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CLL Support

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All posts for December 2013

iwCLL 2013: Dr. Byrd Discusses 17 p deletion

Friends, I am hoarse and exhausted at ASH, but I am getting great stuff for those of us fighting the dragon. Please check out my blog to hear Dr. Byrd...

Friends, I am hoarse and exhausted at ASH, but I am getting great stuff for tho...

CLL CURE Hero•10 years ago

I have 13q but I also have 14q+ (40%). My Dr doesn't think the 14q is any big deal since it is not a t(14:11) Not what I read. Thoughts?

I read that a second chromosome problem changes the prognosis and nothing about 14q+ is good regardless of translocation partner. Anyone have this combination?

I read that a second chromosome problem changes the prognosis and nothing about ...

•10 years ago

Shingles : To be for warned is to be for armed

Anyone who has had chicken pox can suffer from shingles , 1 in 4 of the population. We are more likely than other to get shingles. Worth knowing what to look...

Anyone who has had chicken pox can suffer from shingles , 1 in 4 of the populati...

•10 years ago

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Hello HealthUnlockers! We are looking for members of the community to help test a few new features that are under development. We would need 30 minutes of...

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HealthUnlocked•10 years ago

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Dr Sharman explains how treatment options for the two main subtypes of the aggressive Diffuse Large B Cell Lymphoma are changing

Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CLL face a chance of developing in what is termed Richter's Transformation....

Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CL...

Administrator•10 years ago

iwCLL 2013: Dr. John Byrd Discusses the Role of Novel Therapies versus Standard Chemo-Immunotherapy

Hi friends, I am off to ASH with my slowly improving cough and runny nose. Expect updates on the fly on the latest CLL news. In the meantime my blog...

Hi friends, I am off to ASH with my slowly improving cough and runny nose. Expe...

CLL CURE Hero•10 years ago

Barts Meeting - Summary of meeting now in thread

A big thank you to those who arranged such a sucessful event at Bart's hospital. A great way to celebrate the CLLSA's 8th year. Thanks to Prof Daniel...

A big thank you to those who arranged such a sucessful event at Bart's hospital....

•10 years ago

Why MRD (Minimal Residual Disease) Matters for CLL - Professor Peter Hillmen in Patient Power Video

Andrew Schorr interviews Professor Peter Hillmen at this year's Cologne iwCLL workshop on the changing role of MRD with the new treatments for CLL currently...

Andrew Schorr interviews Professor Peter Hillmen at this year's Cologne iwCLL wo...

Administrator•10 years ago

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We're being invaded and it's cricket!

There's this cricket match called 'The Ashes' that has come to town and it seems we are being invaded today by a 2,000 strong UK Barmy Army to support the...

There's this cricket match called 'The Ashes' that has come to town and it seem...

Administrator•10 years ago

10 tips for spotting a phishing email (Internet Security)

Continuing my series on maintaining your security while using the Internet, here are 10 tips from TechRepublic on how to spot a phishing* 'evilmail':...

Continuing my series on maintaining your security while using the Internet, here...

Administrator•10 years ago

Shedding light on the sunshine vitamin - why is vitamin D linked to so many health issues and how much of it do we actually need?

Sadly the article doesn't say how much Vitamin D we need, but given many of us report improvements in our well being after finding we need Vitamin D3...

Sadly the article doesn't say how much Vitamin D we need, but given many of us r...

Administrator•10 years ago

What's the correct etiquette when you're unpacking your grocery shopping and the checkout operator starts coughing?

Happened to me today. I asked the operator had she had the cough long? She replied yes, she had a sister that worked in childcare who kept bringing home...

Happened to me today. I asked the operator had she had the cough long? She rep...

Administrator•10 years ago

iwCLL 2013: Dr. Sharman discusses Richter's

Friends, In the last segment of my interview with Dr. Sharman from iwCLL, he discussed Richter's and more. See: http://bkoffman.blogspot.com More interviews...

Friends, In the last segment of my interview with Dr. Sharman from iwCLL, he di...

CLL CURE Hero•10 years ago

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How long before your Google social media bot is talking to someone else's Google social media bot?

"Overwhelmed by social media? Google may have patented a solution for you, in the form of software that mimics the types of responses you make to update...

"Overwhelmed by social media? Google may have patented a solution for you, in th...

Administrator•10 years ago

Pneumonia vaccines -- Is there any qualified report to show GPs CLL suffers need it every 5 years?

I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with success. Despite being told all my bloods are within the 'normal' range, 3 out of...

I was diagnosed with CLL in June 2007. I had 5 doses of FCR in 2010/11 with succ...

•10 years ago

iwCLL 2013: Dr. Jeff Sharman Discusses Two Issues: 17p deletion and Residual Disease in CLL

Friends In Part 6 of my interview from iwCLL, I push Dr. Sharman to spectate on the issues of 17 p deletion and of the importance of residual disease with...

Friends In Part 6 of my interview from iwCLL, I push Dr. Sharman to spectate ...

CLL CURE Hero•10 years ago

Holiday Insurance - my recent finding

Folks, I know this comes up frequently so thought I'd share my experience. Background: CLL and Hypertension for me, treated with FCR second half 2012. Plus...

Folks, I know this comes up frequently so thought I'd share my experience. Back...

•10 years ago

How to slice and dice bacteria - and make implants safer

Not CLL related, but may be of interest to those of us requiring surgical implants and having justified concerns about associated bacterial infections......

Not CLL related, but may be of interest to those of us requiring surgical implan...

Administrator•10 years ago

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