Posts - CLL Support | HealthUnlocked

•10 years ago

Hi everyone, does anypne have any experience of anti depressants when not on active treatment for cll ?

Cll and anti depressants

Hi everyone, does anypne have any experience of anti depressants when not on act...

norahmaria

•10 years ago

31 Replies

CT scan series part 8 – Authoritative viewpoints

On the Cautionary front: In his book “One Doctor” Prof. Brendan Reilly MD of Weill Medical College writes: “Seventy million CT scans are performed annually in...

On the Cautionary front: In his book “One Doctor” Prof. Brendan Reilly MD of Wei...

What!! you say you don't trust me?? I should have figured you guys to be a tough crowd(-; Well, I guess that is a good sign. Those who make claims should be...

•10 years ago

1 Reply

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CT scan series part 7 - Who is claiming CT overuse besides me...?

What!! you say you don't trust me?? I should have figured you guys to be a tough...

In the second part of my interview with Dr. Kay from Mayo that I just posted on my blog ( http://bkoffman.blogspot.com ), he talks about how a small resistant...

•10 years ago

3 Replies

ASH 2013: Dr. Neil Kay Discusses More about Clonal Evolutional and its Implications for Therapy

In the second part of my interview with Dr. Kay from Mayo that I just posted on ...

CLL CURE Hero•10 years ago

Why should the CLL patient not just follow the doctor's judgement to get a CT when ordered? There is admittedly a (milli?) gray area in arguing the question of...

CT scan series part 6 - Why don't we just trust our Doc's judgment?

Why should the CLL patient not just follow the doctor's judgement to get a CT wh...

•10 years ago

Once again I have a new result on my blood work this month- it says I have a "Nucleated RBC" and neither Dr. has said anything. Anyone know what that means in...

Nucleated RBC

Once again I have a new result on my blood work this month- it says I have a "Nu...

rlyndecker

•10 years ago

Hi everyone. I finished 12 months maintainence period of ofatamumab in november 2013 and since then have been experiencing very bad aching pains in my legs and...

Ofatumumab and leg pains ?

Hi everyone. I finished 12 months maintainence period of ofatamumab in november ...

norahmaria

•10 years ago

26 Replies

CT scan series part 5 – A bit about CT scanners

Let's first define some terms. I don't want to lose you in the detail of sievert (Sv) vs gray (Gy) as units of radiation measurement because there is no...

Let's first define some terms. I don't want to lose you in the detail of sievert...

But aren't we living with ionizing radiation all the time so what's the big deal? Correct, the average yearly exposure of a US resident is 3 to 3.2 mSv (milli...

•10 years ago

1 Reply

CT scan series part 4 - Everything needs context

But aren't we living with ionizing radiation all the time so what's the big deal...

•10 years ago

I had chemo (FC and 2 rituximab) in 2009. After 3 years remission the CLL transformed into Richters Syndrome in 2012. Had CHOP and entered into a trial...

Hi everyone, I've just joined up to this site having stumbled across it. I was diagnosed with CLL 2005 aged 45.

I had chemo (FC and 2 rituximab) in 2009. After 3 years remission the CLL transf...

norahmaria

•10 years ago

21 Replies

How long could one have CLL before it is diagnosed or symptoms appear? Does anyone else try to figure out HOW they got it...

I aks because I was exposed to agricultural chemicals spraying peaches in 97 and 98 - a blood test in 2011 suggested some issues with white blood cells but I...

I aks because I was exposed to agricultural chemicals spraying peaches in 97 and...

romarin

•10 years ago

19 Replies

Celebrating My Two Year Anniversary Today on Ibrutinib for My CLL

Hi friends Today I posted on my blog http://bkoffman.blogspot.com about the changes in my life and for the CLL community in the last two years since I started...

Hi friends Today I posted on my blog http://bkoffman.blogspot.com about the cha...

CLL CURE Hero•10 years ago

CT scans are but one of the most common diagnostic tools that use ionizing radiation to see inside our bodies to locate tumor tissue or lymphnodes that can...

I have just been diagnosed with CLL, my count is quite high. I am seeing the hematologist Monday. Is there ANY natural treatment at all ????

Robertaann52

•10 years ago

7 Replies

CT scan series part 3 - FOUNDATION FOR CONCERN

CT scans are but one of the most common diagnostic tools that use ionizing radia...

•10 years ago

even if my WBC go back to normal will i still have CLL?

formano

•10 years ago

Can anyone provide any feedback on the use of LENALIDOMIDE for CLL?

bantamsheffield

•10 years ago

For patients newly diagnosed or their caregivers, I was a 63 year old patient DX (Diagnosed) in 2006 with no academic background and cannot give medical...

CT scan series part 2 - a little about me

For patients newly diagnosed or their caregivers, I was a 63 year old patient DX...

Michael Tam, General Practitioner and Conjoint Senior Lecturer at UNSW Australia, looks at the evidence for whether some common remedies reduce the risk,...

•10 years ago

7 Replies

Health Check: can you treat the common cold?

Michael Tam, General Practitioner and Conjoint Senior Lecturer at UNSW Australia...

AussieNeil

Administrator•10 years ago

1 Reply

Blood of world's oldest woman hints at limits of life

The analysis of the blood of a woman who died at the age of 115, hints that our lifespan might ultimately be limited by the capacity for stem cells to keep...

The analysis of the blood of a woman who died at the age of 115, hints that our ...

AussieNeil

Administrator•10 years ago

4 Replies

Starting with FCR treatment tomorrow. Can I continue to enjoy a glass of red wine in the evenings .

Haileybury

•10 years ago

28 Replies

I have been on watch and wait for eight. For a while my PSA levels have been monitored at the same time as my regular blood tests. The level

has just doubled to ten in the last three months and I have been referred to a Prostate Consultant. It seems possible he will suggest a prostate biopsy which I...

has just doubled to ten in the last three months and I have been referred to a P...

pilch

•10 years ago

12 Replies

ASH 2013: Dr. Neil Kay on Why We Need a CLL Expert and on Clonal Evolution

Hi friends, I just posted on my blog ( http://bkoffman.blogspot.com ) Dr. Neil Kay out of Mayo discusses some new and old news that we can use from my...

Hi friends, I just posted on my blog ( http://bkoffman.blogspot.com ) Dr. Neil ...

CLL CURE Hero•10 years ago

At my April 28 appointment with Dr. John Byrd he expressed a concern that Ibrutinib or Ibru/Imbru in the hands of some treating general oncologists is not well...

Ibrutinib treatment concerns

At my April 28 appointment with Dr. John Byrd he expressed a concern that Ibruti...

•10 years ago

Can anybody give me any information on having vaccinations for travel abroad for people with CLL. Would they be effective?????

Travel

Can anybody give me any information on having vaccinations for travel abroad fo...

john133

•10 years ago

3 Replies

34 months on a Phase I-b Clinical Trial for Ibrutinib. A day of monitoring at OSU medical center with CLL specialist Dr. John Byrd

The weather in Columbus OH was wet and cool as I made my walk to the James Cancer Center along the newly restored Olentangy River. The Union cemetery sported...

The weather in Columbus OH was wet and cool as I made my walk to the James Cance...

•10 years ago

I am aware that most people with CLL are of an age where they are past thinking of having children but I was wondering if anyone with CLL who has had FCR has...

Fertility after FCR

I am aware that most people with CLL are of an age where they are past thinking ...

Fishface

•10 years ago

6 Replies

ASH 2013: INTERVIEW WITH DR. FURMAN RE: IDELALISIB

Hi friends In my last blog post ( http://bkoffman.blogspot.com ), I have a short and interesting video interview with Dr. Furman who was the lead on the...

Hi friends In my last blog post ( http://bkoffman.blogspot.com ), I have a shor...

CLL CURE Hero•10 years ago

Is there any clinical trials combination of (Ibrutinib + Gazyva)?

shazie

•10 years ago