Posts - CLL Support | HealthUnlocked

Hi everyone, just thought I would post an update on my axillary node biopsy. The results showed that there was no evidence of RT in my lymph node. This good...

Administrator•10 years ago

11 Replies

Richters Biopsy Update

Hi everyone, just thought I would post an update on my axillary node biopsy. The...

norahmaria

•10 years ago

14 Replies

Sepsis and CLL

I'd really like to ask anyone who has had experience of CLL if they have ever been admitted to hospital with sepsis . I was diagnosed with CLL a yr ago then...

I'd really like to ask anyone who has had experience of CLL if they have ever be...

Pixie1908

•10 years ago

24 Replies

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Remission...

Is it at all possible for CLL/SLL to disappear without medical intervention? Although I still have swollen lymph nodes (neck, armpits, etc), my WBC are...

Is it at all possible for CLL/SLL to disappear without medical intervention? ...

peas50

•10 years ago

7 Replies

Make Dr Sharman's blog better

Dr Jeff Sharman has been translating the complexities of CLL and its treatment into everyday language for several years. So it is really pleasing to see that...

Dr Jeff Sharman has been translating the complexities of CLL and its treatment i...

On the eve of starting Ibrutinib, can anybody share with me the effects this drug has on blood levels? I have been told all will improve, but in the early...

Administrator•10 years ago

7 Replies

Ibrutinib

On the eve of starting Ibrutinib, can anybody share with me the effects this d...

lartington

•10 years ago

35 Replies

Video, Dr George Follows discusses the role of patients in aiding access to new medicines

The current financial climate and the arrival of expensive long term novel therapies to treat CLL is causing much debate about what government can afford....

The current financial climate and the arrival of expensive long term novel thera...

Founder Admin•10 years ago

Different drug combinations have different toxicity profiles, associated complications and efficacy. Requiring lengthy discussion between patients and their...

Video, Dr George Follows discusses CLL treatment choices and side effects

Different drug combinations have different toxicity profiles, associated complic...

Founder Admin•10 years ago

Nick's Story: CLL diagnosis; impact and challenges for the family, and talking to his children Nick shares with us: How he was diagnosed How hard it was...

Archive of latest CLLSA videos

Nick's Story: CLL diagnosis; impact and challenges for the family, and talking t...

Founder Admin•10 years ago

I am so proud of my wife of 29 years, Esther, for being a panelist at a recent town meeting for CLL patients in Seattle and being open about her experience as...

My Wife, Esther, Shares Perspective of Cancer Caregiver

I am so proud of my wife of 29 years, Esther, for being a panelist at a recent t...

andrewschorr

•10 years ago

4 Replies

Absolute Lymphocyte Count

People posted about the doubling rate etc. well mine doubled in a month but maybe it's just a strange fluke??? IF I DID IT RIGHT: 8/7/1429.74 (WBC)...

People posted about the doubling rate etc. well mine doubled in a month but may...

rlyndecker

•10 years ago

9 Replies

8 year anniversary

Hi All, Today at this time 8 years ago I was in my GP's office having just been ordered to go to a hospital for tests that confirmed his suspicion of CLL....

Hi All, Today at this time 8 years ago I was in my GP's office having just been...

ThreeWs

•10 years ago

10 Replies

Are you sitting comfortably? (part 2)

We've all heard the bad news about the health risks associated with being sedentary, which for many of us that are struggling with CLL related fatigue, is...

We've all heard the bad news about the health risks associated with being sedent...

Administrator•10 years ago

Hi friends Dr. John Byrd has a sweet and realistic one minute video on his hopes for a CLL cure that I published with my commentary on my blog...

"Bake a Cake of Cure"

Hi friends Dr. John Byrd has a sweet and realistic one minute video on his hope...

bkoffman

CLL CURE Hero•10 years ago

Apologies if I've asked this before but has anyone taken supplements of Beta glucans to help boost their immune system? it has been recommended to us whilst...

Beta glucans

Apologies if I've asked this before but has anyone taken supplements of Beta glu...

Christine15

•10 years ago

13 Replies

I am a mutant

Cells in my blood, white blood corpuscles to be precise, have mutated and developed a sort of Lazarus capacity to live longer than the average cell. In a...

Cells in my blood, white blood corpuscles to be precise, have mutated and develo...

mikedicks

•10 years ago

25 Replies

CLL

Can any body tell me the best hospital or doctor to see privately in England for treatment of CLL?

Can any body tell me the best hospital or doctor to see privately in England fo...

bettogent

•10 years ago

11 Replies

Four things you should know about gene patents

Australia's Federal Court recently decided that gene patenting is permitted in Australia, yet in the USA, "a landmark ruling by the US Supreme Court in June...

Australia's Federal Court recently decided that gene patenting is permitted in A...

Before we had ibrutinib and idelalisib and the other TKIs in the pipelines, for those of us wanting to avoid myelosuppressive therapies, we had HDMP +R. Dr....

Administrator•10 years ago

3 Replies

Want to avoid chemotherapy or taking an expensive medication forever for your CLL? I may have a clinical trial for you.

Before we had ibrutinib and idelalisib and the other TKIs in the pipelines, for ...

bkoffman

CLL CURE Hero•10 years ago

6 Replies

Can't see what I'm typing, STILL!

I'm so sick of trying to post, like now, and having no idea what shows on the screen because of the stupid green bar blocking the first line, sometimes two. I...

I'm so sick of trying to post, like now, and having no idea what shows on the sc...

MsLockYourPosts

Passed Volunteer•10 years ago

I teach in a public school where a student was just diagnosed with Whooping cough (student had been vaccinated). Student was NOT in my class, but many of my...

Whooping Cough

I teach in a public school where a student was just diagnosed with Whooping coug...

rlyndecker

•10 years ago

4 Replies

Dr George Follows discusses the role of CLL patients with oral therapies and new medicines.

In this next video from Dr follows; the importance of compliance with taking maintenance medication is discussed and how this is now coming to CLL with the new...

In this next video from Dr follows; the importance of compliance with taking mai...

Founder Admin•10 years ago

Rebecca Bechhold, MD, writes for medical professionals and her latest article is in response to the American Society of Clinical Oncology's recently published...

I’m Tired! Is There a Pill for That?

Rebecca Bechhold, MD, writes for medical professionals and her latest article is...

Many of us know Dr. Susan Leclair, professor of Laboratory Science at Univ of Mass., is the best! Now we are starting a new video series with her on...

Administrator•10 years ago

3 Replies

Getting you doctor to speak English!

Many of us know Dr. Susan Leclair, professor of Laboratory Science at Univ of Ma...

andrewschorr

•10 years ago

9 Replies

Nanotech Methods May Be the Future of Cancer Treatment

At Rice University they are blowing up cancer cells with nanoparticle "bombs." Like integrative immunotherapy, the new cancer-fighting technique kills cancer...

At Rice University they are blowing up cancer cells with nanoparticle "bombs." L...

shazie

•10 years ago

In his latest Blog, Dr Sharman explains the difference between "prognostic" and "predictive" biomarkers as an introduction to articles available via pubmed...

Dr Jeff Sharman - Predicting outcome to therapy

In his latest Blog, Dr Sharman explains the difference between "prognostic" and ...

Administrator•10 years ago

Many of us are taking advantage of Cloud Services Storage, such as Apple iCloud, Dropbox, Google Drive and Microsoft OneDrive. It is low cost if not free,...

How to lock down your personal cloud

Many of us are taking advantage of Cloud Services Storage, such as Apple iCloud,...

This article is part of an interesting "The Conversation’s" International Health Systems series, where possible opportunities for improving Australia's Health...

Administrator•10 years ago

8 Replies

Creating a better Health System - Lessons from England

This article is part of an interesting "The Conversation’s" International Health...

Dr George Follows of Cambridge University Hospitals, discusses clinical trials for CLL patients Clinical trials are not for everyone. Discussion about...

Administrator•10 years ago

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CLL Clinical trials explained: Video from Dr George Follows and article for patients/carers from Professor Peter Hillmen

Dr George Follows of Cambridge University Hospitals, discusses clinical trials f...