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CLL Support

22,661 members • 38,891 posts

All posts for May 2015

Holiday Insurance

I am lucky enough to have just been put back to a yearly watch and wait. With this in mind should I take Holiday Insurance that excludes CLL. I have no...

I am lucky enough to have just been put back to a yearly watch and wait. With th...

essexman

•9 years ago

13 Replies

Blood counts from 11-th may

Hy everyone, My last results :WBC 67.1;LYM 87%;ALC 58;Hb 12.7;PLT 233;only one aria with swollen lymph node (the right size of my neck), small skin...

Hy everyone, My last results :WBC 67.1;LYM 87%;ALC 58;Hb 12.7;PLT 233;only one...

lilica955

•9 years ago

4 Replies

Online Consultation

Hi every one. Any one can guide link for online consultation. I just want to coordinate with CLL experts online to verify what the doctors advising me here at...

Hi every one. Any one can guide link for online consultation. I just want to coo...

AAli

•9 years ago

1 Reply

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The low-down on ‘cold and flu’ tablets

With cold and flu season arriving for some of us, Janet Sluggett, Research Fellow: Quality Use of Medicines and Pharmacy Research Centre, Sansom Institute for...

With cold and flu season arriving for some of us, Janet Sluggett, Research Fello...

AussieNeil

Administrator•9 years ago

1 Reply

Happy Mothers Day! (Observed today in U.S., Australia and other great places I assume.)

To all the Mom's. It's your day. Enjoy!😀 in the states and everywhere.

Justasheet1

•9 years ago

4 Replies

Cardiac side effects from drugs: Predictable?

Hi All, Some of our therapy drugs i.e. Rituxan & Ibrutinib, have been associated with cardiac side effects for some patients. It would be interesting to know...

Hi All, Some of our therapy drugs i.e. Rituxan & Ibrutinib, have been associate...

ThreeWs

•9 years ago

11 Replies

Ibrutinib

I have just joined this forum as I have read with interest the experience of others on Ibrutib . I am five days in to this medication . Did anybody feel a bit...

I have just joined this forum as I have read with interest the experience of oth...

PE1234

•9 years ago

28 Replies

ASH 2014: Dr. Kipps explains ROR1 and how CLL is really treated in the community

When I had a chance at ASH (American Society of Hematology) 2014 to interview my doctor, Dr. Tom Kipps, he first talked about the ROR1 trials that has recently...

When I had a chance at ASH (American Society of Hematology) 2014 to interview my...

bkoffman

CLL CURE Hero•9 years ago

1 Reply

Platelets

i took a blood test and for Platelets i had 100. should i be worry ? what should i do ?

i took a blood test and for Platelets i had 100. should i be worry ? what should...

yadii19

•9 years ago

9 Replies

AussieNeil, Thank You.

Neil, I just wanted to say thanks to you for all your informative postings and the quick and numerous responses you give. I thank all of the other...

Neil, I just wanted to say thanks to you for all your informative postings and t...

Justasheet1

•9 years ago

18 Replies

white blood count

Hi 5 weeks ago i had a blood test done and it was 3.6 now it is 3.0 and asked for a print out of results, i notice that the lymphocyte level is 0.7 normal...

Hi 5 weeks ago i had a blood test done and it was 3.6 now it is 3.0 and asked f...

fi27

•9 years ago

1 Reply

Living with CLL

Hi Everyone, can anyone tell me if a WCC of 229 is to be worried about. The powers that be still don't want to treat. Is this normal? No B symptoms either....

Hi Everyone, can anyone tell me if a WCC of 229 is to be worried about. The powe...

Pablo123

•9 years ago

7 Replies

San Diego 2015 CRC – BCRF Patient Meeting Videos

Late last month, the CLL Research Consortium and the Blood Cancer Research Fund, hosted a patient education and empowerment meeting at UC San Diego Moores...

Late last month, the CLL Research Consortium and the Blood Cancer Research Fund,...

AussieNeil

Administrator•9 years ago

4 Replies

Novel Biologic Agents for Non-HL and CLL — Part 2: Adoptive Cellular Immunotherapy, Small-Molecule Inhibitors, and Immunomodulation

Tanya Siddiqi, MD and Steven T. Rosen, MD complete their comprehensive review in part 2: "In this two-part review, we discuss biologic therapies classified...

Tanya Siddiqi, MD and Steven T. Rosen, MD complete their comprehensive review in...

AussieNeil

Administrator•9 years ago

Be the first to reply

Omega-3 May Treat Depression in Patients With Inflammation

"Hyman Rapaport, MD, of the Emory University School of Medicine, and colleagues conducted a trial involving 155 participants with major depressive disorder...

"Hyman Rapaport, MD, of the Emory University School of Medicine, and colleagues ...

AussieNeil

Administrator•9 years ago

7 Replies

People like me

hi, love the new People like me function, but when I tried to contact someone who was supposed to be only 2 miles away from me, he's apparently nowhere near...

hi, love the new People like me function, but when I tried to contact someone wh...

Flixton

•9 years ago

5 Replies

How improved protein imaging and the understanding of protein folding is helping us develop better drugs

While this is rather technical, just looking at the image above will tell you most of what you need to know. This image shows how we've improved our ability...

While this is rather technical, just looking at the image above will tell you mo...

AussieNeil

Administrator•9 years ago

3 Replies

Starting FCR in 10 days

Hi Everyone I begin FCR on Tuesday 19th May. I've had lots of helpful advice from the hospital, such as the need to drink 2-3 litres of water a day prior to...

Hi Everyone I begin FCR on Tuesday 19th May. I've had lots of helpful advice fro...

Markdce

•9 years ago

7 Replies

Vaccinations....do they work for CLL Patients???

Hi All, Any idea that pneumonia, flu and hepatitis vaccinations work for CLL patients? Or if you are familiar with any other vaccinations/medicine to increase...

Hi All, Any idea that pneumonia, flu and hepatitis vaccinations work for CLL pat...

AAli

•9 years ago

9 Replies

Three Year Anniversary on Ibrutinib for my CLL

Friends, Three years ago today I started on ibrutinib as part of a trial out of OSU, and life just continues to just get better and better. Please take a...

Friends, Three years ago today I started on ibrutinib as part of a trial out of...

bkoffman

CLL CURE Hero•9 years ago

12 Replies

Green Tea Compound May Stem Alzheimer's Progress

University of Missouri researchers have determined that a compound found in green tea (EGCG), and voluntary exercise, slows the progression of the disease in...

University of Missouri researchers have determined that a compound found in gree...

AussieNeil

Administrator•9 years ago

1 Reply

Palaeodiet - Good intentions, gone wrong?

"It’s laudable that people want to improve their health, or hope to stave off lifestyle diseases like cancer, diabetes and coronary heart disease, by...

"It’s laudable that people want to improve their health, or hope to stave off li...

AussieNeil

Administrator•9 years ago

6 Replies

swollen lymph nodes

Hi my bloods are pretty stable WBC 40, HG14.9, lymphs 34.3. I now have several lumps in various lymph nodes. Doc doesn't seem too concern and allowed me to...

Hi my bloods are pretty stable WBC 40, HG14.9, lymphs 34.3. I now have several ...

is-sul

•9 years ago

3 Replies

It’s Time to Tackle the Evidence Gap in Lymphoid Cancers - Ahmad Halwani, MD

Ahmad Halwani, Assistant Professor, Division of Hematology and Hematologic Malignancies, Huntsman Cancer Institute, University of Utah Healthcare, Salt Lake...

Ahmad Halwani, Assistant Professor, Division of Hematology and Hematologic Malig...

AussieNeil

Administrator•9 years ago

Be the first to reply

Flair trial v FCR

I will ask the consultant next time I see here but in the meantime I thought I would ask here The registrar at my last visit s aid when treatment is needed...

I will ask the consultant next time I see here but in the meantime I thought I w...

Hidden

•9 years ago

1 Reply

Confused.......

Hi All, yesterday I visited an oncologist. He advised that right now your asymptomatic and may wait for chemo, might be month/months/years.. But same time he...

Hi All, yesterday I visited an oncologist. He advised that right now your asympt...

AAli

•9 years ago

15 Replies

Venetoclax (ABT-199) Receives Breakthrough Therapy Designation In Relapsed Or Refractory CLL In Previously Treated 17p deletion Patients

This breakthrough designation - only for relapsed/refractory 17p deletion patients should mean the path to FDA approval will be smooth and short in the USA....

This breakthrough designation - only for relapsed/refractory 17p deletion patien...

bkoffman

CLL CURE Hero•9 years ago

18 Replies

What's the latest on monoclonal antibodies for CLL?

Watch MD Anderson CLL specialist Alessandra Ferrajoli give you the latest information and how this ties in to new types of combination therapy for CLL....

Watch MD Anderson CLL specialist Alessandra Ferrajoli give you the latest inform...

andrewschorr

•9 years ago

Be the first to reply

Aching all over!

Hi, I'm on W&W but I'm unable to sleep due to my whole body aching so much, I'm totally stressed out. I know some of you have stated that you also have aching...

Hi, I'm on W&W but I'm unable to sleep due to my whole body aching so much, I'm...

boydthedog6

•9 years ago

13 Replies

People Near Me update - and Please add in your country

Some of us have discovered the new 'People Near Me' feature that HealthUnlocked (HU) have been experimenting with for the last couple of months. The inaugural...

Some of us have discovered the new 'People Near Me' feature that HealthUnlocked ...

AussieNeil

Administrator•9 years ago

12 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for May 2015

Holiday Insurance

Blood counts from 11-th may

Online Consultation

The low-down on ‘cold and flu’ tablets

Happy Mothers Day! (Observed today in U.S., Australia and other great places I assume.)

Cardiac side effects from drugs: Predictable?

Ibrutinib

ASH 2014: Dr. Kipps explains ROR1 and how CLL is really treated in the community

Platelets

AussieNeil, Thank You.

white blood count

Living with CLL

San Diego 2015 CRC – BCRF Patient Meeting Videos

Novel Biologic Agents for Non-HL and CLL — Part 2: Adoptive Cellular Immunotherapy, Small-Molecule Inhibitors, and Immunomodulation

Omega-3 May Treat Depression in Patients With Inflammation

People like me

How improved protein imaging and the understanding of protein folding is helping us develop better drugs

Starting FCR in 10 days

Vaccinations....do they work for CLL Patients???

Three Year Anniversary on Ibrutinib for my CLL

Green Tea Compound May Stem Alzheimer's Progress

Palaeodiet - Good intentions, gone wrong?

swollen lymph nodes

It’s Time to Tackle the Evidence Gap in Lymphoid Cancers - Ahmad Halwani, MD

Flair trial v FCR

Confused.......

Venetoclax (ABT-199) Receives Breakthrough Therapy Designation In Relapsed Or Refractory CLL In Previously Treated 17p deletion Patients

What's the latest on monoclonal antibodies for CLL?

Aching all over!

People Near Me update - and Please add in your country

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