Posts - CLL Support | HealthUnlocked

While this article is not specific to CLL, many of us do experience what is colloquially termed "Chemo Brain" after chemotherapy, a reduced ability to remember...

Administrator•11 years ago

1 Reply

Chemo brain research shows promise of finding answers - and some help

While this article is not specific to CLL, many of us do experience what is coll...

Administrator•11 years ago

A major problem in developing a successful anti-cancer therapy is finding an agent that will selectively target cancerous cells and ONLY those cells....

DIDS - Another potential CLL genetic chemotherapy candidate

A major problem in developing a successful anti-cancer therapy is finding an age...

Administrator•11 years ago

My name is Dave, I am 56 next month and live in Manchester. In mid November 2012 I was diagnosed with CLL. So after a few months of watch and wait I finally...

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Start of my journey on FCR.

My name is Dave, I am 56 next month and live in Manchester. In mid November 201...

davey57

•11 years ago

13 Replies

what are the breaking news about the drug therapy of CLL?

tahakrayim

•11 years ago

5 Replies

GenomEthics Survey. Ethics and your genome.

The Wellcome Trust Sanger Institute has launched an online survey to collect the views of "ordinary people" about how personal genomic information should be...

The Wellcome Trust Sanger Institute has launched an online survey to collect the...

Kwenda

•11 years ago

10 Replies

Going great guns

Hi All Just a quick update on my fundraising for Leukaemia & Lymphoma research it now stands at 3732.63 pounds which is fantastic there is another 2500.00...

Hi All Just a quick update on my fundraising for Leukaemia & Lymphoma research...

Hidden

•11 years ago

4 Replies

Pharmacyclics presents positive results of ibrutinib Phase II trial in untreated, relapsed and refractory CLL patients

Probably nothing new here for regular readers, but below is a link to a two page report regarding Pharmacyclics release of the results from their Phase II...

Probably nothing new here for regular readers, but below is a link to a two page...

Just thought I would update myself since the last time I wrote. I finished my FCR in September 2012 and in the October was told "You're in Haematological...

Administrator•11 years ago

2 Replies

In the Words of Marvin Gaye - What's going on ........??

Just thought I would update myself since the last time I wrote. I finished my F...

Nicebaps

•11 years ago

11 Replies

Positive thinking?

I was intrigued by an interesting post by Karl Swartz today on the CLLresearch group at Yahoo. Karl is a very active patient advocate and president of Patients...

I was intrigued by an interesting post by Karl Swartz today on the CLLresearch g...

HAIRBEAR_UK

Founder Admin•11 years ago

9 Replies

First consultation - mixed results

Hi all First of all, apologies to those that read this and the Macmillan site, I have posted the same on both. Back from the hospital. arrived early and...

Hi all First of all, apologies to those that read this and the Macmillan site...

pitbull

•11 years ago

5 Replies

Dr Sharman on CT and PET scans - how they differ and what are the risks?

Dr Sharman provides an overview of how these scans work, explains why CT scans are better for assessing CLL than PET scans and puts the concerns about the risk...

Dr Sharman provides an overview of how these scans work, explains why CT scans a...

Given the involvement of the spleen with CLL along with our increased risk of infection, I thought the following article would be of interest:...

Administrator•11 years ago

4 Replies

Spleen-on-a-chip could treat bloodstream infections

Given the involvement of the spleen with CLL along with our increased risk of in...

Administrator•11 years ago

This is an extensive article just published on WM, Waldenstrom’s macroglobulinemia. I post it here because on rare ooccasions CLL patients also...

How to manage Waldenstrom’s macroglobulinemia

This is an extensive article just published on WM, Waldenstrom’s macroglobulinem...

Hi folks. I have a blog on the McMillan site which is following my journey through Chemotherapy for CLL. I started the treatment a week ago. <p> This is...

Top Poster CURE Hero•11 years ago

2 Replies

Follow my blog

Hi folks. I have a blog on the McMillan site which is following my journey t...

Billys60

•11 years ago

7 Replies

gotCLL - a Patients' & Caregivers' Guide

gotCLL is a patients' and caregivers' guide to CLL information online and on mobile devices. The mission of the weblog is to guide CLL patients, caregivers,...

gotCLL is a patients' and caregivers' guide to CLL information online and on mob...

gotCLL

•11 years ago

6 Replies

Help with cll/sll knowledge in a young patient.

Is there anyone here that is younger for a cll/sll diagnosis? My husband was diagnosed 1.5yrs ago at 42. We are still panicked as we watch he bloodwork numbers...

Is there anyone here that is younger for a cll/sll diagnosis? My husband was dia...

Nferrell

•11 years ago

33 Replies

Ibrutinib...FDA 'Breakthrough Therapy' for CLL/SLL ---- 17p deleted only

Pharmacyclics, Inc. announced today that the U.S. Food and Drug Administration (FDA) has granted an additional Breakthrough Therapy Designation for the...

Pharmacyclics, Inc. announced today that the U.S. Food and Drug Administration (...

Could this be a cause of some fatigue? Might be worth discussing a sleep study with your doctor. http://en.wikipedia.org/wiki/Sleep_apnea

Top Poster CURE Hero•11 years ago

1 Reply

Sleep Apnoea in CLL and SLL ...is this being missed by our doctors???

Could this be a cause of some fatigue? Might be worth discussing a sleep study w...

For those interested in improving their fitness and thereby improve their quality of life with CLL, particularly when treatment is required, "A new study...

Top Poster CURE Hero•11 years ago

4 Replies

Walk, or Run, to Lower Heart Disease Risk: Benefits Are Similar

For those interested in improving their fitness and thereby improve their qualit...

Administrator•11 years ago

Updates cover: Frontline and relapsed/refractory settings Best practices in the use of agents including bendamustine and...

Updated USA National Comprehensive Cancer Network Guidelines for CLL

Updates cover: Frontline and relapsed/refractory settings ...

Administrator•11 years ago

An interesting look at premalignant conditions and what they portend... 'Given that both MBL and MGUS uniformly precede malignancy, chemoprevention...

Precursors to Lymphoproliferative Malignancies, MBL, MGUS

An interesting look at premalignant conditions and what they portend... 'Give...

Top Poster CURE Hero•11 years ago

Forbes magazine has an article on ibrutinib, one of the new drugs for CLL. Being Forbes magazine there is much detail about how the drug research and...

Ibrutinib, one of the new CLL drugs.

Forbes magazine has an article on ibrutinib, one of the new drugs for CLL. Be...

Kwenda

•11 years ago

1 Reply

Dr. Peter Hillmen on minimal residual disease, MRD ...Patient Power Video

How do you and your doctor know your chronic lymphocytic leukemia (CLL) treatment is working? Right now, highly sensitive tests measure minimal residual...

How do you and your doctor know your chronic lymphocytic leukemia (CLL) treatmen...

I had a hospital consultation with my haematologist today and on the printout of my blood test I notice that I have Hypogammaglobulinaemia. My Haematologist...

Top Poster CURE Hero•11 years ago

2 Replies

Any advice on Hypogammaglobulinaemia?

I had a hospital consultation with my haematologist today and on the printout of...

Mikey47

•11 years ago

18 Replies

Why do I have discomfort sleeping on either side?

I have been having problems sleeping for several months where I will wake up 2 to 3 hours before I need to and had problem going back to sleep. Then I had...

I have been having problems sleeping for several months where I will wake up 2 t...

consv

•11 years ago

3 Replies

Why physical activity should be added to cancer treatment plans

While specifically about localised cancers, the article below discusses current research examining whether being physically active reduces the chance of cancer...

While specifically about localised cancers, the article below discusses current ...

a few years after diagnosis I discovered I has osophageal cancer, I had chemo and surgery but 3 years later I now need treatment for the cll, Dr's are...

Administrator•11 years ago

16 Replies

do any other people have a secondary cancer and how has it affected the treament of their cll

a few years after diagnosis I discovered I has osophageal cancer, I had chemo an...

Agiwood

•11 years ago

19 Replies

Never heard of POT1 gene ...you will!

Researchers in Spain have focused on the mutations that affect POT1 gene, one of the genes involved in the protection of the edges of the chromosomes, the...

Researchers in Spain have focused on the mutations that affect POT1 gene, one of...

Top Poster CURE Hero•11 years ago

My dentists in Canada, knowing I have CLL, have always used prophylactic (protective) antibiotics for dental work, including cleanings. There...

Remember to tell your dentist you have CLL

My dentists in Canada, knowing I have CLL, have always used prophylactic (protec...