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CLL Support

22,532 members • 38,709 posts

All posts for July 2015

A Fabulous Blog from a Doctor who has CLL

You will want to read this very informative blog about FISH testing for CLL from a doctor who HAS CLL....

You will want to read this very informative blog about FISH testing for CLL from...

andrewschorr

•9 years ago

9 Replies

A CLL conundrum

I recently had to stop my Ibrutinib for three weeks while I was in hospital having surgery in the form of a total hip operation. I was expecting, following the...

I recently had to stop my Ibrutinib for three weeks while I was in hospital havi...

Berrytog

•9 years ago

7 Replies

Good News

I had my monthly appointment with my haematologist this week and received the good news that I am now in remission!!! I was diagnosed with cll at the age of...

I had my monthly appointment with my haematologist this week and received the go...

jaypax

•9 years ago

8 Replies

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Muscle spasms (Cramp, Charley Horse)

Hi, Does anyone else have a problem with muscle spasms, especially at night. My husband is experiencing spasms both day and night, he is on the verge of...

Hi, Does anyone else have a problem with muscle spasms, especially at night. M...

june65

•9 years ago

26 Replies

Transplant coming soon!

I have been fighting cll/stage 4 for seven years with little success. Have had all standard chemo and have been in two clinical trials (ibrutnib and ABT199)....

I have been fighting cll/stage 4 for seven years with little success. Have had ...

Hidden

•9 years ago

13 Replies

Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL

In the last few years, we've seen amazing advances in the approvals of safer, more effective non chemo treatments for CLL/SLL. That momentum doesn't look as...

In the last few years, we've seen amazing advances in the approvals of safer, mo...

AussieNeil

Administrator•9 years ago

3 Replies

Take a few moments to improve your on-line security with Google Privacy Checkup

It's nigh impossible to avoid Google if you use the Internet. Many of us have Gmail accounts and who doesn't visit Youtube? So while this post is not...

It's nigh impossible to avoid Google if you use the Internet. Many of us have G...

AussieNeil

Administrator•9 years ago

3 Replies

Today, I joined CLLSA

I am writing this as a CLL patient with a history of this disease going back to 2008, when I was diagnosed through a 'simple' blood test taken during my yearly...

I am writing this as a CLL patient with a history of this disease going back to ...

lumdor

•9 years ago

7 Replies

Odd symptoms in stage 0

Hello All, I'm a 73 yr old woman in stage 0 for over two years. Recently I've experienced nausea off and on as well as excessive joint pain. Any of you...

Hello All, I'm a 73 yr old woman in stage 0 for over two years. Recently I've e...

minsing

•9 years ago

1 Reply

Pinned Posts and the Like :)

You may have noticed a couple of small but significant changes to this site. Most importantly, Pinned Posts are much easier to find at...

You may have noticed a couple of small but significant changes to this site. Mo...

AussieNeil

Administrator•9 years ago

8 Replies

Imbruvica

My Brother is starting on Imbruvica for his CLL. He was taking Chemo for a while, but it wasn't working. Supposedly there has been some good success, but...

My Brother is starting on Imbruvica for his CLL. He was taking Chemo for a whi...

AbrahamB

•9 years ago

13 Replies

Treanda ..I'd like to hear from those that have been on it..

I've recently been placed on the "Treanda" protocol and would like to hear from those that were either on it or presently are. How do you feel now and how you...

I've recently been placed on the "Treanda" protocol and would like to hear from ...

Soflajoe

•9 years ago

3 Replies

Pruritus (itching) US & Eastern Canadian Resouces

Hi All, I have just returned from a visit with my dermatologist Dr. Brian Poligone at Univ. Rochester Medical Center in NY State. I had a SCC (Squamous Cell...

Hi All, I have just returned from a visit with my dermatologist Dr. Brian Polig...

ThreeWs

•9 years ago

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Large, widespread lymph nodes + normal blood

I finished my first lot of treatment for cll five years ago (I received treatment within a few weeks of referral from my GP) , and was doing well for about two...

I finished my first lot of treatment for cll five years ago (I received treatmen...

Grembold

•9 years ago

7 Replies

Health Check: when are we most likely to catch viral diseases?

Here's an interesting article that explains why we are more likely to become infected by some viruses but not others. The spread of viral infections depends...

Here's an interesting article that explains why we are more likely to become inf...

AussieNeil

Administrator•9 years ago

2 Replies

hospital appointment

Saw my haematologist this afternoon....i have no swollen nodes anywhere,spleen and liver are fine....did have a problem with platelets but theyre back up...

Saw my haematologist this afternoon....i have no swollen nodes anywhere,spleen a...

welshlady52

•9 years ago

4 Replies

Travel Insurance

Greetings Fellow CLLers Im interested if anyone especially in Australia have a travel insurance that they've used that insures pre existing medical conditions?...

Greetings Fellow CLLers Im interested if anyone especially in Australia have a t...

Elliot43

•9 years ago

4 Replies

Medical Marijuana In Birningham Englad

I have a dear friend's mom who is dying in Biringham and he is going home to see her. Does anyone know the system in England and whether doctors will give...

I have a dear friend's mom who is dying in Biringham and he is going home to see...

nancyjo

•9 years ago

4 Replies

More with Dr. Michael Hallek on "microenvironment"

This video is my interview with Dr. Hallek, one of the most renowned CLL researchers, at the CLL Patient Advocacy Group meeting in Canada where he explains his...

This video is my interview with Dr. Hallek, one of the most renowned CLL researc...

andrewschorr

•9 years ago

1 Reply

Interpreting blood results

Apologies for asking this - I know it is in here somewhere but can't find it when I search. I'd like to be able to interpret my blood results a little better...

Apologies for asking this - I know it is in here somewhere but can't find it whe...

Ge77y

•9 years ago

12 Replies

Fundraising

Hi All had a brilliant day today Team Jules raised 1150.00 gbp Which is fantastic The Flyer On a mission to beat blood Cancer

Hi All had a brilliant day today Team Jules raised 1150.00 gbp Which is fantasti...

Hidden

•9 years ago

6 Replies

Health-hackers: The people building apps to manage their illness. What app would you like?

There's a growing range of health tracking mobile apps along with dedicated monitoring technical aids like smartwatches and of course the fitbit. This New...

There's a growing range of health tracking mobile apps along with dedicated moni...

AussieNeil

Administrator•9 years ago

Be the first to reply

Rituximab hailed as a breakthrough for millions with Chronic Fatigue

A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup's post 'Fatigue, frustration and...

A couple of days ago Sue (wroxham) mentioned yuppie flu in response to Ducksoup'...

AussieNeil

Administrator•9 years ago

11 Replies

Are you able to contact your specialist via email or Facebook?

A new study published online June 24 in the Journal of General Internal Medicine, found that "Thirty-seven percent of participants said they'd e-mailed...

A new study published online June 24 in the Journal of General Internal Medicine...

AussieNeil

Administrator•9 years ago

10 Replies

Re- Branding

Hi all I have rebranded myself some of you will know me as the American flyer and if it's good enough for Leukaemia and Lymphoma research then it's good...

Hi all I have rebranded myself some of you will know me as the American flyer ...

Hidden

•9 years ago

3 Replies

New insight into blood production

"Scientists say they have identified a family of multipotent progenitor (MPP) cells that are the first to arise from hematopoietic stem cells (HSCs). The...

"Scientists say they have identified a family of multipotent progenitor (MPP) ce...

AussieNeil

Administrator•9 years ago

Be the first to reply

Explainer: do common chemicals increase your risk of cancer?

Darren Saunders, Senior Lecturer at UNSW Australia provides some background to chemical exposure and cancer risk and explains how "the latest study...

Darren Saunders, Senior Lecturer at UNSW Australia provides some background to c...

AussieNeil

Administrator•9 years ago

2 Replies

My HU site has suddenly gone Spanish!

Has anyone else got this problem? After a while, a little box appears, asking me if I want a translation, and when I say I do, it goes into English for a...

Has anyone else got this problem? After a while, a little box appears, asking...

PaulaS

Volunteer•9 years ago

5 Replies

The Future Role of FCR and new data on venetoclax and rituximab

Dear friends, This week on the CLL Society website we bring the second part of our interview with Professor Michael Hallek of Koln, Germany, the director of...

Dear friends, This week on the CLL Society website we bring the second part of ...

bkoffman

CLL CURE Hero•9 years ago

Be the first to reply

Cancer Genetics to provide comprehensive testing for global, multi-year, multi-center Clinical Trial for CLL; est $6M in revenue

No mention of what drug(s) will be trialled. Anyone know?...

AussieNeil

Administrator•9 years ago

4 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2015

A Fabulous Blog from a Doctor who has CLL

A CLL conundrum

Good News

Muscle spasms (Cramp, Charley Horse)

Transplant coming soon!

Checkpoint Inhibitors - the Programmed Death 1 and Ligand (PD-1/PD-L1) checkpoints and their promise for CLL/SLL

Take a few moments to improve your on-line security with Google Privacy Checkup

Today, I joined CLLSA

Odd symptoms in stage 0

Pinned Posts and the Like :)

Imbruvica

Treanda ..I'd like to hear from those that have been on it..

Pruritus (itching) US & Eastern Canadian Resouces

Large, widespread lymph nodes + normal blood

Health Check: when are we most likely to catch viral diseases?

hospital appointment

Travel Insurance

Medical Marijuana In Birningham Englad

More with Dr. Michael Hallek on "microenvironment"

Interpreting blood results

Fundraising

Health-hackers: The people building apps to manage their illness. What app would you like?

Rituximab hailed as a breakthrough for millions with Chronic Fatigue

Are you able to contact your specialist via email or Facebook?

Re- Branding

New insight into blood production

Explainer: do common chemicals increase your risk of cancer?

My HU site has suddenly gone Spanish!

The Future Role of FCR and new data on venetoclax and rituximab

Cancer Genetics to provide comprehensive testing for global, multi-year, multi-center Clinical Trial for CLL; est $6M in revenue

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