Posts - CLL Support | HealthUnlocked

CLL Support

22,368 members38,475 posts

All posts for April 2014

Internet Explorer users should switch to another browser - governments recommend

Until Microsoft patches this latest Flash related Internet Explorer vulnerabilit...
AussieNeil profile image
Administrator

Windows 8 Users - Update or be left insecure

Windows 8.0 users need to make certain that they have been able to update to 'Wi...
AussieNeil profile image
Administrator

Leukaemia & Lymphoma Research Prioritising Patient Need Project

Support Leukaemia & Lymphoma Research with their: “Prioritising Patient Need P...
HAIRBEAR_UK profile image
Founder Admin
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Just published governments Flu plan winter 14-15 for England

thought this may be of interest to some people. This plan sets out PHE coordinat...

IVIG

Has any other member experienced problems following ivig infusions?? My husband...
lartington profile image

Another cold and then a sore throat so what to do?

I have read recent posts re sore throats and advice about seeing DR. But my sore...
romarin profile image

Life on Us: a close-up look at the bugs that call us home

Australia's national multicultural broadcaster, SBS aired the first of a two par...
AussieNeil profile image
Administrator

When (if ever) will Ibrutinib become available in the UK?

I had a conversation about Ibrutinib with my doctor today who firmly told me tha...
MeTooAsWell profile image

Any CLL patients close to my age of 29?

I was diagnosed with CLL at the age of 27 in 2012 and have just commenced FCR Ap...
Fishface profile image

My brother has CLL. What blood tests show you have this disease? Does it run in families? Thanks, Ruth

2006 profile image

England and Wales health maps

I found mention of this on BBC news feed yesterday. I think it is worth a read,...
Oleboyredw-uk profile image

My husband had his first treatment with retuxin and bendamustine. ?

deb1610 profile image

Mi marido tiene carcinoma adenoide quistico metastasico. Hay algun ensayo clinico II o III que le admita?.la quimioterapia no funciona

Podria seguir el tratamiento desde España? No puede viajar
cristinabonet profile image

Another CLL patient dies disease free from complications of her treatment.

Friends, Sad news. Another friend gone from complications of her treatment, thi...
bkoffman profile image
CLL CURE Hero

Wild salmon caught from the Pacific ... Should we be eating it?

I have various tins of this type of salmon in my cupboard, and wonder if I shoul...
Marisa profile image

Has anyone had low phosphate problems?

Last week stopped taking Ibrutinib because neutrophils very low. Two days later...
Explorer1 profile image

Had pneumonia vaccine at 65. Now 75 on w&w. Was told to get more . 2 vaccinations one month apart...which type first?

Told there were 2 types.
Wetumpka profile image

13q14 deletion

I'm wondering how many of us are 13q14, unmutated, ZAP-70 +, time since diagnosi...
buckinhard profile image

Look what I found when I entered "hiv leukemia" into google search engine!

I'm amazed by the treatment advances being announced. It may be that my search "...
Bribin profile image

Any reason why I can't supplement my diet with Spirulina, Maca and Wheatgrass?

I recently finished 6 cycles of chemotherapy ( Ritux + Benda ). My consultant to...
maureenmckeown profile image

Health Check: when is ‘the flu’ really a cold? Excellent resource for tips on avoiding and managing respiratory infections

The difference between a cold and the flu is not always obvious, which is no dou...
AussieNeil profile image
Administrator

Results of Survey on some members here: How you use the web for health info

Many of you took part in our Patient Power survey. Here are the results on how a...
andrewschorr profile image

Flow Cytometry Report and Some Math

Friends I just posted an update on CLL flow cytometry results with some intere...
bkoffman profile image
CLL CURE Hero

WBC going way down/platelets/lymphocytes way up!

I know many people say you shouldn't watch your #'s too frequently but I had to ...
rlyndecker profile image

Why Watch and Wait explained

As someone who was diagnosed almost a year ago and is in stage 0 - watch and wai...
Babs-0 profile image

My husband has Cll..

My husband has cll and has been part of a trial program out At Md Anderson in Ho...
Cinder_ella profile image

BBC News - 18/04 - Breakthrough in leukaemia treatment (Prof Chris Pepper of Cardiff University on Ibrutinib)

Scientists helped to develop drugs which target the disease at a molecular leve...
MartyR profile image

Access to cancer drugs

I just post on my blog http://bkoffman.blogspot.com about access to cancer medic...
bkoffman profile image
CLL CURE Hero

Here's one virus that you shouldn't have to worry about!

Ancient viruses sound scary, but there’s no need to panic, says Jennifer McKimm-...
AussieNeil profile image
Administrator

A shorter treatment plan???

Hi, I started FCR for cll earlier this year as my WBC was just rising so fast. I...
grizzlebear profile image