand

Access to Clinical Trials in UK

Can ITP be diagnosed for certain without a bone marrow biopsy?

bone marrow biopsy results?

What to do now ?

Worried wife

MRD negative

InPractice CLL reference update - Idelalisib+Ofatumumab for relapsed/refractory patients. (Another CLL reference worth bookmarking)

Shoulder pain

Expert report from the wCLL in Sydney

ACP-196

Walking back to Happiness

Alcohol and the Immune System

Lymph nodes

Platelets

Happy New Year to all our Jewish friends

Choosing one's therapy wisely

Leukaemia Care - Signs and Symptons of CLL

ITP or Leukemia? (CLL)

Understanding Lab Tests

Medicare Question

Does anyone know what is the absolutely most successful drug in knocking CLL out?

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