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CLL Support

22,512 members • 38,666 posts

All posts for April 2015

Got a Question about Blood Tests?

My favorite person, Dr. Susan Leclair, a highly respected blood laboratory expert form the US, will be our LIVE guest on an upcoming webinar where you can ask...

My favorite person, Dr. Susan Leclair, a highly respected blood laboratory exper...

andrewschorr

•9 years ago

1 Reply

BLOOD COUNTS

Starting FCR next week and wondering just how BAD my blood count is - I have just taken sight of this today so being a bit vague about things just want to know...

Starting FCR next week and wondering just how BAD my blood count is - I have jus...

Strong-happy2

•9 years ago

13 Replies

Pointers for starting FCR

Hi Guys n Gals Firstly, just going to be starting FCR next week and having read through this site have found it very informative. What for the actual...

Hi Guys n Gals Firstly, just going to be starting FCR next week and having read...

Strong-happy2

•9 years ago

32 Replies

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Maximum expectatncy for Surviving with CLL (initial phase or Watch n wait)

Hi Is any one here who is surviving with CLL initial phase or in wait n watch phase? I just want to know is there any definite pattern that this phase prolongs...

Hi Is any one here who is surviving with CLL initial phase or in wait n watch ph...

AAli

•9 years ago

57 Replies

Do FCR trials ever end early when the results are very favorable?

Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a WBC of 28.5k after a routine physical and was totally asymptomatic. Just...

Hi I am new to this community but not new to CLL. Was diagnosed in 9/2009 with a...

CClaver27

•9 years ago

12 Replies

Initials,initials,initials......

I'm not too new to cll but some are. Can someone please create a list of all these initials and what they mean please ????? And while I'm here ..can a high...

I'm not too new to cll but some are. Can someone please create a list of all the...

kitcat49

•9 years ago

5 Replies

We're stuck with passwords: Here's how to make them work better for you

We can't avoid them and it is increasingly becoming more important to make them work well for you, so here are two articles that claim to do just that: How to...

We can't avoid them and it is increasingly becoming more important to make them ...

AussieNeil

Administrator•9 years ago

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Chest infection

Constant chest infection. Is this normal

d011y

•9 years ago

12 Replies

Less is the new more: choosing medical tests and treatments wisely

Living with a CLL diagnosis, where there's the unfortunate expectation that your health has entered inevitable decline*, its easy to fall into the trap of...

Living with a CLL diagnosis, where there's the unfortunate expectation that your...

AussieNeil

Administrator•9 years ago

3 Replies

Belle Gibson and Culture as moral antibodies - does society appropriately deal with health charlatans?

Belle Gibson shows that most of us care about right and wrong writes Nicholas Hookway, Lecturer, Sociology at University of Tasmania, Australia. "With her...

Belle Gibson shows that most of us care about right and wrong writes Nicholas Ho...

AussieNeil

Administrator•9 years ago

2 Replies

flu vacsinations

I would very much like to know if seasons flu vacsinations are safe for w&w CLLs

brad7

•9 years ago

12 Replies

Pneumonia vaccinations in Australia

I've written this for our Australian members that wish to reduce their likelihood of contracting pneumonia by availing themselves of free/reduced cost...

I've written this for our Australian members that wish to reduce their likelihoo...

AussieNeil

Administrator•9 years ago

4 Replies

Side effects of ciclosporin

I am being treated with ciclosporin for Heamolytic Anaemia taking 25mg morning and evening. My Haemoglobin is steady at 127 but my LDH is up and my...

I am being treated with ciclosporin for Heamolytic Anaemia taking 25mg morning a...

jimh

•9 years ago

1 Reply

experience CLL Ibrutinib Colitis

Hi Maybe there is a better route out of this? I am a man in the UK and was diagnosed with CLL aged 38 in 2007. I had six rounds of FCR and achieved MRD. In...

Hi Maybe there is a better route out of this? I am a man in the UK and was diag...

Corin850

•9 years ago

14 Replies

Can you Fly When you Have Cancer?

This is not a question. It is an article in CURE magazine. I didn't know about this myself. This may only apply in US. Planning a flight? Do your homework...

This is not a question. It is an article in CURE magazine. I didn't know about t...

shazie

•9 years ago

2 Replies

FOODFACTS

I really like Dr. Mercola's website: FOODFACTS. Just type in any food and it provides you info about it. Very informative if you have time....

I really like Dr. Mercola's website: FOODFACTS. Just type in any food and it p...

shazie

•9 years ago

1 Reply

Black Seed For Treatment Of Cancer

Mix 1 kg of oil of the black seed with 1 kg of honey; simmer for 15 minutes, add ½ cup of lemon juice; then allow to sit in a cool place. Take 2 tsp every...

Mix 1 kg of oil of the black seed with 1 kg of honey; simmer for 15 minutes, add...

AAli

•9 years ago

9 Replies

Update on Oxford...

Been a busy couple of days since I got back on Friday, from my meeting with Anna Schur on Thursday, colds and sickness in this household, but pleased to say...

Been a busy couple of days since I got back on Friday, from my meeting with Anna...

JanetG

•9 years ago

15 Replies

CLL Research Consortium In San Diego

Is there a summary of what the "key ideas" were? I wanted to go but couldn't afford to miss work. Thank you.

Is there a summary of what the "key ideas" were? I wanted to go but couldn't af...

rlyndecker

•9 years ago

1 Reply

Sugar: However much you might want it, you really don't need it

Sugar on trial - What you really need to know; New Scientist article (free registration) looks at what's behind the World Health Organisation's likely...

Sugar on trial - What you really need to know; New Scientist article (free regi...

AussieNeil

Administrator•9 years ago

2 Replies

April Hematology Times: "How vitamin D fights lymphoma" and "Low doses of imatinib promote hematopoiesis"

Some articles from Hematology Times (free membership) on research that may be worth keeping an eye on: How vitamin D fights lymphoma...

Some articles from Hematology Times (free membership) on research that may be wo...

AussieNeil

Administrator•9 years ago

4 Replies

Forgotten Cancer Projects

Cancer council Victoria is hoping to try to improve understanding of the less common cancers. CLL being one. I got a request to become a volunteer not sure how...

Cancer council Victoria is hoping to try to improve understanding of the less co...

Elliot43

•9 years ago

4 Replies

Imbruvica

Any one heard about this medicine? Is it for CLL? thanks

AAli

•9 years ago

8 Replies

I'm new to this game...

Hi All, Glad to find a friendly looking forum of people facing a similar challenge. I was diagnosed last July having had pneumonia in Feb 2014 and follow up...

Hi All, Glad to find a friendly looking forum of people facing a similar chall...

Catherine67

•9 years ago

13 Replies

New sampling device promises to make blood tests needle-free

Hands up who likes needles? As I suspected, a very poor show of hands... :( So I expect that the US$3 million research funding by Defense Advanced Research...

Hands up who likes needles? As I suspected, a very poor show of hands... :( So...

AussieNeil

Administrator•9 years ago

1 Reply

Milk does a body good.

Might be pertinent. I always take my vitamins since beginning treatment. I checked my old blood work after reading this and sure enough, low vitamin D levels...

Might be pertinent. I always take my vitamins since beginning treatment. I check...

Justasheet1

•9 years ago

Be the first to reply

INNERBODY

Love this site which I accidentally came across. Spend a little time and play around, you learn a lot from it, good for the brain. http://www.innerbody.com/

Love this site which I accidentally came across. Spend a little time and play ar...

shazie

•9 years ago

3 Replies

I have been lurking for awhile.....

I am a new member and have finally decided to post. I was diagnosed in April, 2014 after a fall and trip to the ER. I am stage 0 and watch and wait. I am happy...

I am a new member and have finally decided to post. I was diagnosed in April, 20...

meemsdream

•9 years ago

14 Replies

Received Shingles shot before CLL diagnosis....

I was diagnosed with CLL in April of 2014.About 3 years prior to that I received the shingles shot. I am wondering if that will be any help to me or if it will...

I was diagnosed with CLL in April of 2014.About 3 years prior to that I received...

meemsdream

•9 years ago

9 Replies

How Cancer Saved My Life

I made a conscious effort from the moment of my diagnosis to view cancer as a thing that happened to me but was not me. Many of us may see ourselves in her...

I made a conscious effort from the moment of my diagnosis to view cancer as a th...

shazie

•9 years ago

Be the first to reply

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2015

Got a Question about Blood Tests?

BLOOD COUNTS

Pointers for starting FCR

Maximum expectatncy for Surviving with CLL (initial phase or Watch n wait)

Do FCR trials ever end early when the results are very favorable?

Initials,initials,initials......

We're stuck with passwords: Here's how to make them work better for you

Chest infection

Less is the new more: choosing medical tests and treatments wisely

Belle Gibson and Culture as moral antibodies - does society appropriately deal with health charlatans?

flu vacsinations

Pneumonia vaccinations in Australia

Side effects of ciclosporin

experience CLL Ibrutinib Colitis

Can you Fly When you Have Cancer?

FOODFACTS

Black Seed For Treatment Of Cancer

Update on Oxford...

CLL Research Consortium In San Diego

Sugar: However much you might want it, you really don't need it

April Hematology Times: "How vitamin D fights lymphoma" and "Low doses of imatinib promote hematopoiesis"

Forgotten Cancer Projects

Imbruvica

I'm new to this game...

New sampling device promises to make blood tests needle-free

Milk does a body good.

INNERBODY

I have been lurking for awhile.....

Received Shingles shot before CLL diagnosis....

How Cancer Saved My Life

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