Posts - CLL Support | HealthUnlocked

Founder Admin•10 years ago

Educational CLL information from the CLL Support Association Cambridge meeting 2014 Part 1- Chronic Lymphocytic Leukaemia; an overview In this talk...

Chronic Lymphocytic Leukaemia: "an overview" & "New treatment options". Dr George Follows - CLLSA meeting June 2014

Educational CLL information from the CLL Support Association Cambridge meeting ...

Founder Admin•10 years ago

Dunno about you guys, but some of the terminology the consultants use baffles the hell out of me... I have no clue what my leukocyte count is, or if the...

So just what IS a b-cell anyway?

Dunno about you guys, but some of the terminology the consultants use baffles th...

DMF_online

•10 years ago

8 Replies

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early stage

I have a level of 142 up from118. I feel fine, platelets good, doc not terribly worried yet. Is there any natural way, possibly, that I can lower my white cell...

I have a level of 142 up from118. I feel fine, platelets good, doc not terribly ...

Robertaann52

•10 years ago

6 Replies

When Sportswriters Cover the Cancer Beat: The Uneven Reporting of the Bob McNair CLL (chronic lymphocytic leukemia) and Skin Cancer Story:

The story of Bob McNair and his struggle with CLL and skin cancer offers us several cautionary themes to explore that I try to tease out on my blog:...

The story of Bob McNair and his struggle with CLL and skin cancer offers us seve...

bkoffman

CLL CURE Hero•10 years ago

Almost one in six doctor visits in the USA will be virtual this year, according to this article in Computer World:...

How long before you virtually see your doctor?

Almost one in six doctor visits in the USA will be virtual this year, according ...

Yes Cll and other medical conditions change your life all right. We have moved into a retirement block. I am not even 60 yet and my husband is only 62 and not...

Administrator•10 years ago

3 Replies

Lifestyle changes

Yes Cll and other medical conditions change your life all right. We have moved i...

jangreen

•10 years ago

7 Replies

Can Australians access a compassionate access scheme for Ibrutinib?

Does anyone in the UK know if Australians are able to access the compassionate access program to Ibrutinib over there? Janssen says there is no compassionate...

Does anyone in the UK know if Australians are able to access the compassionate a...

MJN44

•10 years ago

Does anyone have experience or advice about using these mushrooms? They are pretty expensive…. Thanks!

Agaricus Blazeii Murilli

Does anyone have experience or advice about using these mushrooms? They are pre...

romarin

•10 years ago

8 Replies

Richters update

Hi everyone, just thought I would post an update re my richters tranformation. As i have seen an increase in sweats, my co sultant arranged another ct scan....

Hi everyone, just thought I would post an update re my richters tranformation. A...

norahmaria

•10 years ago

20 Replies

How do you cope with the fatigue? Or is it just me?

I'd really value your opinions. I've been "watch and wait" for 18 months. Recently my bloods results haven't been so good. But my general tiredness lately has...

I'd really value your opinions. I've been "watch and wait" for 18 months. Recent...

DMF_online

•10 years ago

23 Replies

Five of the best voice recording apps available for Android

Have an Android device (smart phone/tablet) and want to record your next meeting with your specialist? This TechRepublic review might help you chose the best...

Have an Android device (smart phone/tablet) and want to record your next meeting...

Administrator•10 years ago

Hi Friends, On my blog (http://bkoffman.blogspot.com), I have commented on the extensive black box warnings on the label for idelalisib or ZYDELIG that is a...

Zydelig: The Black Box Warnings for use in CLL

Hi Friends, On my blog (http://bkoffman.blogspot.com), I have commented on the ...

bkoffman

CLL CURE Hero•10 years ago

My husband's anemia (PRCA) isn't responding to cyclosporine, so we're looking into other treatments. Thanks :)

I'm looking for info re: Zenapax (daclizumab)

My husband's anemia (PRCA) isn't responding to cyclosporine, so we're looking in...

LAinNYC

•10 years ago

4 Replies

CLL patients/carers meeting Scotland, September 22nd - places and support with travel available.

Dear members there are places available for you to join us in Glasgow for our first meeting in Scotland to provide CLL support in the north. This is an...

Dear members there are places available for you to join us in Glasgow for our fi...

By Dr Alicia White provides many useful tips to help you determine whether health and health care news is pertinent in NHS Choices:...

Founder Admin•10 years ago

5 Replies

How to read health news

By Dr Alicia White provides many useful tips to help you determine whether healt...

Administrator•10 years ago

The great war started 100 years ago and towards the end of that war, a flu pandemic caused about 50 million deaths worldwide; far more than the deaths from...

World War One’s role in the worst ever flu pandemic - lessons for us 100 years later

The great war started 100 years ago and towards the end of that war, a flu pande...

Administrator•10 years ago

This site supports a limited range of emoticons - perhaps better known as smileys, which I've worked out via trial and error. There may well be others!...

Using Emoticons (smileys) to brighten your submissions

This site supports a limited range of emoticons - perhaps better known as smiley...

Gall bladders, who would have one Wish I did'nt have mine Surgeon said " we'll cut it out" Anaesthetist said "Eh! hang about" White cells are to high to cut...

Administrator•10 years ago

7 Replies

Still learning how to Post!

Gall bladders, who would have one Wish I did'nt have mine Surgeon said " we'll c...

wroxham-gb

•10 years ago

6 Replies

copd + leukemia

diagnosed mild copd nov 13 possible heart failure awaiting 24 hr monitor know probable leukemia cll wbc count 15.4 , 12 , 13.8 await confirm 18/08/14 i'm...

diagnosed mild copd nov 13 possible heart failure awaiting 24 hr monitor know...

mickymouse123

•10 years ago

2 Replies

Chronic Lymphocytic Leukaemia: "an overview" & A look at the future of CLL treatment: "New treatment options". Dr George Follows - June 2014

The following video/webcasts were produced in Cambridge June 2014 from talks by Dr George Follows of Cambridge University Teaching Hospitals NHS Foundation...

The following video/webcasts were produced in Cambridge June 2014 from talks by ...

My FCR treatment has been stopped after 2 courses due to a new problem - fluid on my lungs. I am awaiting another bone marrow biopsy and CT scan. Depending...

Founder Admin•10 years ago

8 Replies

CLL specialists ?

My FCR treatment has been stopped after 2 courses due to a new problem - fluid o...

Haileybury

•10 years ago

2 Replies

Extending HealthUnlocked on Patient Power

We have just added a feed from this HealthUnlocked community to our CLL Community home page at: http://www.patientpower.info/chronic-lymphocytic-leukemia So...

We have just added a feed from this HealthUnlocked community to our CLL Communit...

andrewschorr

•10 years ago

10 Replies

Finding Out What';s Helpful to You Online

Greetings from sunny Seattle. My group, Patient Power, launched our "summer survey" the other day to help all of us better understand the needs of patients and...

Greetings from sunny Seattle. My group, Patient Power, launched our "summer surv...

andrewschorr

•10 years ago

3 Replies

Why bad food is good for business

Rosemary Stanton, Nutritionist & Visiting Fellow at UNSW and Christina Pollard, Research Fellow, School of Public Health at Curtin University, Australia have...

Rosemary Stanton, Nutritionist & Visiting Fellow at UNSW and Christina Pollard, ...

Administrator•10 years ago

It won't be news to regular readers, but here's a summary of the treatment changes recently approved and on the way from Medscape News:...

Treatment for CLL: Change Aplenty, More Coming

It won't be news to regular readers, but here's a summary of the treatment chang...

Hi Friends, What a great week for us CLLers. First FDA approval of idelalisib, then the positive recommendation for approval for idelalisib and ibrutinib in...

Administrator•10 years ago

2 Replies

Details and Analysis of the FDA Approved Indications for Idelalisib PLUS Links for Financial Help

Hi Friends, What a great week for us CLLers. First FDA approval of idelalisib, ...

bkoffman

CLL CURE Hero•10 years ago

Which is by far better a title than the dry "Reducing pathogen transmission in a hospital setting. Handshake verses fist bump: a pilot study." Max Maxfield...

Fist Bumps & the Zombie Apocalypse

Which is by far better a title than the dry "Reducing pathogen transmission in a...

Rebecca Bechhold, MD has just blogged on the Cancer Network about the different and all equally right approaches of approaching cancer treatment. While...

Administrator•10 years ago

15 Replies

For the newly diagnosed and those needing treatment

Rebecca Bechhold, MD has just blogged on the Cancer Network about the different...

Administrator•10 years ago

It's just over a week since all HealthUnlocked communities moved to the new interface and many of us are still finding our way around. This quick guide is...

Quick guide to finding your way around our new website

It's just over a week since all HealthUnlocked communities moved to the new inte...