Posts - CLL Support | HealthUnlocked

Founder Admin•9 years ago

CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was interested to read that people that engage in vigorous physical activity may...

Vigorous physical activity may lower risk of NHL

CLL/SLL is classified as one of the many Non Hodgkin's Lymphomas (NHL), so I was...

Founder Admin•9 years ago

Have come home from work to 3 poorly children with chicken pox - they've all been immunised so they're not suffering too much but I'm popping my anti-vitals...

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Chicken pox outbreak - wish me luck!

Have come home from work to 3 poorly children with chicken pox - they've all bee...

DebinOzinLondon

•9 years ago

7 Replies

Blood test every 3 month, 6 month, or 1 year?

I was diagnosed 10 month ago, and WBC was 21000 when diagnosed (stage A). I was checked blood every 3 months, and found increasing WBC 1000 for a month....

I was diagnosed 10 month ago, and WBC was 21000 when diagnosed (stage A). I was...

Miee

•9 years ago

9 Replies

CAR - T and safer Bone Marrow Transplants

Haemagological Times has this month published a couple of research articles examining ways to improve control of Graft Versus Host Disease (GVHD), the...

Haemagological Times has this month published a couple of research articles exam...

Founder Admin•9 years ago

I was diagnosed with cll/sll in January this year. Am due to go back in August. I have no idea what stage i am at... or what to expect!! Am grateful for...

A bit ignorant!

I was diagnosed with cll/sll in January this year. Am due to go back in August. ...

paulamarie

•9 years ago

10 Replies

Leukaemia Foundation Australia - Trials Enabling Program

We're very behind the 8 ball here in Australia - looks like the Leukaemia Foundation is trying to help...

We're very behind the 8 ball here in Australia - looks like the Leukaemia Founda...

DebinOzinLondon

•9 years ago

As some of you may know, I have a background in medical education and just recently stepped away from a paid position as the medical director of a large...

My original research on the effects of medical education on the management of geriatric anemia and especially MDS

As some of you may know, I have a background in medical education and just recen...

bkoffman

CLL CURE Hero•9 years ago

The CLL Live 2015 Speaker Videos are now available on YouTube. The followling link will take you to a play list of 10 videos. Please bookmark for future...

CLL Live 2015 Conference Videos

The CLL Live 2015 Speaker Videos are now available on YouTube. The followling l...

Cllcanada

Finding a CLL specialist?

Hi all As I've only recently been diagnosed with CLL I really thought my treatment path was pretty much dictated to me - i.e. the doctor I saw at my local...

Hi all As I've only recently been diagnosed with CLL I really thought my treatm...

debs24

•9 years ago

24 Replies

Primary Secondary Cancer benefits from PI3K delta inhibitors?

Hi all, Medical discoveries bode well for us. It will take time to discover best ways to use the new drugs and to sort through the potential for side effects...

Hi all, Medical discoveries bode well for us. It will take time to discover bes...

ThreeWs

•9 years ago

Good day everyone . The sun is shining in the south which is a bonus after yesterday with all the rain .Just to say what ever you are doing enjoy. Have been...

A sunny day in the south

Good day everyone . The sun is shining in the south which is a bonus after yeste...

I can hear my pulse in my ear which is driving me potty .Has anyone else experienced this or is this yet another issue ? Sorry to bleat B

•9 years ago

14 Replies

Yet another question

I can hear my pulse in my ear which is driving me potty .Has anyone else experie...

I seem to keep hearing my pulse throbbing in my ear .Is this one of the effects of cll or something else ? It's driving me potty .B

•9 years ago

13 Replies

Yet another question

I seem to keep hearing my pulse throbbing in my ear .Is this one of the effects ...

Hi All, We need to keep our eye on this to see if the preliminary evidence holds up....

•9 years ago

14 Replies

Vitamin B3 for skin cancer prevention?

Hi All, We need to keep our eye on this to see if the preliminary evidence hold...

ThreeWs

•9 years ago

From Dr Sharman's blog on ASCO 2015. http://abstracts.asco.org/156/AbstView_156_152147.html Jeff

Meet this triplet

From Dr Sharman's blog on ASCO 2015. http://abstracts.asco.org/156/AbstView_156...

Justasheet1

•9 years ago

Hi all This is my first post here so please be gentle with me! Please can you help? I have today received a copy of my latest blood test results. There is...

FBC results.....something missing?

Hi all This is my first post here so please be gentle with me! Please can you ...

debs24

•9 years ago

21 Replies

Adrenal fatigue

My chiropractor thinks given my long time stressful life(33 yrs living with alcoholic) could have resulted in this condition. I have chronic lower back...

My chiropractor thinks given my long time stressful life(33 yrs living with alco...

kitcat49

•9 years ago

3 Replies

Taste buds

Following six treatments with fcr i now seem to have lost my sence of taste and smell is this normal.

Following six treatments with fcr i now seem to have lost my sence of taste and ...

d011y

•9 years ago

5 Replies

Chlorambucil

Hi All, Any one having some feed back on this medicine? Is it better option than FCR? Regards

Hi All, Any one having some feed back on this medicine? Is it better option than...

AAli

•9 years ago

7 Replies

Ibrutinib - 8 months on

It's been a while since my last post so, as I am making real progress, here are my latest thoughts. To recap, Dr Schuh in Oxford put me on Ibrutinib 8 months...

It's been a while since my last post so, as I am making real progress, here are ...

Haileybury

•9 years ago

18 Replies

When Searching for Medical Information Becomes An Unhealthy Obsession

I wonder whether any of us actually went to a doctor and asked if they had leukaemia, after some on-line research of what could be causing some troubling...

I wonder whether any of us actually went to a doctor and asked if they had leuka...

I am still a bit in disbelief regarding this disease but I would like to say that since joining this forum I am not quite so panicky. I find reading some of...

Founder Admin•9 years ago

15 Replies

Hello

I am still a bit in disbelief regarding this disease but I would like to say tha...

Friends I understand if your eyes begin to glaze over when someone starts to discuss trial design and statistics, but just as it is important that we know...

•9 years ago

10 Replies

Profesor Hillmen on Accelerated Clinical Trial Design

Friends I understand if your eyes begin to glaze over when someone starts to di...

bkoffman

CLL CURE Hero•9 years ago

6 Replies

Will changes in Australia's personal health record improve the health of Australians?

While of most interest to Australians, this may also be of interest in other countries were there are moves towards setting up a patient accessible national...

While of most interest to Australians, this may also be of interest in other cou...

Founder Admin•9 years ago

A lot of people suspect Mother's Day is really a holiday invented to sell flowers, cards and candy. The truth, however, is far more interesting, especially for...

The Forgotten History of Mother's Day

A lot of people suspect Mother's Day is really a holiday invented to sell flower...

shazie

•9 years ago

"Smartphone health care is becoming a big business, with the global venture capital community pumping almost $300 million into the sector in Q1 2015, and...

The rapid rise of smartphone health care

"Smartphone health care is becoming a big business, with the global venture capi...

Founder Admin•9 years ago

While the referenced article is not written with CLL patients in mind, I'm certain that this is a common question, given illnesses can be more frequent and...

Health Check: can I exercise while getting over a bug?

While the referenced article is not written with CLL patients in mind, I'm certa...

Founder Admin•9 years ago

Good news and well done CLL patients who gave time to give voice at the PACE meeting . Ofatumumab (Arzerra) Advice following a full submission...

Ofatumumab (Arzerra®) is accepted for restricted use within NHS Scotland.

Good news and well done CLL patients who gave time to give voice at the PACE me...

HAIRBEAR_UK

Founder Admin•9 years ago