Posts - CLL Support | HealthUnlocked

Administrator•11 years ago

It was recently brought to our attention that a few community members may believe they have already become members of the CLLSA when joining us here in the...

CLL Support Association Membership

It was recently brought to our attention that a few community members may believ...

'Richter's transformation, or Richter's syndrome, is an uncommon clinicopathological condition observed in about 5% to 10% of patients with chronic lymphocytic...

Founder Admin•11 years ago

2 Replies

Richter's in a Nut Shell

'Richter's transformation, or Richter's syndrome, is an uncommon clinicopatholog...

Hi Everyone. Although this is my first post on this site there are some here that will know me as Hampshireman from the Macmillan site. I have lived with CLL...

Top Poster CURE Hero•11 years ago

8 Replies

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Saintjohn

Hi Everyone. Although this is my first post on this site there are some here th...

saintjohn

•11 years ago

I have been talking with Christopher Springmann who produces video clips for Patient Power, about how important it is for CLL sufferers to have a good...

When is a duck not a duck? Can you help with the development of a Patient Power video?

I have been talking with Christopher Springmann who produces video clips for Pat...

David39

•11 years ago

I also suffer from severe night sweats.

I suffer with great discomfort of the left side of abdomen after meals. My haemotologist says it is nothing to do with cll. Is it true?

yunusvali

•11 years ago

5 Replies

My white cell count is 16.26, lymphocytes is 77.6%(abs 12.62), is this likely to affect my health. I feel tired all the time

yunusvali

•11 years ago

10 Replies

NCCN Clinical Practice Guidelines in Oncology (NCCN Guidelines®) 2013 v1

National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 21 of the world's leading cancer centers. NCCN is dedicated to improving the...

National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 21 ...

Yesterday I spent a little while looking at the peculiarities and similarities of CLL and SLL and found a great article by the late Professor Hamblin, further...

Top Poster CURE Hero•11 years ago

1 Reply

Small lymphocytic lymphoma (SLL)

Yesterday I spent a little while looking at the peculiarities and similarities o...

Myself, some family, friends and colleagues (10 of us in total) “Team Aylott” are taking part in the Tour de Tendring in May to raise funds for Leukaemia Care...

Founder Admin•11 years ago

10 Replies

Begging Letter

Myself, some family, friends and colleagues (10 of us in total) “Team Aylott” a...

Frintonite

•11 years ago

My onc wants to schedule a CT scan. He didn't find much evidence of nodes on physical examination. My platelet count is borderline concern, eg some slight...

Should I agree to proposed CT scan?

My onc wants to schedule a CT scan. He didn't find much evidence of nodes on phy...

Ragsgolf

•11 years ago

8 Replies

Any advice about starting FCR?

Following all my tests and lymph node biopsy, I'm starting FCR on 20th March and feeling very nervous. Any advice out there on things that may help body and...

Following all my tests and lymph node biopsy, I'm starting FCR on 20th March and...

jules33x

•11 years ago

35 Replies

Liverpool conference tomorow.

How do I get an official invite? I live a 100 miles away and dont want to find I can not get in when I get there.

How do I get an official invite? I live a 100 miles away and dont want to find I...

littleriver

•11 years ago

4 Replies

Saying No to Chemo. Part 1

Friends, I am particularly proud of my latest post of my blog One of the most common questions I get asked is: "What are my non-chemo options"? I...

Friends, I am particularly proud of my latest post of my blog One of the m...

bkoffman

CLL CURE Hero•11 years ago

18 Replies

Most doctors don't believe patients need full access to health records

A survey of 3,700 doctors from Australia, Canada, England, France, Germany, Singapore, Spain and the United States showed consistent beliefs regarding what...

A survey of 3,700 doctors from Australia, Canada, England, France, Germany, Sing...

Administrator•11 years ago

Maybe it's a silly question, but I often wonder if I'm a bit dehydrated before a blood test, will it make the blood more concentrated and push up numbers of...

Does the amount of water/fluids we've been drinking before a blood test, make any difference to the results?

Maybe it's a silly question, but I often wonder if I'm a bit dehydrated before a...

PaulaS

Volunteer•11 years ago

4 Replies

Question about 13q14.3 and 14q32.33 Deletions:

My husband has just been diagnosed with CLL. We got the results from the FISH test and he has mostly good prognostic indicators: CD38-, Zap-70-, and mutated...

My husband has just been diagnosed with CLL. We got the results from the FISH t...

kreale

•11 years ago

5 Replies

Absolute Lymohpcyte Count (ALC) and other metrics

From the CLLSA website "To get the Absolute lymphocytes number, multiply the WBC by the percent lymphocytes. For example, if the WBC is 30.0, and the...

From the CLLSA website "To get the Absolute lymphocytes number, multiply the WBC...

Oleboyredw-uk

•11 years ago

13 Replies

ASH 2012: Dr. Wierda offers tips on CAR-T trials and its possible future in conjunction with small molecules and the possibility of a cure.

In the second part of my ASH 2012 interview, Dr. Wierda gives practical advice about CAR-T trials, and a non-chemo future with the cancer knocked down with one...

In the second part of my ASH 2012 interview, Dr. Wierda gives practical advice a...

bkoffman

CLL CURE Hero•11 years ago

1 Reply

Processed meat 'early death' link

Sausages, ham, bacon and other processed meats appear to increase the risk of dying young, a study of half a million people across Europe suggests....

Sausages, ham, bacon and other processed meats appear to increase the risk of dy...

These are several UK information resources that those diagnosed with CLL may find helpful as an introduction. I have re-posted the info to pin it in view in...

Top Poster CURE Hero•11 years ago

7 Replies

Recently diagnosed? Here are several easy read patient friendly resources to help you begin your journey with the disease.

These are several UK information resources that those diagnosed with CLL may fin...

THE LEUKAEMIA & LYMPHOMA RESEARCH IMPACT DAY WILL BE HELD AT THE TOWER HOTEL, LONDON ON 13 APRIL 2013. "Join us in London on 13 April to...

Founder Admin•11 years ago

15 Replies

Leukaemia & Lymphoma Research - How we are beating blood cancer - Impact Day

THE LEUKAEMIA & LYMPHOMA RESEARCH IMPACT DAY WILL BE HELD AT THE TOWER HOTEL, LO...

Founder Admin•11 years ago

Three recent studies have found that high salt levels have been found to trigger autoimmune diseases in mice, with one study also confirming this occurred with...

Does a high salt diet increase our risk of Autoimmune Diseases?

Three recent studies have found that high salt levels have been found to trigger...

Administrator•11 years ago

Hi All I am the Cyling CLL charity fund raiser who is Cycling from London to Paris from June 6-10th 2013 raising funds for Leukaemia & Lymphoma research and...

http://leukaemialymphomaresearch.org.uk/news-item/investigation-how-leukaemia-cells-resist-chemotherapy

Hi All I am the Cyling CLL charity fund raiser who is Cycling from London to ...

Hidden

•11 years ago

CLL TIDBITS, new grants, Trisomy 12, Brian Koffman's Interviews http://archive.constantcontact.com/fs161/1104839880793/archive/1112586342459.html

CLL TIDBITS... news from the CLL Global Research Foundation

CLL TIDBITS, new grants, Trisomy 12, Brian Koffman's Interviews http://archiv...

Friends I am still putting up interviews from ASH 2012. This one on my blog : Bkoffman.blogspot.com, sees Dr. Bill Wierda out of MDACC discuss CAR-T,...

Top Poster CURE Hero•11 years ago

2 Replies

ASH 2012 Interview with Dr. Wierda on CAR-T, ROR1, and "off the shelf" T cells

Friends I am still putting up interviews from ASH 2012. This one on my bl...

bkoffman

CLL CURE Hero•11 years ago

How many people have ended up with Chemotherapy-Induced Peripheral Neuropathy (CIPN) after treatment?

Treat to Zero? Bone marrow shows zero CLL cells but flow cytometry shows 0.06 residual CLL cells. Doc wants to continue FCR treatments?

irish828

•11 years ago

1 Reply

Chemotherapy-Induced Peripheral Neuropathy (CIPN)

How many people have ended up with Chemotherapy-Induced Peripheral Neuropathy (C...

england58

•11 years ago

7 Replies

How many people have ended up with Chemotherapy-Induced Peripheral Neuropathy (CIPN) after treatment? David

england58

•11 years ago

9 Replies

Flu Virus Can Spread Up to 6 Feet, No Cough or Sneeze Required

A new study into how influenza spreads has found that you aren't safe from infection even when 6 feet from someone with influenza - and the infected person...

A new study into how influenza spreads has found that you aren't safe from infec...

Administrator•11 years ago