Posts - CLL Support | HealthUnlocked

Further to my recent post on security: https://healthunlocked.com/cllsupport/posts/130213722/online-security-starts-with-you If we are honest, we are all...

Why do so few of us read End User Licence Agreements (EULAs), Terms of Service, etc?

Further to my recent post on security: https://healthunlocked.com/cllsupport/pos...

Administrator•11 years ago

Just back to my daughter's in Abingdon and while I remember.... Big thank you to all those that helped in organising the meeting, the speakers for clear...

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Oxford CLLSA meeting. .... thank you

Just back to my daughter's in Abingdon and while I remember.... Big thank you t...

Oleboyredw-uk

•11 years ago

20 Replies

Is this the future..??

Shrinking the Genetics Lab Is this the future, a genetics lab at your local GP and even at home.? How long will it be before advanced genetic analysis...

Shrinking the Genetics Lab Is this the future, a genetics lab at your local GP ...

•11 years ago

Hey all, after recently posting about my symptoms of breathlessness and irratic sweats I have just had a short stay in hospital after waking up on late...

Sweats, Breathless and Now Very Low Blood Salts

Hey all, after recently posting about my symptoms of breathlessness and irratic ...

TinyTattooedToes

•11 years ago

Friends In my blog ( bkoffman.blogspot.com ) I have posted the second part of my interview with Dr. Burger from iwCLL 2013 where we look under the hood and...

iwCLL 2013. Dr. Burger discussed more of the gritty details about how some of the novel therapies work

Friends In my blog ( bkoffman.blogspot.com ) I have posted the second part of m...

bkoffman

CLL CURE Hero•11 years ago

4 Replies

Fatigue in Cancer

This is another link from the same website located by Neil on the under researched subject of fatigue in cancer. The article mentions some possible causes due...

This is another link from the same website located by Neil on the under research...

•11 years ago

This is a link to a website that AusssieNeil located and it has some thoughts on the anxiety of our condition and how we often end up in the ‘Hurry up and...

Anxiety and hurry up and wait.

This is a link to a website that AusssieNeil located and it has some thoughts on...

•11 years ago

First - thanks to Paula for reminding me to ask this question. I remember how bad I felt when diagnosed with CLL and then some time later when I found you all...

"Recommending" posts and the Pinned Posts

First - thanks to Paula for reminding me to ask this question. I remember how b...

Ernest2

•11 years ago

7 Replies

Vitamin D and 25(OH)D

Been wanting to write about vitamin D for ages, and many thanks for all your posts/advice on this and related subjects, so here is now my current...

Been wanting to write about vitamin D for ages, and many thanks for all your pos...

Ernest2

•11 years ago

13 Replies

Telling the kids

When I first joined early this year, I started a Post on whether and what to tell kids (mine are now 13 and 11). There was a good response of well thought out...

When I first joined early this year, I started a Post on whether and what to tel...

Quarry

•11 years ago

Many of us will remember the excitement a couple of years back when Dr Carl June of the University of Pennsylvania announced Chimeric Antigen Receptor...

Dr Sharman provides an update on an NIH CAR-T trial for relapsed/refractory DBLC

Many of us will remember the excitement a couple of years back when Dr Carl June...

Some follow on responses to my comment about how friends accept you when I replied to Hooper's question on supplements,...

Administrator•11 years ago

5 Replies

Is it okay to have occasional alcohol.

Lss26

•11 years ago

13 Replies

Hi everyone! Is pins and needles something that happens to CLL sufferers. My disease has advanced as you know, lots of swollen glands.

maureenmckeown

•11 years ago

8 Replies

Angels and bolters: a field guide to the wildlife of cancer (when your diagnosis shows you what kind of friends you have)

Some follow on responses to my comment about how friends accept you when I repli...

Administrator•11 years ago

Well, did not get the best news yesterday. Was feeling like someone had taken plug out of me, so got bloods taken on tues and somehow got into clinic...

Hare and Tortoise: AIHA and CLL

Well, did not get the best news yesterday. Was feeling like someone had taken p...

Quarry

•11 years ago

15 Replies

on Ibrutinib for less than 2 weeks and lymph node in my neck have gone from silver $ size and about 3/8 inch thick toa little larger

than a split pea! the stuff is fantastic so far..knock on wood .. MD Anderson has a clinical trial going on now , randomized , open testing Chlorambucil and...

than a split pea! the stuff is fantastic so far..knock on wood .. MD Anderson ha...

fish61

•11 years ago

20 Replies

Dr Sharman's thoughts on the race for FDA Approval for Obinituzumab, Ibrutinib and Idelalisib

Following Gilead's announcement regarding Idelalisib:...

I found this a very exciting and interesting video where Andrew Schorr interviews Catherine Wu of the Dana-Farber Cancer Institute in Boston about the promise...

Administrator•11 years ago

7 Replies

Catherine Wu on Genetic Profiling: The Key to Personalized CLL Care (Patient Power video)

I found this a very exciting and interesting video where Andrew Schorr interview...

Administrator•11 years ago

The simple task of recording the frequency and severity of post chemo nausea and vomiting allowed clinical staff to make adjustments to patients’ antiemetic...

Keeping a diary record of nausea and vomiting after chemo can help your health care team help you

The simple task of recording the frequency and severity of post chemo nausea and...

Administrator•11 years ago

Summary: "As a very full-featured free app, Medscape is worth a download. If you have space on your device, I strongly recommend you download the full...

The one medical App to have if stranded on a deserted island

Summary: "As a very full-featured free app, Medscape is worth a download. If you...

Administrator•11 years ago

Hey All, After my third (uneventful.) B + R treatment late September i have been in to see my Consultant (today -9th October.) WBC 118 / LC 115 - My doctor...

October - Clinical trial mini-update - B + R and Idelalisib - CAL 101

Hey All, After my third (uneventful.) B + R treatment late September i have been...

MartyR

•11 years ago

4 Replies

Anyone know if CLL 10 trial (FCR v Ibrutinib+R) is open for recruitment anywhere in UK?

Saw my consultant today and, unsurprisingly (given my recently enlarged spleen and neck nodes, and a downturn in my HB and platelets), he is suggesting that it...

Saw my consultant today and, unsurprisingly (given my recently enlarged spleen a...

jibs60

•11 years ago

10 Replies

Starting treatment soon. Have opted for Bendamustine (Levact) over Fludarabine + Rituximab. Any observations?

My consultant said she preferred to not recommend Fludarabine because of it's high toxicity and resultant long term side effects and particularly because she...

My consultant said she preferred to not recommend Fludarabine because of it's hi...

maureenmckeown

•11 years ago

7 Replies

Clinical trial shows sunscreen is effective in preventing UV from causing genetic damage and protects against the three forms of skin cancer

Down under, we are heading into another summer and so will need to be vigilant about sun safety, given the increased risk of skin cancers that goes with CLL....

Down under, we are heading into another summer and so will need to be vigilant a...

Immune system and sleep. Interesting page on the BBC website. http://www.bbc.co.uk/news/magazine-24444634 Towards the bottom of the page:- What they...

Administrator•11 years ago

5 Replies

Sorry if this is a bit obvious but can anyone tell me why you may want pneumonia vacs?

Immie

•11 years ago

14 Replies

Immune system and sleep

Immune system and sleep. Interesting page on the BBC website. http://www.bbc.c...

Seen my consultant yesterday as past 6 months have had worsening shortness of breath and sweats for no reason, both during the day and at night. My bloods...

•11 years ago

5 Replies

Short of breath & irratic sweats! Oh the fun :)

Seen my consultant yesterday as past 6 months have had worsening shortness of br...

TinyTattooedToes

•11 years ago

4 Replies

iwCLL 2013: Dr. Jan Burger on the Role of the Micro-Environment in CLL

Friends, I just posted on my blog http://bkoffman.blogspot.com the first of a three part interview with Dr. Jan Burger on the role of the micro-environment in...

Friends, I just posted on my blog http://bkoffman.blogspot.com the first of a t...

bkoffman

CLL CURE Hero•11 years ago