Posts - CLL Support | HealthUnlocked

Administrator•9 years ago

Diagnosed with CLL in Aug 2013. Numbers are good and no treatment started yet. I have fatigue every day to the point that I don't want to do anything....

CLL and Fatigue

Diagnosed with CLL in Aug 2013. Numbers are good and no treatment started yet. ...

Twining

•9 years ago

19 Replies

My Results...

Hi All, Further to my previous post, I have seen my hematologist this afternoon and my results he advises are good and I have the 'BCLL,' type? Q: Is that...

Hi All, Further to my previous post, I have seen my hematologist this afternoon...

Unknown-Unwanted

•9 years ago

11 Replies

Want to take advantage of all our features? Just log in!

Part 2 of our series of polls on how well do you know HealthUnlocked's features has just been published.

Here are the questions - and no cheating before you answer the poll! 1) I have familiarised myself with HealthUnlocked's Privacy Statement 2) I know how to...

Here are the questions - and no cheating before you answer the poll! 1) I have ...

After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's WBC is rising, and he's likely to need CLL treatment again (he had 2 rounds of...

Administrator•9 years ago

4 Replies

Husband returning to treatment

After 10 months of well-managed anemia (PRCA), using cyclosporine, my husband's ...

LAinNYC

•9 years ago

5 Replies

Why we need to register and report the results of all clinical trials

schwit1 writes in Slashdot: "The requirement that medical researchers register in detail the methods they intend to use in their clinical trials, both to...

schwit1 writes in Slashdot: "The requirement that medical researchers register i...

Administrator•9 years ago

"For decades, clinicians and researchers have been concerned about patients getting treatments, including operations, that don’t work. As well as failing to...

How can we Identify Do-Not-Do Treatments?

"For decades, clinicians and researchers have been concerned about patients gett...

Administrator•9 years ago

Dear friends, I just spent a great week in Ireland and, during my stay, met some great fellow patients - not just in CLL, but including that. I think you'll...

Irish Connections and new CLL Friends

Dear friends, I just spent a great week in Ireland and, during my stay, met some...

andrewschorr

•9 years ago

With our compromised immune systems, it's only natural to be more concerned about catching the flu. We quickly discover to our concern that predicting which...

Why predicting a flu outbreak is like betting on football or flipping a coin. (Same could be said for predicting your CLL prognosis.)

With our compromised immune systems, it's only natural to be more concerned abou...

Administrator•9 years ago

Hi. I have been recently diagnosed with chronic Lymphatic Leukemia. I have some lumps around my neck lymph nodes and have had 3 blood tests. I am on watch and...

Wait & Worry

Hi. I have been recently diagnosed with chronic Lymphatic Leukemia. I have some ...

Trevoruren

•9 years ago

43 Replies

What To Ask? And Why? And What Does It All Mean?

Hi Everyone, Following my diagnosis 17th June 2015, I have an appointment to see my hematologist on Wed 19th Aug 2015. This will be my first appointment...

Hi Everyone, Following my diagnosis 17th June 2015, I have an appointment to s...

Unknown-Unwanted

•9 years ago

13 Replies

Update

Hi all, just a quick update on me - I've moved to London from Melbourne to enter a phase 1 clinical trial of ABT-199 plus Obinutuzimab (Gazyva) at Barts...

Hi all, just a quick update on me - I've moved to London from Melbourne to ente...

DebinOzinLondon

•9 years ago

31 Replies

cdiff # 6

I'm an enduring my 6th Cdiff infection in 12 months. I have been admitted to hospital 7 times totalling 17 weeks. I am starting a stool transplant trial but...

I'm an enduring my 6th Cdiff infection in 12 months. I have been admitted to ho...

FibroGoddess

•9 years ago

8 Replies

Explainer: what is the immune system and how does CLL affect it?

We've probably heard that CLL is a 'cancer of the immune system', but what is the immune system? For an easy to read overview of our Innate and...

We've probably heard that CLL is a 'cancer of the immune system', but what is th...

Hi there - Had a very small splinter in my thumb and regrettably, decided to leave it alone. The area around the splinter began to swell until the whole tip...

Administrator•9 years ago

7 Replies

Infected thumb

Hi there - Had a very small splinter in my thumb and regrettably, decided to l...

springie

•9 years ago

11 Replies

Dentist

I am having a tooth refilled this week. Do any of you take antibiotics before you go to the dentist ? I had my teeth cleaned a few months ago and did not take...

I am having a tooth refilled this week. Do any of you take antibiotics before yo...

meemsdream

•9 years ago

18 Replies

What is happening

I have a friend who has been on a trial and was on the ibrutnib He has had a partial response and it is keeping his blood levels under control he is well and...

I have a friend who has been on a trial and was on the ibrutnib He has had a p...

Hidden

•9 years ago

5 Replies

The CLL Treatment Revolution - Jeff Sharman

This short article on the CLL treatment revolution for relapsed CLL by Dr Jeff Sharman for Clinical Care Options Oncology - Clinical Thoughts, may be of...

This short article on the CLL treatment revolution for relapsed CLL by Dr Jeff S...

Biologics are medicines made from living organisms and their products to produce therapeutic proteins and polypeptides. They are better for treating cancer...

Administrator•9 years ago

5 Replies

Explainer: what are biologics and biosimilars?

Biologics are medicines made from living organisms and their products to produce...

Friends, This week the CLL Society Inc. finally learned why they need so much blood of ours every time we are seen at a research center. We learned what a...

Administrator•9 years ago

3 Replies

Why they draw 10 tubes of our bloods and comments on chemo from patients

Friends, This week the CLL Society Inc. finally learned why they need so much ...

bkoffman

CLL CURE Hero•9 years ago

Following a blood test head scan my results come back abnormal .. I feel the doctors are holding out. Anyway that's letter I received ... Where they talk...

Anyone know What Causes A Low Igm And Vitamin D .. I have also suffer developed IBS stomach pain

Following a blood test head scan my results come back abnormal .. I feel the doc...

Hidden

•9 years ago

13 Replies

Common chemicals [u]may[/u] increase cancer [u]risk[/u]

Common environmental chemicals assumed to be safe at low doses may act separately or together to induce cancer development, according to research...

Common environmental chemicals assumed to be safe at low doses may act separatel...

Hospitals are NOT good places to be if you have CLL, due to our compromised immune systems, though sometimes we have no choice. Here's another good reason to...

Administrator•9 years ago

4 Replies

Healthcare professionals work while sick despite risk to patients

Hospitals are NOT good places to be if you have CLL, due to our compromised immu...

Results of a new study have indicated that the risk of developing melanoma may be almost doubled among survivors of chronic lymphocytic leukemia (CLL)/small...

Administrator•9 years ago

11 Replies

Melanoma Risk Increased in CLL/SLL Patients

Results of a new study have indicated that the risk of developing melanoma may b...

Administrator•9 years ago

I have just completed my fifth year in remission following four rounds of FCR (2009/10). My latest clinic appointment yesterday showed no significant enlarged...

Low Platelets

I have just completed my fifth year in remission following four rounds of FCR (2...

Sharastani

•9 years ago

I am having a real run of cold sores. Is there anyone else out there having the same problem? How serious are cold sores? What should I be doing to help...

COLD SORES.

I am having a real run of cold sores. Is there anyone else out there having th...

nuttynannie1947

•9 years ago

10 Replies

Hospital patients are more likely to die at weekends but seven-day rosters are no panacea

"If you are admitted to a hospital on the weekend, you have a higher chance of dying than if you are admitted during the week. This is known as the “weekend...

"If you are admitted to a hospital on the weekend, you have a higher chance of d...

Administrator•9 years ago

Windows 10 has been offered as a free upgrade to many Windows 7 and 8/8.1 users via a 3.5GByte download. This, plus the lacklustre adoption of Windows 8/8.1...

Windows 10 is not really free: you are paying for it with your privacy

Windows 10 has been offered as a free upgrade to many Windows 7 and 8/8.1 users ...