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CLL Support

22,520 members • 38,682 posts

All posts for November 2012

being exposed to the risk of infection

I've been off work almost since diagnosis (grief, stress, tiredness). When I saw a young GP (once) he told me just to forget about having CLL. My job is VERY...

I've been off work almost since diagnosis (grief, stress, tiredness). When I sa...

Gartshore

•11 years ago

17 Replies

diet

Did anyone alter his/her eating habits, after diagnosis? What do you think regarding food and disease? (I was 'sure' I'd never get cancer because: I have...

Did anyone alter his/her eating habits, after diagnosis? What do you think rega...

Gartshore

•11 years ago

7 Replies

My story

I was told I had CLL at the age of 35 (am now43) while being ivestigated for migraines! Bit of a shock to say the least, particularly when I was told and read...

I was told I had CLL at the age of 35 (am now43) while being ivestigated for mig...

NessaLou

•11 years ago

11 Replies

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I have cold uticaria that leaves me covered in hives when I am exposed to a cool wind. Any other sufferers who have CLL as well?

NessaLou

•11 years ago

4 Replies

The Journey so far ...

Having just joined this community, I thought I would tell you about my experiences of CLL so far. I was diagnosed just under 4 years ago (Jan 09) via a...

Having just joined this community, I thought I would tell you about my experienc...

Nicebaps

•11 years ago

3 Replies

10 years on.

I was diagnozed in 2001 with a white blood count of 18.2 Over the years it has fluctuated from 12.5 to 28.1 My last blood test was 13.9 Anybody else...

I was diagnozed in 2001 with a white blood count of 18.2 Over the years it has...

corgi

•11 years ago

4 Replies

Making the most of our lives - do you have your bucket list??

Here are some videos that I have found since being diagnosed which help show one persons approach to his diagnosis for pancreatic cancer - so a much more time...

Here are some videos that I have found since being diagnosed which help show one...

Myrddin

•11 years ago

8 Replies

Radiation Induced Cancer...

A review of medical radiation induced cancers http://bjr.birjournals.org/content/85/1020/e1166.full.pdf

A review of medical radiation induced cancers http://bjr.birjournals.org/cont...

Cllcanada

What size tablets are Fludarabine and Cyclophosphamide?

keepfit123

•11 years ago

13 Replies

Watch and Wait..time for a new term?

Dr. Kanti Rai coined this phrase back in 1995 when CLL was the 'good cancer to have', but things have moved forward, and perhaps the term 'watch & wait' needs...

Dr. Kanti Rai coined this phrase back in 1995 when CLL was the 'good cancer to h...

Cllcanada

Prognosis tests -

I have Stage A CLL - watch and wait. I've seen online that there are now prognosis marker tests. I wonder how people feel about these? On receiving my...

I have Stage A CLL - watch and wait. I've seen online that there are now progno...

Gartshore

•11 years ago

24 Replies

My experience so far

Hi, I registered yesterday and have read some of the blog entries and having found value felt I should put my experience down in the blog in the hope that it...

Hi, I registered yesterday and have read some of the blog entries and having fou...

Oleboyredw-uk

•11 years ago

7 Replies

Report from the LLR Cardiff CLL Open Day 2012.

Article from the CLLSA newsletter (On-line later this week) It was genuinely inspiring to meet some of the people behind the research that is...

Article from the CLLSA newsletter (On-line later this week) It was...

HAIRBEAR_UK

Founder Admin•11 years ago

2 Replies

My 3 years of living with CLL

I was diagnosed in July 2009 following a routine blood test. It later transpired that it had shown up in a previous blood test 18 months earlier but had not...

I was diagnosed in July 2009 following a routine blood test. It later transpire...

arthur123

•11 years ago

24 Replies

Irredeemably Altered...A story of Diagnosis

I have been really interested to read of other responses to the moment of diagnosis here (and elsewhere). It is a life-changing moment in every sense of the...

I have been really interested to read of other responses to the moment of diagno...

jibs60

•11 years ago

4 Replies

Some UK CLL information and support resources .

A FEW USEFUL UK INFORMATION RESOURCES WHEN DIAGNOSED WITH CLL http://www.cllsupport.org.uk...

A FEW USEFUL UK INFORMATION RESOURCES WHEN DIAGNOSED WITH CLL ...

HAIRBEAR_UK

Founder Admin•11 years ago

Be the first to reply

CLL Research News Blog. Scientific information. How many 13q deleted cells there are, may be important in disease progression.

"13q deletion (13q-) is the most common cytogenetic aberration in CLL and it is usually associated with the most favourable prognosis as a sole abnormality....

"13q deletion (13q-) is the most common cytogenetic aberration in CLL and it is ...

HAIRBEAR_UK

Founder Admin•11 years ago

4 Replies

The unexpected journey.

I've never written a Blog before so please bear with me in my first effort. I have decided to blog about my CLL journey so far - right from the beginning and...

I've never written a Blog before so please bear with me in my first effort. I h...

Havemercy

•11 years ago

3 Replies

You are not imagining things nor are you alone and you may not feel listened to.

If there ever was a must read paper to help explain what we may experience when living with CLL while on "watch and wait" then this is probably it. Published...

If there ever was a must read paper to help explain what we may experience when ...

HAIRBEAR_UK

Founder Admin•11 years ago

7 Replies

CLL Research News Blog. Hot off the press review articles on 17p. This is technical clinical information.

Technical clinical information. You will have to register to read it but it is free (thanks Chris) Immunotherapeutic Approaches Have the Potential...

Technical clinical information. You will have to register to read it but it is f...

HAIRBEAR_UK

Founder Admin•11 years ago

Be the first to reply

Hello

I was diagnosed in December 2009 after routine blood tests. Have been watch and wait since then but my lymphocytes are rising and platelets and Hgb dropping...

I was diagnosed in December 2009 after routine blood tests. Have been watch a...

Hidden

•11 years ago

3 Replies

CLL and vaccinations

Is there any evidence whether vaccinations such as the seasonal flu vaccine are a good idea for CLL patients? It just seems to me that stimulating your immune...

Is there any evidence whether vaccinations such as the seasonal flu vaccine are ...

poing

•11 years ago

15 Replies

Driving CLL with CARS

Nearly two years ago when I had begun to get a handle on living with chronic lymphocytic leukaemia I wrote to a friend who was also back behind the wheel....

Nearly two years ago when I had begun to get a handle on living with chronic lym...

HAIRBEAR_UK

Founder Admin•11 years ago

1 Reply

hi

I made it on to this site - the ones from Macmillan on line will know me as lou66. Hope you're all ok

I made it on to this site - the ones from Macmillan on line will know me as lou6...

louise66

•11 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2012

being exposed to the risk of infection

diet

My story

I have cold uticaria that leaves me covered in hives when I am exposed to a cool wind. Any other sufferers who have CLL as well?

The Journey so far ...

10 years on.

Making the most of our lives - do you have your bucket list??

Radiation Induced Cancer...

What size tablets are Fludarabine and Cyclophosphamide?

Watch and Wait..time for a new term?

Prognosis tests -

My experience so far

Report from the LLR Cardiff CLL Open Day 2012.

My 3 years of living with CLL

Irredeemably Altered...A story of Diagnosis

Some UK CLL information and support resources .

CLL Research News Blog. Scientific information. How many 13q deleted cells there are, may be important in disease progression.

The unexpected journey.

You are not imagining things nor are you alone and you may not feel listened to.

CLL Research News Blog. Hot off the press review articles on 17p. This is technical clinical information.

Hello

CLL and vaccinations

Driving CLL with CARS

hi

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