Posts - CLL Support | HealthUnlocked

Administrator•11 years ago

Michael Vagg, the Clinical Senior Lecturer at Deakin University School of Medicine & Pain Specialist at Barwon Health, Australia has published a thoughtful...

Can you think yourself better? What does the evidence say?

Michael Vagg, the Clinical Senior Lecturer at Deakin University School of Medici...

Hello friends, I have just posted the first part of my interview with Dr. Wiestner on his research on ibrutinib. His interviews will be the last from...

Administrator•11 years ago

3 Replies

Interview with Dr. Adrian Wiestner from the NIH on his Research on Ibrutinib

Hello friends, I have just posted the first part of my interview with Dr. Wie...

bkoffman

CLL CURE Hero•11 years ago

1 Reply

Want to take advantage of all our features? Just log in!

Short Telomeres?

Short telomere length is associated with NOTCH1/SF3B1/TP53 aberrations and poor outcome in newly diagnosed chronic lymphocytic leukemia patients according to...

Short telomere length is associated with NOTCH1/SF3B1/TP53 aberrations and poor ...

Today I received a link from Karl Schwartz of Lymphomation.org to the following article by James Salwitz, MD, to which I'm sure many of us can relate, going by...

Top Poster CURE Hero•11 years ago

1 Reply

Who speaks first about your cancer?

Today I received a link from Karl Schwartz of Lymphomation.org to the following ...

Further to the discussion on the recent posting about the carcinogenic impact of CLL therapy:...

Administrator•11 years ago

5 Replies

Clonal evolution, genomic drivers and effects of therapy in CLL

Further to the discussion on the recent posting about the carcinogenic impact of...

Administrator•11 years ago

'To say that a diagnosis of cancer can be stressful for patients is putting it mildly, and the rigors of treatment often add to the burden. Yet more than half...

Cancer Survivors Also Live With Distress

'To say that a diagnosis of cancer can be stressful for patients is putting it m...

Top Poster CURE Hero•11 years ago

is it down to the individual what they experience ie ......some are really soaked and have to change pjs and do others may experience a mild form ....a little...

Hi , Night sweats ....still on watch and wait not experienced night sweats at the moment ... can anyone describe these ..please read on ....

is it down to the individual what they experience ie ......some are really soake...

stewie

•11 years ago

32 Replies

Cancer Network Interview: Understanding Spirituality and How It Can Be Used to Help Patients

In this transcript of a Cancer Network podcast, Tami Borneman RN, MSN, CNS, FPCN, discusses spirituality: what it means, and how spiritual interventions can...

In this transcript of a Cancer Network podcast, Tami Borneman RN, MSN, CNS, FPCN...

Administrator•11 years ago

The link below is to an interesting rebuttal of common vaccination myths which was just published on "The Conversation", an Australian based independent source...

Six myths about vaccination and why they're wrong

The link below is to an interesting rebuttal of common vaccination myths which w...

Administrator•11 years ago

Jennifer Brown, MD, PhD, Director, Chronic Lymphocytic Leukemia Center, Dana-Farber Cancer Institute, Assistant Professor of Medicine, Harvard Medical School,...

Video, Dr. Jennifer Brown.... ibrutinib, idelalisib, and other agents.

Jennifer Brown, MD, PhD, Director, Chronic Lymphocytic Leukemia Center, Dana-Far...

This article deals with CML, but what it raises may be the future of TKI use in CLL as well... Will these new treatments simply be too...

Top Poster CURE Hero•11 years ago

1 Reply

The cost of new therapies...like TKIs

This article deals with CML, but what it raises may be the future of TKI use in ...

The title sums up the question. I have not had measles nor the vaccine during my life so are there any options, other than avoidance, at this stage? Thanks,...

Top Poster CURE Hero•11 years ago

3 Replies

Measles - is there a non live vaccine option?

The title sums up the question. I have not had measles nor the vaccine during my...

Hidden

•11 years ago

4 Replies

Chromothripsis in CLL ....a 'Big Bang' event?

Chromothripsis is the phenomenon by which thousands of clustered chromosomal rearrangements occur in localised and confined genomic regions in one massive...

Chromothripsis is the phenomenon by which thousands of clustered chromosomal rea...

Top Poster CURE Hero•11 years ago

Roche are developing RG7356, which targets CD44, a surface receptor that is over-expressed in ZAP-70 positive CLL patients as well as some solid tumours. If...

Another humanized monoclonal antibody RG7356, in development by Roche

Roche are developing RG7356, which targets CD44, a surface receptor that is over...

Administrator•11 years ago

I started FCR in March this year and have just had my second treatment. I didn't react too well to the first treatment - only half the Rituximab was given, I...

Anyone out there experienced problems with their sodium levels while on FCR? Anyone stopped after 2 courses, how has their prognosis been?

I started FCR in March this year and have just had my second treatment. I didn'...

jules33x

•11 years ago

15 Replies

UK Clinical Trials Gateway...there is an App for that...

The UK Clinical Trials Gateway is an informative app for anyone - patients, carers, clinicians, academics, researchers, pharmaceutical professionals and...

The UK Clinical Trials Gateway is an informative app for anyone - patients, care...

Someone asked me about this recently... Funny ...I never thought of chlorambucil and cyclophosplomide as human carcinogens, but they are.... I always...

Top Poster CURE Hero•11 years ago

3 Replies

Human carcinogens to treat CLL?

Someone asked me about this recently... Funny ...I never thought of chlor...

Top Poster CURE Hero•11 years ago

This list has been updated, but old links no longer work. The new PDF file can be found here...PLEASE BOOKMARK and note this list is a starting point and...

Updated ACOR CLL Patient's Doctors list

This list has been updated, but old links no longer work. The new PDF file ...

Top Poster CURE Hero•11 years ago

Last year I cycled from London to Paris, I raised almost £6000 for Leukaemia Care. How much has changed in a year. I care for my husband who has multiple...

London to Paris

Last year I cycled from London to Paris, I raised almost £6000 for Leukaemia Car...

leescroft

•11 years ago

Does anyone know of any centres of excellence in France? I live in the mid/south of the country and currently see a haematologist in Montpellier.

CLL centre of excellence

Does anyone know of any centres of excellence in France? I live in the mid/sout...

Tanagergreen

•11 years ago

When you go to your doctor, oncologist, haematologist or even dentist, do you take your medical records with you.? When you go for the 3 or 6 monthly blood...

Visits to doctors or specialists..

When you go to your doctor, oncologist, haematologist or even dentist, do you ta...

Kwenda

•11 years ago

5 Replies

Intro: Targeted drugs for Lymphoma ... what's a pathway?

Karl from USA based Patients Against Lymphoma, has just posted a brief but informative article, written in layman's terms, describing how targeted drugs (e.g....

Karl from USA based Patients Against Lymphoma, has just posted a brief but infor...

CLL/SLL is classified as a type of NHL by the World Health Organisation. This is an interesting article written by Karl Schwartz of Lymphomation.org it may...

Administrator•11 years ago

4 Replies

Introduction to targeted drugs

CLL/SLL is classified as a type of NHL by the World Health Organisation. This is...

HAIRBEAR_UK

Founder Admin•11 years ago

I am holding a stall at our local farmers market on Saturday the 4th may. Books ( enough to open a shop )Tombola (48 bottles of wine) raffle and cakes if...

Saturday 4th May Daventry Northants

I am holding a stall at our local farmers market on Saturday the 4th may. Book...

Hidden

•11 years ago

So a few key take home points 1) Watch and wait was historically based on ineffectiveness of therapy 2) Newer treatments have led...

Watch & Wait Article by Dr. Sharman

So a few key take home points 1) Watch and wait was historically based...

Top Poster CURE Hero•11 years ago

Good to see the search for improved CLL treatments continues: 1) A Phase 2 of GS-9973 in Subjects With Relapsed or Refractory Hematologic Malignancies...

More drug studies and trials on the way!

Good to see the search for improved CLL treatments continues: 1) A Phase 2 o...

They say that owners can look like their dogs, but it appears dog owners share with their dogs many of the same microbes.. Not too surprising really, but then...

Administrator•11 years ago

2 Replies

Domestic animals, a help or a hindrance.??

They say that owners can look like their dogs, but it appears dog owners share w...

Kwenda

•11 years ago

8 Replies

Update on CLL --- Dr. John Byrd... May 1st.

Update on CLL - Telephone Web Event May 1st, 2013 SPEAKER: John C. Byrd, MD D. Warren Brown Chair of Leukemia Research Professor...

Update on CLL - Telephone Web Event May 1st, 2013 SPEAKER: ...