Posts - CLL Support | HealthUnlocked

CLL Support

22,500 members • 38,644 posts

All posts for February 2015

Attend online Town Meeting with CLL Experts

Friends, I will be hosting a 4 hour town meeting for CLL patients and family members from Phoenix, Arizona (Pacific Time) on Sunday March 29th. If you can come...

Friends, I will be hosting a 4 hour town meeting for CLL patients and family mem...

andrewschorr

•9 years ago

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just diagnosed from a blood test done in 2009

Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a breast screening 10 days later I saw a Haematologist that said from a bood test in...

Hi im 58yrs old I was diagnosed at first with Non Hodgkins Lymphoma after a brea...

mush56

•9 years ago

8 Replies

Enlarged lymp nodes in abdominal area.

Third year on W&W. Recent CT scan shows a substantial growth in the size of lymp glands on the abdominal area. Although my counts are still in an acceptable...

Third year on W&W. Recent CT scan shows a substantial growth in the size of lymp...

Soflajoe

•9 years ago

13 Replies

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Where am I heading.

Was diagnosed in sept 2010 and been on watch and wait since. Don't have any of the normal systems but wbc has gradually rise to 110. Haemoglobin and platelets...

Was diagnosed in sept 2010 and been on watch and wait since. Don't have any of t...

happymac

•9 years ago

3 Replies

old news but uplifting

Leukaemia: Cardiff University breakthrough in disease treatmentBy Carwyn Jones BBC News Jump media playerMedia player helpOut of media player. Press enter...

Leukaemia: Cardiff University breakthrough in disease treatmentBy Carwyn Jones ...

Hidden

•9 years ago

1 Reply

From the BBC News

Leukaemia changes 'almost inevitable', researchers sayJames Gallagher By James Gallagher Health editor, BBC News website Old man Continue reading the main...

Leukaemia changes 'almost inevitable', researchers sayJames Gallagher By James ...

Hidden

•9 years ago

3 Replies

Celebrate your fat – it's fighting off infection!

From the New Scientist: "Beyond physical barriers such as skin, our main protection against marauding bacteria and viruses is the immune system. This is a...

From the New Scientist: "Beyond physical barriers such as skin, our main protect...

AussieNeil

Administrator•9 years ago

1 Reply

3D engineered bone marrow-like material produces functioning human platelets

I think we are all aware of how important platelets are, particularly if we've undergone treatment. They don't last long in the body, necessitating weekly...

I think we are all aware of how important platelets are, particularly if we've u...

AussieNeil

Administrator•9 years ago

1 Reply

The Emperor of All Maladies - PBS documentary

LLS newsletter I received announced an upcoming documentary based on the renown primer on cancer. ******** Found a blurb and a PBS link with trailer:...

LLS newsletter I received announced an upcoming documentary based on the renown ...

gemit2000

•9 years ago

1 Reply

Dr. Kipps and his Perspectives on the Latest For CLL

Some of you know one of the most devoted CLL researchers in the world is my friend Dr. Tom Kipps from San Diego, California. We caught up with him at the ASH...

Some of you know one of the most devoted CLL researchers in the world is my frie...

andrewschorr

•9 years ago

1 Reply

FLAIR Trial – ErnieUK: Red and White Cell Cytopenias before round 3 FCR

I’m happily into round 3 of the FCR arm of the FLAIR trial now, with a couple of hiccups on the way. As always please correct me on any errors/omissions and...

I’m happily into round 3 of the FCR arm of the FLAIR trial now, with a couple of...

Ernest2

•9 years ago

15 Replies

C diff IS difficult to treat!

I fought Cdiff for 9 months before I could begin Chemo; NO antibiotic 'worked' to control it...including the ultra-expensive Vancomycn (which my insurance...

I fought Cdiff for 9 months before I could begin Chemo; NO antibiotic 'worked' t...

katier

•9 years ago

2 Replies

Is this a better way to develop new antibiotics?

Ezekiel J. Emanuel is an oncologist and a vice provost at the University of Pennsylvania who has a suggestion on how we might overcome the growing problem of...

Ezekiel J. Emanuel is an oncologist and a vice provost at the University of Penn...

AussieNeil

Administrator•9 years ago

Be the first to reply

Dr Google can improve older people’s health – if we bridge the technology gap

Perhaps of particular interest to those with a passion for helping the less IT literate of our community gain access to helpful and accurate health advice,...

Perhaps of particular interest to those with a passion for helping the less IT l...

AussieNeil

Administrator•9 years ago

Be the first to reply

Secret to health benefits of sunshine is more than vitamin D

We know that vitamin D levels are one of the factors that influences our likely prognosis with CLL. It seems that there is still a great deal we need to learn...

We know that vitamin D levels are one of the factors that influences our likely ...

AussieNeil

Administrator•9 years ago

14 Replies

Up to two-thirds of smokers will die from their smoking, on average ten years early

For those that have missed the latest news on how the health impact of smoking has now been assessed as being far greater than previously determined, here's...

For those that have missed the latest news on how the health impact of smoking h...

AussieNeil

Administrator•9 years ago

3 Replies

The flip side of Ibrutinib; the roller coaster continues (atrial fibrillation / flutter)

The last few weeks have been pretty scary to say the least! Following my previous post about atrial flutter (like atrial fibrillation) starting about 4 months...

The last few weeks have been pretty scary to say the least! Following my previo...

charliegirl

•9 years ago

26 Replies

Looking up symptoms on line? These companies are tracking you.

"It’s 2015—when we feel sick, fear disease, or have questions about our health, we turn first to the internet. According to the Pew Internet Project, 72...

"It’s 2015—when we feel sick, fear disease, or have questions about our health, ...

AussieNeil

Administrator•9 years ago

4 Replies

Update on Leukaemia & Lymphoma Research’s work in Cardiff

"Cardiff has an internationally renowned team that focuses on CLL. This group, led by Professor Chris Pepper, recently developed a new model for...

"Cardiff has an internationally renowned team that focuses on CLL. This group, l...

AussieNeil

Administrator•9 years ago

6 Replies

Some promising pharmacological properties of Curcumin (Active ingredient in Turmeric)

While not specific to CLL, the following papers indicate that Curcumin, the pharmacologically active substance in turmeric, may somewhat mitigate some health...

While not specific to CLL, the following papers indicate that Curcumin, the phar...

AussieNeil

Administrator•9 years ago

4 Replies

A New Era is Coming up in the Treatment of Chronic Lymphocytic Leukemia

This is an interesting overview from Italy The survival of patients with chronic lymphocytic leukemia (CLL) has significantly improved in the last 30...

This is an interesting overview from Italy The survival of patients with chron...

Cllcanada

Newcomer

I was diagnosed with CLL last November after blood tests showed a white count reading of 25. I have been put on watch and wait and go back on 21st April. I...

I was diagnosed with CLL last November after blood tests showed a white count re...

essexman

•9 years ago

5 Replies

Update on my participation in an ABT199 clinical trial

I've been in a trial for Abt199 and Rituxin , did I spell that right, since last June or so , with no side effects that i can tell , life is normal. The good...

I've been in a trial for Abt199 and Rituxin , did I spell that right, since last...

Brian_nwIL

•9 years ago

10 Replies

Newcomer-Diagnosed with CLL July 2014

Thank you for this site. I've been reading some of the posts about night sweats and they all made me feel better. My diagnosis began at a community health...

Thank you for this site. I've been reading some of the posts about night sweats ...

wendyc40

•9 years ago

7 Replies

11q Deletion - Starting First Treatment Via Trial

Hi everyone. I will be starting my first treatment since having been on on watch and wait. I have signed up for a clinical trial that will offer me either FCR...

Hi everyone. I will be starting my first treatment since having been on on watch...

cfgsmith

•9 years ago

21 Replies

Ibrutinib seems to also affect T-cells

First time I have heard of this. Potentially very important for those with solid tumors. http://www.pnas.org/content/early/2015/02/09/1500712112.abstract

First time I have heard of this. Potentially very important for those with soli...

Hidden

•9 years ago

1 Reply

Explainer: how and why is research assessed?

Our hopes for better drugs to treat and hopefully soon cure our CLL are reliant on pertinent research. So how are research papers assessed and how does this...

Our hopes for better drugs to treat and hopefully soon cure our CLL are reliant ...

AussieNeil

Administrator•9 years ago

1 Reply

Beyond genetics: illuminating the epigenome (and how it may lead to curing genetic diseases)

Why do some people develop CLL, other cancers or non communicable diseases while others don't? We know that each of our body cells comes from just one cell at...

Why do some people develop CLL, other cancers or non communicable diseases while...

AussieNeil

Administrator•9 years ago

10 Replies

Chemical or natural: what’s the best way to repel mozzies?

As well as being annoying pests, mosquitoes are vectors for a range of diseases, which come with a range of distressing symptoms and are often difficult to...

As well as being annoying pests, mosquitoes are vectors for a range of diseases,...

AussieNeil

Administrator•9 years ago

3 Replies

Avatar help!

How do change your Avatar? I can't figure it out. Jeff

Justasheet1

•9 years ago

5 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for February 2015

Attend online Town Meeting with CLL Experts

just diagnosed from a blood test done in 2009

Enlarged lymp nodes in abdominal area.

Where am I heading.

old news but uplifting

From the BBC News

Celebrate your fat – it's fighting off infection!

3D engineered bone marrow-like material produces functioning human platelets

The Emperor of All Maladies - PBS documentary

Dr. Kipps and his Perspectives on the Latest For CLL

FLAIR Trial – ErnieUK: Red and White Cell Cytopenias before round 3 FCR

C diff IS difficult to treat!

Is this a better way to develop new antibiotics?

Dr Google can improve older people’s health – if we bridge the technology gap

Secret to health benefits of sunshine is more than vitamin D

Up to two-thirds of smokers will die from their smoking, on average ten years early

The flip side of Ibrutinib; the roller coaster continues (atrial fibrillation / flutter)

Looking up symptoms on line? These companies are tracking you.

Update on Leukaemia & Lymphoma Research’s work in Cardiff

Some promising pharmacological properties of Curcumin (Active ingredient in Turmeric)

A New Era is Coming up in the Treatment of Chronic Lymphocytic Leukemia

Newcomer

Update on my participation in an ABT199 clinical trial

Newcomer-Diagnosed with CLL July 2014

11q Deletion - Starting First Treatment Via Trial

Ibrutinib seems to also affect T-cells

Explainer: how and why is research assessed?

Beyond genetics: illuminating the epigenome (and how it may lead to curing genetic diseases)

Chemical or natural: what’s the best way to repel mozzies?

Avatar help!

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