Posts - CLL Support | HealthUnlocked

"Our highly focused and custom next generation sequencing panel for CLL affords excellent depth of detection of variants in genes of high prognostic value...

Administrator•9 years ago

2 Replies

Next Generation Sequencing Panel Focus::CLL (TM) Selected for Use in Global Clinical Trial

"Our highly focused and custom next generation sequencing panel for CLL affords ...

Administrator•9 years ago

I am being treated for pneumonia at the hospital. My blood cultures and sputum have not grown anything. Viral panel was negative last week. I am in a...

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Pneumonia from Idelalisib

I am being treated for pneumonia at the hospital. My blood cultures and sputum h...

Justasheet1

•9 years ago

23 Replies

Taken off ibrutinib

My neutrophil count has been extremely low on ibrutinib even with regular injections of GCSF, last Thursday my count was 0.1 so was advised to stop ibrutinib...

My neutrophil count has been extremely low on ibrutinib even with regular injec...

JanetG

•9 years ago

Catching up from the ASH meeting, here is more from these two experts with their perspectives on the latest medicines....

Gribben and Hillmen (UK Experts) Talk about CLL Drugs

Catching up from the ASH meeting, here is more from these two experts with their...

Hi been to hosp today for another health issue,the doctor looked my blood tests up,she said my FBC had gone down a bit to 10.5 and my Lymphecot was 16,she...

•9 years ago

3 Replies

Blood Tests

Hi been to hosp today for another health issue,the doctor looked my blood tests ...

sun_flower

•9 years ago

11 Replies

Scary berries: how food gets contaminated and what to do (Hepatitis A cases in Australia)

Australia is currently experiencing a Hepatitis A scare, with so far 9 people thought to have contracted the disease from contaminated frozen berries sourced...

Australia is currently experiencing a Hepatitis A scare, with so far 9 people th...

The last few days I have had some minor lower intestinal discomfort, more recently (last two days) I have noticed a fair amount of blood in / on my stools....

Administrator•9 years ago

7 Replies

New maybe unrelated symtom

The last few days I have had some minor lower intestinal discomfort, more recent...

Paul_Mangold

•9 years ago

This article by Jeffrey Craig, Principal Research Fellow and Marguerite Evans-Galea, Research Scientist, both from the Genetic Health Research at Murdoch...

An insight into the life of a Medical Research Scientist

This article by Jeffrey Craig, Principal Research Fellow and Marguerite Evans-Ga...

Administrator•9 years ago

"New research suggests more than 1 billion data records were stolen from more than 1,500 individual data breaches last year... Data breaches were up by 49...

1 billion data records were stolen last year, thanks to poor security

"New research suggests more than 1 billion data records were stolen from more th...

Administrator•9 years ago

I was diagnosed with cll around 4years ago. From what I can tell myl lymphocyte count is good at 39 however I have enlarged lymph nodes everywhere. Recently...

Enlarged nodes but ALC good. Dr recommends FLAIR trial. Anyone else in same situation?

I was diagnosed with cll around 4years ago. From what I can tell myl lymphocyte ...

fraggley

•9 years ago

9 Replies

Night sweats increasing

Hi, I am newly diagnosed (2 months) and my latest WBC was 27,000. That was was 3,00 less than the month before but I understand that is insignificant in terms...

Hi, I am newly diagnosed (2 months) and my latest WBC was 27,000. That was was ...

Hidden

•9 years ago

3 Replies

CLL

Thanks to everybody that replied to my questions you have been very helpful....

john133

•9 years ago

Here's laboratory science expert Dr. Susan Leclair answering more of your questions that help you better understand your blood test results....

Understanding Your Blood Test

Here's laboratory science expert Dr. Susan Leclair answering more of your questi...

•9 years ago

Hi everyone, I think that chlorambucil was mainly used for CLL treatment before FRC was formulated. Today, chlorambucil is sometimes used instead of FCR....

chlorambucil

Hi everyone, I think that chlorambucil was mainly used for CLL treatment before...

Miee

•9 years ago

2 Replies

lung issues following fcr

Does anyone have experience with lung problems following fcr? My husband completed 6 cycles of fcr last April. Since has been ill three times with lung...

Does anyone have experience with lung problems following fcr? My husband comple...

dwolden

•9 years ago

16 Replies

Doubled wbc count good or bad?

So my father in laws latest test results came back after a week of chlorambucil... Wbc down to 51 (from 100), platelets down to 10 (from 40) at diagnosis......

So my father in laws latest test results came back after a week of chlorambucil....

marcelarr

•9 years ago

The recently introduced Follow function allows you to: 1) Follow posts of interest 2) Follow the contributions of selected members Members that would prefer...

Follow Feature Enhancement - you can now opt out of being followed

The recently introduced Follow function allows you to: 1) Follow posts of intere...

Administrator•9 years ago

Friends This cautionary tale is full of so many errors and lessons it is well worth our time. Scary stuff. Please check out the story and video and my...

'Double Dare' Host Marc Summers Reveals His Bout with CLL (Chronic Lymphocytic Leukemia): Lessons, Errors and Omissions

Friends This cautionary tale is full of so many errors and lessons it is well w...

bkoffman

CLL CURE Hero•9 years ago

1 Reply

Is Bendamustine better than FCR?

Just catching up here. People may wonder if they'd be better off with Bendamustine than the old standby, FCR. Apparently not as we hear in this video from...

Just catching up here. People may wonder if they'd be better off with Bendamusti...

•9 years ago

One thing I've learned recently from references provided by Cllcanada and SeymourB is that our immune protection in our skin is quite different from that in...

Researchers shed new light on skin-based immune system

One thing I've learned recently from references provided by Cllcanada and Seymou...

A program tonight that might be of interest - talking about the new drug treatments and trials run at the Royal Marsden collaborating with the Institute of...

Administrator•9 years ago

8 Replies

Panorama: Can You Cure My Cancer?, 2100 GMT, Wednesday 11 February, BBC One.

A program tonight that might be of interest - talking about the new drug treatm...

Myrddin

•9 years ago

4 Replies

Sore Throat

I was diagnosed in December 2014 with Stage A CLL,I have had a sore throat for 2 days should I be worried,??

I was diagnosed in December 2014 with Stage A CLL,I have had a sore throat for 2...

sun_flower

•9 years ago

28 Replies

New Treatment!

Hi Everybody, My blood counts have gone haywire. I finished a round of Chemotherapy (Ofatumumab/Bendamustine) in January 2013 and since...

Hi Everybody, My blood counts have gone haywire. I finis...

john133

•9 years ago

19 Replies

Biopsies don’t promote cancer spread, researchers report

Most of us have probably had a biopsy for a suspicious lump and those of us with SLL, may very well have been diagnosed by a biopsy on a swollen node. What...

Most of us have probably had a biopsy for a suspicious lump and those of us with...

Administrator•9 years ago

A month back, Johns Hopkins University researchers made big news with their conclusion from the analysis of scientific papers that in two thirds of cases,...

Why the causes of cancer are more than just random ‘bad luck’

A month back, Johns Hopkins University researchers made big news with their conc...

Administrator•9 years ago

Dear CLL friends: It is natural for all of us to want to do what we can to fight our cll and live better. For some that may include taking supplements. And...

What CLL Experts Say About Supplements

Dear CLL friends: It is natural for all of us to want to do what we can to fight...

•9 years ago

Hi all! I have just had my 3 monthly blood test results back. Can anyone tell me what they mean regarding how well or badly I am doing please? I was diagnosed...

Blood Results

Hi all! I have just had my 3 monthly blood test results back. Can anyone tell m...

hooper

•9 years ago

5 Replies

An Update from UK CLL "Superstar" Dr. George Follows

Dear CLL friends: One of my favorite CLL “teachers” is Dr. George Follows from Cambridge University in the UK. Here’s what he told us about the latest in CLL...

Dear CLL friends: One of my favorite CLL “teachers” is Dr. George Follows from C...