Posts - CLL Support | HealthUnlocked

Here's a video we produced with a cancer center physician's assistant about protections for you and clinical trials....

Administrator•9 years ago

3 Replies

Allaying your fears about trials

Here's a video we produced with a cancer center physician's assistant about prot...

andrewschorr

•9 years ago

In a distant lymphatic system far far away... http://www.cll-nhl.com/2015/01/oncology-humor.html After a lengthy hiatus, Jeff Sharman shares this piece of...

What do research medical scientists do for fun?

In a distant lymphatic system far far away... http://www.cll-nhl.com/2015/01/on...

Friends, I found this discussion from OncLive that I just shared on blog: http://bkoffman.blogspot.com between Drs. Bryd, Furman and Kipps full of nuggets and...

Administrator•9 years ago

7 Replies

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Initiation and Discontinuation of Ibrutinib in Chromic Lymphocytic Leukemia (CLL)

Friends, I found this discussion from OncLive that I just shared on blog: http:...

bkoffman

CLL CURE Hero•9 years ago

7 Replies

What value screening for CLL?

We are well aware of public health cancer screening programs and I'm certain I'm not the only one here wondering if screening for CLL would help our community....

We are well aware of public health cancer screening programs and I'm certain I'm...

Hi, I am 28 year female, I am going to marriage after 1 month. I have higher symptoms of low estrogen and I am facing lower stomach problems from long time. I...

Administrator•9 years ago

8 Replies

Low Estrogen and stomach disorders

Hi, I am 28 year female, I am going to marriage after 1 month. I have higher sym...

Harprit

•9 years ago

1 Reply

Do you suffer badly from mosquito bites?

It seems that many of us are more susceptible to worse reactions from mosquito bites after we develop CLL. Do you suffer more or less from insect bites than...

It seems that many of us are more susceptible to worse reactions from mosquito b...

I have no clue if this is related to the CLL or not- I had lymp nodes behind the ear really bothering me and acting 'strange' about 10 days or so ago. I...

Administrator•9 years ago

11 Replies

Huge nodules in back of head

I have no clue if this is related to the CLL or not- I had lymp nodes behind the...

rlyndecker

•9 years ago

30 Replies

Something’s better than nothing when it comes to keeping active

Editors at "The Conversation" just published this article based on two recent papers in the BMJ, arguing that "physical activity guidelines should focus on...

Editors at "The Conversation" just published this article based on two recent pa...

Administrator•9 years ago

does anybody have experience of this combination?? my husband has been having ivig for nearly 4 years every 28 days being p17 deletion.......... he started...

Ibrutinib and IVIG

does anybody have experience of this combination?? my husband has been having i...

lartington

•9 years ago

13 Replies

Gene mutation and inflammatory GI tract disease

We need to be assessing CLL and its effects on our health in a broad context. This article quite fascinating in possibly linking a frequent gene mutation in...

We need to be assessing CLL and its effects on our health in a broad context. Th...

ThreeWs

•9 years ago

12 Replies

Health Effects of Marijuana Legalization in Colorado

Several US states, including Colorado, have recently legalised marijuana. Psychiatry Advisor have highlighted an opinion piece published in JAMA Psychiatry...

Several US states, including Colorado, have recently legalised marijuana. Psych...

Administrator•9 years ago

Sally Wortley, Research Fellow and PhD candidate School of Public Health and Deme Karikios, PhD Candidate, NHMRC Clinical Trials Centre and Clinical Lecturer...

Should the public have a say in high-cost drug subsidies?

Sally Wortley, Research Fellow and PhD candidate School of Public Health and De...

Administrator•9 years ago

I am having painful lymph nodes on the right side of my neck it started all about three weeks ago. My lymph nodes are about 2 cm It is affecting my neck it...

Painful lymph nodes

I am having painful lymph nodes on the right side of my neck it started all abou...

Hidden

•9 years ago

15 Replies

Interesting Article

http://www.cancerprogress.net/cca/advance-year "Advance of the Year"

SBMACLL

•9 years ago

As I reported in recent post about my bloods for the start of round 2, I got into problems with the anti-sickness medication for round 2, and despite trying to...

FCR Round 2 Uncontrolled Sickness

As I reported in recent post about my bloods for the start of round 2, I got int...

Ernest2

•9 years ago

22 Replies

Cycle 1 of BR compared to FCR, and any advice regarding Port v. PICC line please?

I had 5 cycles of FCR four years ago, and although the nausea was dreadful, I didn’t miss a day of work as I’d timed the treatment each month to start the day...

I had 5 cycles of FCR four years ago, and although the nausea was dreadful, I di...

Ruhi9

•9 years ago

14 Replies

Stress fracture

Hi I'm jan I was diagnosed 2yrs ago with a stress fracture on my left foot,after tripping of a step,4x rays showed nothing,I am a diabetic type 1 ,and have...

Hi I'm jan I was diagnosed 2yrs ago with a stress fracture on my left foot,after...

Browny12

•9 years ago

3 Replies

Other illnesses associated with CLL?

Hi all, Most of us are aware that fatigue and tiredness are commonly associated with CLL and indeed may have been the very reason for going to the doctors...

Hi all, Most of us are aware that fatigue and tiredness are commonly associated...

Foggymind

•9 years ago

26 Replies

8 ‘Foods’ Americans Eat that are Banned in Other Countries

I was truly troubled reading this article. It made me wonder. Some of us are lucky to live in this country and be able to have access to the newest and most...

I was truly troubled reading this article. It made me wonder. Some of us are luc...

shazie

•9 years ago

CLL is not the only cancer where the blood serum level of vitamin D has been found to correlate with survival time: Vitamin D May Boost Colon Cancer Survival,...

Vitamin D and cancer in the news (again)

CLL is not the only cancer where the blood serum level of vitamin D has been fou...

Apologies for the delay in posting this as I’ve had some issues with the anti-sickness control medication during round 2, that I’ll post on separately. So...

Administrator•9 years ago

4 Replies

FLAIR Trial - ErnieUK Bloods before round 2 FCR

Apologies for the delay in posting this as I’ve had some issues with the anti-si...

Ernest2

•9 years ago

I replied to Purrdog a few weeks ago, re the problems he was having with atrial fibrillation (AF) while on ibrutinib. I had experienced some palpitations at...

The flip side of ibrutinib? Atrial fibrillation/flutter

I replied to Purrdog a few weeks ago, re the problems he was having with atrial ...

charliegirl

•9 years ago

Sorry if I didn't give you the correct link before for the survey to get your opinion on what would be helpful for 2015. Thanks for doing this! Andrew...

The correct Link for the Patient Power Survey

Sorry if I didn't give you the correct link before for the survey to get your op...

andrewschorr

•9 years ago

Is Healthunlocked a business ,how is it funded ? i am aware this is a CLL forum , but do not really know who would give me this answer .

Business

Is Healthunlocked a business ,how is it funded ? i am aware this is a CLL forum ...

Hidden

•9 years ago

According to Wikipedia, "Big Data is an all-encompassing term for any collection of data sets so large or complex that it becomes difficult to process them...

How Big Data can save lives by diagnosing NHS healthcare failings

According to Wikipedia, "Big Data is an all-encompassing term for any collection...

Matthew Cooper, Prof. Institute for Molecular Bioscience at The University of Queensland, Australia, has written a very informative article about why we are...

Administrator•9 years ago

1 Reply

Why is it so hard to find new antibiotics to beat superbugs?

Matthew Cooper, Prof. Institute for Molecular Bioscience at The University of Q...

Administrator•9 years ago

Interesting insight into the revenues of the best selling cancer drugs in the USA. Many are familiar to us; Imbruvica of course and Revlimid (Lenalidomide),...

Imbruvica is on track to be a top seller for J&J and Pharmacyclics for years to come

Interesting insight into the revenues of the best selling cancer drugs in the US...

Hi, my name is Sheryl and I am 49 and been diagnosed with Cll for less than 1 year. I am in watch and wait and I have 17p del. and am currently seeing a...

Administrator•9 years ago

1 Reply

Newly diagnosed

Hi, my name is Sheryl and I am 49 and been diagnosed with Cll for less than 1 ye...

Smac29

•9 years ago

26 Replies

Health Check: four key ways to improve your brain health

Many of us struggle with brain fog related to CLL fatigue, so anything that helps our brains work better has to help. Anthony Hannan, Head of Neural...

Many of us struggle with brain fog related to CLL fatigue, so anything that help...

Administrator•9 years ago