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CLL Support

22,366 members38,474 posts

All posts for September 2013

Night sweats, hot flushes and wonky thermostat (new poll)

Night sweats, hot flushes and wonky thermostat (new poll) Today we are setting ...
Kwenda profile image

Any alternative Pneumonia vaccines?

Hi I was diagnosed with CLL in 2007 and had FCR in 2010/11, having only 5 of th...
Mick491 profile image

How can I get a Second opinion in another EU country or in the US?

Can anybody advice me on how I can get a second opinion from at doc in UK or US ...
Damms profile image
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Should someone go for a blood test..?

Should someone go for a blood draw..? It’s is the beginning of the flu season a...
Kwenda profile image

Is Long-Term CLL Remission with FCR a Cure?

The latest video From Andrew Schorr and Patient Power Dr. William Wierda of MD ...
HAIRBEAR_UK profile image
Founder Admin

September - Clinical trial update - B + R and Idelalisib - CAL 101

Hi CLLers, Well into my third round of B + R chemo treatment yesterday and toda...
MartyR profile image

The developing picture of on-line support

Hi everyone, Yesterday I travelled to London with a colleague to meet with And...
HAIRBEAR_UK profile image
Founder Admin

Good communication with your doctor(s)

How good communication underpins positive patient outcomes. Good communication ...
Kwenda profile image

Do we have enough interest to begin a Photographer's Corner?

Now that this site is working as it should (am I tempting fate saying that?), we...
AussieNeil profile image
Administrator

I have noticed lately that I am getting an ache in my left shoulder, could this be CLL related?

It has only come on over the last couple of weeks but it is an annoying dull ach...
pitbull profile image

I cannot fully update my profile because watch & wait isn't an option on the treatment list. What have others put in for this?

pitbull profile image

Over a 3-year period, 45% of C. difficile cases in Oxfordshire were genetically distinct from all previous cases.

It has been thought that Clostridium difficile infection is transmitted predomin...
Cllcanada profile image
Top Poster CURE Hero

Dr Rick Furman interviewed at IWCLL by Patient Power

Another up beat interview from IWCLL that I found particularly interesting. Aga...
AussieNeil profile image
Administrator

What are you pedalling, Mr Prime Minister?

Erythropoietin (popularly known as EPO) and perhaps Filgrastim may be familiar d...
AussieNeil profile image
Administrator

Feeling sick with worry - ALC & Steriods

Hi all So, after my last round of concern for my dear dad and the mention of a ...
auntiebarnes profile image

Clonal Evolution

Prompted by the end of the thread that Neil started recently on ABT199, you all ...
Ernest2 profile image

Don't forget your flu jab.

Hi everyone It's that time again. Your GP may be taking bookings for your annua...
HAIRBEAR_UK profile image
Founder Admin

Dr Sharman shares why his blog has been quiet lately

http://www.cll-nhl.com/2013/09/summer-off.html Worth a read for an understanding...
AussieNeil profile image
Administrator

Why do some postings appear under "Latest activity", but not in "News feed"?

Can anyone explain the difference between "Latest activity" and "News feed"? A...
PaulaS profile image
Volunteer

More problems with the site

Is HU making adjustments? Yesterday I received my first summary of what's new (m...
MsLockYourPosts profile image
Passed Volunteer

I am battling with low WBC, values below 1 (currently 0,5), and it seams to be a returning issue after chemo last summer. What to do?

Damms profile image

Drug trials and the release of ALL the data.

When a drug trial does not produce the expected result the research can be shelv...
Kwenda profile image

ABT-199 Trial experience in Australia

Following are my notes on the presentation by Andrew Roberts, to the Australian ...
AussieNeil profile image
Administrator

My husband's 2nd round of fcr was delayed again due to low hemoglobin but other blood values are within range. What could be causing this?

LAinNYC profile image

My granddaughter has had her Mmr, Pvc and Hib/MenC vaccinations today. will she be able to visit me tomorrow? The Mmr is a live vaccine.

flutterbye profile image

Insect bites continued

Hairbear posted a few weeks ago regarding insect bites and I know some others ha...
Kwenda profile image

Is anyone diagnosed at stage 4, with swollen lymph nodes all over, with it in the bone marrow, and so-on still on watch and wait?

C.difficile, the biggest killer... new U.S. study on drug resistant germs by the CDC

'More than two million people are infected by drug-resistant germs each year, an...
Cllcanada profile image
Top Poster CURE Hero

iwCLL 2013; Dr. Castro on the latest Research into the Biology of CLL

Friends, Dr. Castro out of UCSD explains in easily understood ways the research...
bkoffman profile image
CLL CURE Hero

How careful do I need to be re: contact with people with infections?

I'm currently receiving treament as part of the Rialto trial and I know that I n...
UKfulloflife profile image