Posts - CLL Support | HealthUnlocked

Top Poster CURE Hero•11 years ago

A member (newdawn) has written a blog here about this being their first Christmas with CLL (2012). It happens to be my second. Newdawn writes of changes,...

A First Christmas with CLL

A member (newdawn) has written a blog here about this being their first Christma...

From Science Daily... 'Doctors should use different therapies when treating older and younger patients with chronic lymphocytic leukemia, according to a...

•11 years ago

3 Replies

Doctors should use different therapies when treating older and younger CLL patients

From Science Daily... 'Doctors should use different therapies when treati...

Top Poster CURE Hero•11 years ago

IPI-145, an oral, potent PI3K-d,? inhibitor, appears to be well tolerated and has shown initial clinical activity in pts with iNHL, MCL, and CLL....

Want to take advantage of all our features? Just log in!

IPI-145, an oral, potent PI3K-delta inhibitor...

IPI-145, an oral, potent PI3K-d,? inhibitor, appears to be well tolerated and ha...

I am 62, female, diagnosed with CLL in August 2012, though I've had it for a while. I've felt this unusual tiredness since around 2009. The haematologist and...

Top Poster CURE Hero•11 years ago

1 Reply

Can Rituximab increase the size and volume of lymph nodes? If so what is the reasoning?

keepfit123

•11 years ago

2 Replies

Could my fatigue be due to my CLL which is 'only' Stage A? My red cells are ok so I'm not anaemic.

I am 62, female, diagnosed with CLL in August 2012, though I've had it for a whi...

Gartshore

•11 years ago

45 Replies

Are platelets + blood cells the same thing my husband's white blood count is 20 is this bad?

landlady

•11 years ago

4 Replies

Altered Immune Cells Beat Leukemia

This relates to Leukaemia in children, but an interesting development none the less. From The New York Times. 9 December 2012 [online] Available at:...

This relates to Leukaemia in children, but an interesting development none the l...

The latest News broadcast from Andrew Schorr at the ASH conference may have just hit your in box? You can view it here:...

•11 years ago

8 Replies

More from ASH about some of the novel therapies in trial

The latest News broadcast from Andrew Schorr at the ASH conference may have just...

I didn't know I had CLL last Christmas. Of course I did have it but it hadn't been diagnosed. That momentous event occurred on the 31st May this year. I can...

Founder Admin•11 years ago

2 Replies

What is immunoglobulin therapy?

Marisa

•11 years ago

7 Replies

'My first Christmas with CLL'

I didn't know I had CLL last Christmas. Of course I did have it but it hadn't be...

Newdawn

Administrator•11 years ago

8 Replies

Causal Link with Pesticide Exposure and CLL

Causal Links from Organophosphates Sprayed in the Home to CLL: In Germany, they stopped spraying pesticides in domestic homes twenty-five years ago. I have...

Causal Links from Organophosphates Sprayed in the Home to CLL: In Germany, th...

splashsplash

•11 years ago

9 Replies

Apricot Kernels and White Tea

I was chatting to a bloke at a family funeral earlier this year and it emerged that he, too, has CLL. As the conversation progressed, he mentioned that he...

I was chatting to a bloke at a family funeral earlier this year and it emerged t...

For people with severely compromised immune systems, food can be a source of infection when pathogens can enter the body, multiply and cause opportunistic...

•11 years ago

24 Replies

So what is a Neutropenic Diet? Why should we follow it post treatment?

For people with severely compromised immune systems, food can be a source of inf...

Here are the six main types of WBCs and the average percentage of each type in the blood: Neutrophils - 58 percent Eosinophils - 2 percent...

Top Poster CURE Hero•11 years ago

4 Replies

Why we need to track the absolute lymphocyte count (ALC), not white blood cell count (WBC) to monitor CLL

Here are the six main types of WBCs and the average percentage of each type in t...

Patient Power Video http://www.patientpower.info/video/results-suggest-a-potential-breakthrough-in-cll?autoplay=1

Top Poster CURE Hero•11 years ago

11 Replies

ASH 2012 Ibrutinib Press Conference

Patient Power Video http://www.patientpower.info/video/results-suggest-a-pote...

Thanks to all of you who responded to my first blog at the end of November. Thought I would drop you all a line to let you know how things are going. Last...

Top Poster CURE Hero•11 years ago

10 Replies

Wrapped up for winter with a terrible cold

Thanks to all of you who responded to my first blog at the end of November. Tho...

NessaLou

•11 years ago

5 Replies

UK CLL research working with autophagy to treat CLL. Investigation into how leukaemia cells resist chemotherapy

LLR research news Monday, 3 December, 2012 Dr Andrew Steele received the grant from Leukaemia & Lymphoma Research to investigate...

LLR research news Monday, 3 December, 2012 Dr Andrew...

Ash trees? This is how those seemingly insignificant problems, caused by humans, come back round to bite us in the arse....

Founder Admin•11 years ago

1 Reply

Ash Dieback - How it could affect you

Ash trees? This is how those seemingly insignificant problems, caused by huma...

•11 years ago

CLL SUPPORT ASSOCIATION CARDIFF CLL MEETING 30TH JANUARY 2013 University Hospital of Wales (UHW)...

Cardiff CLL meeting and talks, Jan 30th 2013

CLL SUPPORT ASSOCIATION CARDIFF CLL MEETING 30TH JANUARY 2013 ...

Founder Admin•11 years ago

The Newsletter of the CLL Support Association, CLL NEWS is now available on-line as a PDF:...

Autumn/Winter CLLSA Newsletter. CLL NEWS

The Newsletter of the CLL Support Association, CLL NEWS is now available on-line...

Founder Admin•11 years ago

3 Replies

My husband discharged from hospital, after four weeks has refractory pancytopenia. anyone have experience of this ?

'Patients with CLL are at higher risk of developing melanoma and other skin malignancies. The survival of patients with melanoma is worse, stage for stage, in...

•11 years ago

1 Reply

Skin Cancer and CLL a Mayo community study...

'Patients with CLL are at higher risk of developing melanoma and other skin mali...

New recommendations from the CDC in the U.S. for immunocompromised patients, like with CLL, is that we should have BOTH pneumococcal disease shots, PCV13 and...

Top Poster CURE Hero•11 years ago

9 Replies

Pneumonia shots up to date? Probably not.... New Information

New recommendations from the CDC in the U.S. for immunocompromised patients, lik...

Top Poster CURE Hero•11 years ago

Hello all, I've had CLL for over 2 years, no treatment as yet, should I be worried that my platelet count in last 6 months hasn't got higher than 127,000?

Should I be worried that my platelet count in last 6 months hasn't got higher than 127,000?

Hello all, I've had CLL for over 2 years, no treatment as yet, should I be worri...

Parramatta

•11 years ago

11 Replies

When to Treat

'The first thing I tell patients is that there is no single number that tells me it is time to treat a patient. I think many docs start to get uncomfortable...

'The first thing I tell patients is that there is no single number that tells me...

In 2005, I was very active running a dance club with my husband and friends, and also very worried about my Mum's health, when I discovered a pea-sized lump on...

Top Poster CURE Hero•11 years ago

12 Replies

My father has CLL for 5 years now and he has never moved to the next stage (he is on 0 level). What does it mean about the progress of CLL?

oplatka

•11 years ago

13 Replies

I'm new to the site! My story!

In 2005, I was very active running a dance club with my husband and friends, and...

Marisa

•11 years ago

3 Replies

Do you know if your CLL is familial or sporadic?

CLL is an uncommon cancer, patients who have at least one relative with CLL are considered “familial” and others are considered “sporadic.” In population-based...

CLL is an uncommon cancer, patients who have at least one relative with CLL are ...