Posts - CLL Support | HealthUnlocked

hi folks I am at stage B and already had swollen nodes on my neck and groin when diagnosed. I did quite a lot of swimming yesterday and now I have a few more...

More swollen lymph nodes

hi folks I am at stage B and already had swollen nodes on my neck and groin wh...

Jamie_james

•9 years ago

9 Replies

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Itchiness on knees arms and back.

I am in remission fromCLL for about 6 months now and I am still in a clinical trial therefore iI take 420 mg of Ibrutinib daily . Recently I have noticed...

I am in remission fromCLL for about 6 months now and I am still in a clinical tr...

fish61

•9 years ago

11 Replies

Health Check: what causes headaches?

I don't know whether headaches are more common with CLL unless it is a side effect from illnesses, particularly respiratory infections to which we may be more...

I don't know whether headaches are more common with CLL unless it is a side effe...

Administrator•9 years ago

Jeffrey Craig, Principal Research Fellow at Murdoch Childrens Research Institute, University of Melbourne, Australia, a geneticist and cell biologist with...

Epigenetics: phenomenon or quackery?

Jeffrey Craig, Principal Research Fellow at Murdoch Childrens Research Institute...

Administrator•9 years ago

The recent call by US oncologists for patients to demand reductions in the price new drugs has prompted an interesting article at 'The Conversation', which...

If we don’t talk about value, cancer drugs will become terminal for health systems

The recent call by US oncologists for patients to demand reductions in the price...

Administrator•9 years ago

Rebecca Bechhold MD, provides a few example experiences of how doctors deal with second opinions: http://www.cancernetwork.com/blog/art-second-opinion It...

The Art of the Second Opinion - a doctor's perspective. Are we reluctant to ask for a second opinion when it comes to treatment?

Rebecca Bechhold MD, provides a few example experiences of how doctors deal with...

Hi There, I have had chemotherapy for CLL. Diagnosed a couple of years ago, I am now on Imbruvica and have been for eight months I am suffering...

Administrator•9 years ago

11 Replies

CLL?ROSCEA

Hi There, I have had chemotherapy for CLL. Diagnosed a couple of ...

john133

•9 years ago

I have seen other's blood test results and they have what I assume to be disease code where CL is on my picture blood test results. It's funny how it's...

Dose Anyone Know What CL on Blood test results mean

I have seen other's blood test results and they have what I assume to be disease...

Hidden

•9 years ago

Any one can guide on ALC doubling and its impact? Also if ALC/WBC is above 1 lac and increase by 15% in 04 months, what the trend shows? Regards

Increase in ALC/WBC

Any one can guide on ALC doubling and its impact? Also if ALC/WBC is above 1 lac...

AAli

•9 years ago

Hi, my name is Carol, this is my first post. I was diagnosed in May, 2010. I haven't had any treatment yet, besides doing my best to keep myself nutritionally...

when to begin treatment

Hi, my name is Carol, this is my first post. I was diagnosed in May, 2010. I ha...

carol_h

•9 years ago

11 Replies

Impact of FASTING

Hi every one, Can any one share his/her experience or information re impact of fasting on CLL. My personal experience is that on first day of our holy month...

Hi every one, Can any one share his/her experience or information re impact of f...

AAli

•9 years ago

20 Replies

Two Patient Perspectives on Phase 1 trials and Being Your own Advocate

Friends, This week we have published helpful information from two patients on the CLL Society website. The first is a thoughtful well-referenced editorial...

Friends, This week we have published helpful information from two patients on ...

bkoffman

CLL CURE Hero•9 years ago

Most of us (self included) find that as we grow older, we also more readily gain weight - and find it harder to lose it. A common reaction to having a...

The mathematics of better health. How much weight do you really need to lose?

Most of us (self included) find that as we grow older, we also more readily gain...

We know that while all our body cells contain the same DNA we inherited from our parents, they undergo epigenetic changes so that they can make our different...

Administrator•9 years ago

9 Replies

Epigenetic Changes to DNA illustrated

We know that while all our body cells contain the same DNA we inherited from our...

Administrator•9 years ago

My husband was on Watch and Wait for 3 years, then developed an enlarged spleen plus multiple enlarged lymph nodes. Diagnosis- poor prognosis CD38, ZAP70...

Living with CLL

My husband was on Watch and Wait for 3 years, then developed an enlarged spleen...

TrishaG

•9 years ago

8 Replies

World experts on CLL will share their knowledge with Australian patients in September - Patient Education Day at Swissotel, Sydney

Australians wishing to learn directly from international CLL experts can do so this September! What: Patient Education Day (NOT to be confused...

Australians wishing to learn directly from international CLL experts can do so t...

Has anyone out there found a CLL cancer center in the USA that is excellent? With so much information to read through this seems like a great question to ask...

Administrator•9 years ago

8 Replies

Is There an excellent CLL center in the USA?

Has anyone out there found a CLL cancer center in the USA that is excellent? Wi...

kathypawpaw

•9 years ago

23 Replies

Hockey Star Paul Henderson Talks about his CLL

Greetings: Most Canadians know the name Paul Henderson. He scored “THE GOAL” in ice hockey against the Russians years ago. He’s a national hero. He also is...

Greetings: Most Canadians know the name Paul Henderson. He scored “THE GOAL” in ...

andrewschorr

•9 years ago

My husband and I (sound like royalty don't we) both had appointments with our haematologist today. I'll start with the simplest one (me) my WBC was 48,...

Treatment Updates

My husband and I (sound like royalty don't we) both had appointments with our ha...

june65

•9 years ago

Hi folks so yesterday i asked if anyone had tried to improve their red blood count with diet as i read an article which suggested that a good red count was...

Survival rates and red blood count link.

Hi folks so yesterday i asked if anyone had tried to improve their red blood c...

Jamie_james

•9 years ago

Dear friends, This week's new post on the CLL Society's website brings us practical advice from Dr. Neil Kay out of the Mayo clinic on prognostic indicators...

CRC 2015: Dr. Neil Kay on Prognostic Indicators and Standard Early Care for CLL (chronic lymphocytic leukemia)

Dear friends, This week's new post on the CLL Society's website brings us pract...

bkoffman

CLL CURE Hero•9 years ago

Here's a few CLL related updates on the COMPLEMENT 2 trial - ofatumumab with fludarabine and cyclophosphamide (OFC), the PI3Kδ/γ inhibitor duvelisib (IPI-145),...

Latest news on the COMPLEMENT 2 trial, duvelisib (IPI-145), TGR-1202 and a novel SYK inhibitor TAK-659 presented at EHA and ICML

Here's a few CLL related updates on the COMPLEMENT 2 trial - ofatumumab with flu...

Administrator•9 years ago

Hi All I'm 47 and just received my diagnosis today.(CLL ) My bone marrow is fine I am told and so they are putting me In watch and wait. While all this is...

Hi folks - just diagnosed

Hi All I'm 47 and just received my diagnosis today.(CLL ) My bone marrow is fine...

Jamie_james

•9 years ago

16 Replies

Blood Count...Eh? What does this mean?

Hi all Due to see the Haematologist on Monday for the first time since diagnosis a couple or three weeks ago and after looking through posts on this most...

Hi all Due to see the Haematologist on Monday for the first time since diagnosi...

andygm

•9 years ago

On Sunday CLLSA runners took to the streets of London in the 2015 Vitality British 10k London Run. The fine summer weather held, feedback received so far; is...

Success for Sunday's CLLSA London 10K runners

On Sunday CLLSA runners took to the streets of London in the 2015 Vitality Briti...

HAIRBEAR_UK

Founder Admin•9 years ago

Michael Tam, General Practitioner, and Conjoint Senior Lecturer at UNSW Australia, provides some guidance on how not to share bugs, specifically the common...

Health Check: I feel a bit sick, should I stay home or go to work?

Michael Tam, General Practitioner, and Conjoint Senior Lecturer at UNSW Australi...

Administrator•9 years ago

We've had previous posts about superbugs and hopefully these will remain a theoretical consideration for us. Unfortunately, given we have compromised immune...

Explainer: what are superbugs and how can we control them?

We've had previous posts about superbugs and hopefully these will remain a theor...

Administrator•9 years ago