Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for April 2015

What the Color of Your Snot is Telling You

Paying closer attention to the color, and perhaps texture, of your nasal mucus could tell you important things about your health....

Paying closer attention to the color, and perhaps texture, of your nasal mucus c...

shazie

•9 years ago

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Post Chemo Effects

Thanks to all of you who have responded to my query about "prickly" skin sensitivity. There was a lot of useful information which I will discuss with my...

Thanks to all of you who have responded to my query about "prickly" skin sensiti...

jaypax

•9 years ago

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Dispelling Mythinformation on Childhood Vaccinations

Due to increasing concerns that falling childhood vaccination rates in Australia are putting the community at increasing risk of death or severe complications...

Due to increasing concerns that falling childhood vaccination rates in Australia...

AussieNeil

Administrator•9 years ago

1 Reply

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Itchy bumps on skin

Hi guys although I have been following your informative posts I now have my first post. Was diagnosed with cll in November 2014. Have been on wait and watch...

Hi guys although I have been following your informative posts I now have my fi...

timboyce

•9 years ago

4 Replies

Post Chemo Effects

Hi. Can somebody out there give me some help? I finished my chemo treatment - Bendamustine & Rituximab - in February and I'm delighted that it was successful...

Hi. Can somebody out there give me some help? I finished my chemo treatment - Be...

jaypax

•9 years ago

32 Replies

COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"

Here are some extra practical points for things to do during "Watch and wait". Thanks again to everyone who contributed. 1) Have all the HEALTH...

Here are some extra practical points for things to do during "Watch and wait"....

PaulaS

Volunteer•9 years ago

38 Replies

Imperial College T-Cell Boosting Therapy

Just found the following from Imperial College that sounds interesting. Experiments in mice and human cells have shown that the protein promotes the...

Just found the following from Imperial College that sounds interesting. Experim...

Ernest2

•9 years ago

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Mini-allo Transplants

Does anyone know if mini-allo transplant is the treatment of choice for previously treated patients less than around 60yrs. Would ibrutnib be used first if...

Does anyone know if mini-allo transplant is the treatment of choice for previous...

Sharastani

•9 years ago

18 Replies

Homeopathic Treatment

Have any one heard about any homeopathic treatment of CLL ???

AAli

•9 years ago

3 Replies

Stopping FCR early

Hi Everyone, My doctor has cancelled the FC in my 6th and final dose of FCR. ( I am in US so I get all IV meds and have 11q deletion/CD38+) My preliminary...

Hi Everyone, My doctor has cancelled the FC in my 6th and final dose of FCR. (...

Jomary8505

•9 years ago

29 Replies

Health Check: are my memory lapses normal or could this be Alzheimer’s disease?

I suspect that memory lapses concern us more than our peers. CLL related fatigue fogs our brains as well as draining our bodies and we aren't as sharp...

I suspect that memory lapses concern us more than our peers. CLL related fatigu...

AussieNeil

Administrator•9 years ago

7 Replies

Treatment with the new drugs.

Another article on novel agents. A positive take away. http://www.onclive.com/web-exclusives/Novel-Agents-Set-to-Revolutionize-NHL-Treatment Jeff

Another article on novel agents. A positive take away. http://www.onclive.com/we...

Justasheet1

•9 years ago

1 Reply

Immunisation, the media and the amplification of irrational anxiety

In Australia, the rate of non-immunisation of children has doubled in a decade and rates of some very avoidable but potentially lethal children’s diseases such...

In Australia, the rate of non-immunisation of children has doubled in a decade a...

AussieNeil

Administrator•9 years ago

5 Replies

How soon before we can choose to fly with airlines that sterilise their aircraft with UV light?

I'd be thrilled if this aircraft sanitising robot comes into common use, then I'd only have to worry about avoiding infections from nearby passengers......

I'd be thrilled if this aircraft sanitising robot comes into common use, then I'...

AussieNeil

Administrator•9 years ago

2 Replies

Car-T that targets CD19

Anyone also see this? http://www.onclive.com/onclive-tv/Dr-Sadelain-on-CAR-T-Cell-Therapies Jeff

Anyone also see this? http://www.onclive.com/onclive-tv/Dr-Sadelain-on-CAR-T-Cel...

Justasheet1

•9 years ago

1 Reply

Will midata or similar, give us back our data?

I've regularly posted about what we can do to improve our on-line security and through those postings, you'll be aware of how much data about us is collected...

I've regularly posted about what we can do to improve our on-line security and t...

AussieNeil

Administrator•9 years ago

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Novel Biologic Agents for Non-Hodgkin Lymphoma and Chronic Lymphocytic Leukemia—Part 1 (Cancer Network Oncology Journal)

For those interested, the March issue of Oncology Journal, provided by the Cancer Network, has quite a few articles relevant to CLL and associated blood...

For those interested, the March issue of Oncology Journal, provided by the Cance...

AussieNeil

Administrator•9 years ago

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Inspiring Video with CLL Patient

This interview is from our recent Phoenix CLL town meeting. You will love hearing from Dr. La Verne Abe Harris. Let me know what you think:...

This interview is from our recent Phoenix CLL town meeting. You will love hearin...

andrewschorr

•9 years ago

5 Replies

Golden staph: the deadly bug that wreaks havoc in hospitals

Frank Bowden, Professor at Australian National University Medical School; Senior Staff Specialist Infectious Diseases at ACT Health asks: "Which of the...

Frank Bowden, Professor at Australian National University Medical School; Senior...

AussieNeil

Administrator•9 years ago

3 Replies

The future for CLL?

In the last few years, we've seen some great advances in the efficacy of new treatments for CLL, with very encouraging progress towards a cure. There has even...

In the last few years, we've seen some great advances in the efficacy of new tre...

AussieNeil

Administrator•9 years ago

2 Replies

Questionable Online Advice from a Physician about CLL

Friends, I just posted on my blog (http://bkoffman.blogspot.com ) about some very questionable advice from a syndicated medical doctor about CLL/SLL: if the...

Friends, I just posted on my blog (http://bkoffman.blogspot.com ) about some ve...

bkoffman

CLL CURE Hero•9 years ago

5 Replies

Is climate change to blame for outbreaks of mosquito-borne disease?

We've previously had a few mentions of the alarming spread of some very unpleasant viral diseases, thanks to the increasing range of mosquitoes that carry...

We've previously had a few mentions of the alarming spread of some very unpleasa...

AussieNeil

Administrator•9 years ago

4 Replies

Health Check: here’s what you need to know about sleep apnoea

Many of us suffering from fatigue may feel that it is all due to our CLL, but there are many possible causes, with sleep apnoea high on the list for the...

Many of us suffering from fatigue may feel that it is all due to our CLL, but th...

AussieNeil

Administrator•9 years ago

4 Replies

FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)

Well I’m glad to report I’m finally into the R&R stage now of round 4, and Spring seems to have finally arrived just in time for Easter. As always please...

Well I’m glad to report I’m finally into the R&R stage now of round 4, and Sprin...

Ernest2

•9 years ago

16 Replies

Muscle spasms

Anybody else get muscle spasms? Not from too much exercise...just randomly after moving a certain way. I get them in my foot,calf, arm. I'm 44 y.o. at stage 1...

Anybody else get muscle spasms? Not from too much exercise...just randomly after...

eperl

•9 years ago

14 Replies

CLL and drinking lemon juice in the Morning

Hello......does anyone know if its ok to drink lemon juice in the morning with cll? I have heard that too much vit c is not good with this

Hello......does anyone know if its ok to drink lemon juice in the morning with c...

Decodes

•9 years ago

22 Replies

Feeling Stressed? Practice the 4-7-8 Breath

Stress is a normal part of everyday life. In fact, in some situations, stress can be life saving, steering us away from hazards, or boosting our focus when we...

Stress is a normal part of everyday life. In fact, in some situations, stress ca...

shazie

•9 years ago

1 Reply

Bkool simulator creates any animated cycling route you want, on the fly

This may make stationary bike exercise more enticing - cycle any route you want, anywhere in the world! The entire environment is rendered while you ride it,...

This may make stationary bike exercise more enticing - cycle any route you want,...

AussieNeil

Administrator•9 years ago

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Capita Medical Reporting

Hi all, just an alert. Today I've received a number of emails purporting to be from Capita Medical Reporting. The content states 'Important medical documents...

Hi all, just an alert. Today I've received a number of emails purporting to be ...

Oleboyredw-uk

•9 years ago

2 Replies

CLL Society is online.

Dr. Brian Koffman's new site is online. This should be another great resource for us CLLers. Jeff http://cllsociety.org

Dr. Brian Koffman's new site is online. This should be another great resource fo...

Justasheet1

•9 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2015

What the Color of Your Snot is Telling You

Post Chemo Effects

Dispelling Mythinformation on Childhood Vaccinations

Itchy bumps on skin

Post Chemo Effects

COPING STRATEGIES for living better with CLL - Part 3 - some extra tips for making good use of "Watch and "Wait"

Imperial College T-Cell Boosting Therapy

Mini-allo Transplants

Homeopathic Treatment

Stopping FCR early

Health Check: are my memory lapses normal or could this be Alzheimer’s disease?

Treatment with the new drugs.

Immunisation, the media and the amplification of irrational anxiety

How soon before we can choose to fly with airlines that sterilise their aircraft with UV light?

Car-T that targets CD19

Will midata or similar, give us back our data?

Novel Biologic Agents for Non-Hodgkin Lymphoma and Chronic Lymphocytic Leukemia—Part 1 (Cancer Network Oncology Journal)

Inspiring Video with CLL Patient

Golden staph: the deadly bug that wreaks havoc in hospitals

The future for CLL?

Questionable Online Advice from a Physician about CLL

Is climate change to blame for outbreaks of mosquito-borne disease?

Health Check: here’s what you need to know about sleep apnoea

FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)

Muscle spasms

CLL and drinking lemon juice in the Morning

Feeling Stressed? Practice the 4-7-8 Breath

Bkool simulator creates any animated cycling route you want, on the fly

Capita Medical Reporting

CLL Society is online.

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