Posts - CLL Support | HealthUnlocked

CLL Support

22,523 members • 38,686 posts

All posts for April 2014

ANTI CD37 ANTIBODIES FOR CLL Does anyone has experience with these new antibodies in a clinical trial ?

Pharma

•10 years ago

2 Replies

Tendonitis Anyone?

I have noticed in the last few months recurring tendonitis in my Achilles and bicep and was wondering if this is related to CLL. I'm not doing anything...

I have noticed in the last few months recurring tendonitis in my Achilles and bi...

DocM

•10 years ago

18 Replies

Are you cooking your eggs safely?

Are cooking programs as popular elsewhere as they are in Australia? Our local newspaper has just run an article which links a 30% spike in food poisoning...

Are cooking programs as popular elsewhere as they are in Australia? Our local n...

AussieNeil

Administrator•10 years ago

5 Replies

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A necessary trial

Friends I just posted on my blog about my thoughts of a potential trial for those of us doing well on a TKI but still with residual disease. That is not a...

Friends I just posted on my blog about my thoughts of a potential trial for tho...

bkoffman

CLL CURE Hero•10 years ago

2 Replies

Supplements

Has anybody with CLL had any advice about taking supplements, like iron, cod liver oil, or any other tablets or capsules. I have been told that they mess with...

Has anybody with CLL had any advice about taking supplements, like iron, cod liv...

john133

•10 years ago

5 Replies

No evidence homeopathy is effective: NHMRC review

As in the UK, the use of government funding to support homeopathic remedies has been under considerable scrutiny recently in Australia. Australia's National...

As in the UK, the use of government funding to support homeopathic remedies has ...

AussieNeil

Administrator•10 years ago

10 Replies

SLL and gardening?

I have SLL. I am treatment naive, have no B Symptoms and normal bloods. Do I need to take the same precautions regarding gardening as have been recently...

I have SLL. I am treatment naive, have no B Symptoms and normal bloods. Do I nee...

zentangle

•10 years ago

23 Replies

ASH 2013: Dr. Claire Dearden Discusses Treatment of CLL in the Elderly

Hi friends, Today I posted my interview with Dr. Dearden on treatment of the elderly with some interesting discussion and references on how to define age in...

Hi friends, Today I posted my interview with Dr. Dearden on treatment of the el...

bkoffman

CLL CURE Hero•10 years ago

1 Reply

Recently diagnosed suffering almost constant indigestion, sometimes painful heartburn. I am trying to analyse this to see what might have

this effect. Only advice seems to be Rennies or Gaviscon which hardly work...has anyone else had this problem. It may not be connected to CLL of course but it...

this effect. Only advice seems to be Rennies or Gaviscon which hardly work...has...

romarin

•10 years ago

6 Replies

Gardening questions. I understand we should avoid mowing the lawn and digging the garden, but what about weeding- same thing I guess....

i am looking at my jungly garden in despair.... any thoughts.

romarin

•10 years ago

16 Replies

For Your Immediate Attention: Heartbleed - what you should do to stay safe from this major online security flaw

Must Read: 1) Log out and log back in to any site where you stay logged in 2) Change your Internet passwords as each site informs you that they've fixed this...

Must Read: 1) Log out and log back in to any site where you stay logged in 2) C...

AussieNeil

Administrator•10 years ago

16 Replies

shingles/bone ache/flushes

hello everybody,just to let you know where we are at..my mother 88,diagnosed ealy stage cll..3/2/2014..she had steroid injections for back pain 28/2/2014..ever...

hello everybody,just to let you know where we are at..my mother 88,diagnosed eal...

chrismac

•10 years ago

4 Replies

Hello! (Tips on how to deal with fatigue and nausea anyone?)

I was diagnosed two years ago, after assorted docs made assorted differing diagnoses. It was an enlarged spleen that finally led to the correct diagnosis,...

I was diagnosed two years ago, after assorted docs made assorted differing diagn...

DMF_online

•10 years ago

10 Replies

What is Herd or Community Immunity and why is it important to us?

The Centres of Disease Control and Prevention in the USA (CDC) defines Community immunity or Herd Immunity as "a situation in which a sufficient proportion...

The Centres of Disease Control and Prevention in the USA (CDC) defines Community...

AussieNeil

Administrator•10 years ago

1 Reply

My CLL journey with a bone marrow thingie and FCR thrown in.

After being referred, by my GP, to a consultant haematologist in 2010. She set me down and with little preamble proceeded to tell me that I had CLL. There is...

After being referred, by my GP, to a consultant haematologist in 2010. She set m...

Bribin

•10 years ago

20 Replies

Fresh Air Buddy- I gather there is a discount for CLL members?

More info please!

romarin

•10 years ago

5 Replies

Where’s my cure for cancer?

"It seems that every week a major breakthrough in the understanding of cancer is announced in the media (or on this site - Neil). So where are all the drugs...

"It seems that every week a major breakthrough in the understanding of cancer is...

AussieNeil

Administrator•10 years ago

4 Replies

There's lots happening in Adoptive T-cell transfer technology cancer research - CAR-T being just one aspect

When Dr Carl June of the University of Pennsylvania, used chimeric antigen receptor (CAR) technology to provide an amazing cure in a CAR-T trial in 2011 for...

When Dr Carl June of the University of Pennsylvania, used chimeric antigen recep...

AussieNeil

Administrator•10 years ago

1 Reply

SLL and prognostic indicators

I'm reading articles which suggest that the chromosomal abnormalities of SLL are different from CLL, most especially absence of 17p del and prevalence of...

I'm reading articles which suggest that the chromosomal abnormalities of SLL are...

Hidden

•10 years ago

16 Replies

UPDATE - CLL Support Association at HealthUnlocked - Community Activity Report September to March

Now updated with March figures - we have left the graph :-) The CLL Support community has launched into the spring with much renewed vigor I as many more are...

Now updated with March figures - we have left the graph :-) The CLL Support com...

HAIRBEAR_UK

Founder Admin•10 years ago

Be the first to reply

Talking about clinical trials with your doctor, new video

OK my dear UK friends (or wherever you are!), the accent may be different but the message is the same, talk about available trials with your doc. More of us...

OK my dear UK friends (or wherever you are!), the accent may be different but th...

andrewschorr

•10 years ago

1 Reply

Beta 2 Microglobin - an exquisitely sensitive marker for disease activity in many hematologic disorders.

Increased serum beta2 microglobulin levels reflect increased activity of the disease process in question and can be an exquisitely sensitive marker for this...

Increased serum beta2 microglobulin levels reflect increased activity of the dis...

Mikey47

•10 years ago

15 Replies

Treatment of My Father suffering from CLL with Endoxan (Cyclophosphamide) and Bendit--Bendamustine Hydrochloride.

My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 through a bone marrow. The values of %LYM = 80 % with WBC= 511,000. We have...

My father was diagnosed CLL- Chronic Lymphocytic Leukemia on 03-Sep-2013 throug...

nadeemnaz4190

•10 years ago

15 Replies

How fast or dramatic is lymph node enlargement?

I've been reading the posts about symptoms and enlarged lymph nodes is frequently mentioned. Since I was never one to pay much attention to these things, I'm...

I've been reading the posts about symptoms and enlarged lymph nodes is frequentl...

Chicagogirl

•10 years ago

9 Replies

Last chance to encourage your MEP to vote for changes to the Clinical Trials Regulation - increased transparency over clinical trial data

On 3 April 2014 your MEP will have the chance to vote in favour of greatly increasing the transparency of data obtained in clinical trials. Once the...

On 3 April 2014 your MEP will have the chance to vote in favour of greatly incr...

Myrddin

•10 years ago

4 Replies

When people talk about "more aggressive" CLL, what do they mean?

Is it to do with time to treatment or resistance to treatment?

Hidden

•10 years ago

10 Replies

CLL Support Association at HealthUnlocked - Community Activity Report September to March

Now updated with March figures - we have left the graph :-) The CLL Support community has launched into the spring with much renewed vigor I as many more are...

Now updated with March figures - we have left the graph :-) The CLL Support com...

HAIRBEAR_UK

Founder Admin•10 years ago

Be the first to reply

Are the chromosomal abnormalities used for prognostic indications mutations that the SLL/CLL has caused or did we have them from birth?

For instance, is 17p deletion or IVGH mutation a feature of the SLL/CLL, or a feature of our chromosomes from birth?

For instance, is 17p deletion or IVGH mutation a feature of the SLL/CLL, or a fe...

Hidden

•10 years ago

3 Replies

Which painkillers lower platelets?

One of the symptoms of my CLL is joint stiffness and sore joints and I need to take painkillers. My platelets are low and I cannot take aspirin or NSAID...

One of the symptoms of my CLL is joint stiffness and sore joints and I need to t...

vepiskop

•10 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for April 2014

ANTI CD37 ANTIBODIES FOR CLL Does anyone has experience with these new antibodies in a clinical trial ?

Tendonitis Anyone?

Are you cooking your eggs safely?

A necessary trial

Supplements

No evidence homeopathy is effective: NHMRC review

SLL and gardening?

ASH 2013: Dr. Claire Dearden Discusses Treatment of CLL in the Elderly

Recently diagnosed suffering almost constant indigestion, sometimes painful heartburn. I am trying to analyse this to see what might have

Gardening questions. I understand we should avoid mowing the lawn and digging the garden, but what about weeding- same thing I guess....

For Your Immediate Attention: Heartbleed - what you should do to stay safe from this major online security flaw

shingles/bone ache/flushes

Hello! (Tips on how to deal with fatigue and nausea anyone?)

What is Herd or Community Immunity and why is it important to us?

My CLL journey with a bone marrow thingie and FCR thrown in.

Fresh Air Buddy- I gather there is a discount for CLL members?

Where’s my cure for cancer?

There's lots happening in Adoptive T-cell transfer technology cancer research - CAR-T being just one aspect

SLL and prognostic indicators

UPDATE - CLL Support Association at HealthUnlocked - Community Activity Report September to March

Talking about clinical trials with your doctor, new video

Beta 2 Microglobin - an exquisitely sensitive marker for disease activity in many hematologic disorders.

Treatment of My Father suffering from CLL with Endoxan (Cyclophosphamide) and Bendit--Bendamustine Hydrochloride.

How fast or dramatic is lymph node enlargement?

Last chance to encourage your MEP to vote for changes to the Clinical Trials Regulation - increased transparency over clinical trial data

When people talk about "more aggressive" CLL, what do they mean?

CLL Support Association at HealthUnlocked - Community Activity Report September to March

Are the chromosomal abnormalities used for prognostic indications mutations that the SLL/CLL has caused or did we have them from birth?

Which painkillers lower platelets?

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