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CLL Support

22,368 members38,475 posts

All posts for November 2012

CLL Global Research Foundation Newsletter...

The newsletter can be found here http://www.cllglobal.org/Resource_Files/CLL_...
Cllcanada profile image
Top Poster CURE Hero

Do you know about Fludarabine and the lifelong need for irradiated blood?

The profound lymphopenia caused by fludarabine, bendamustine, pentostatin cladr...
Cllcanada profile image
Top Poster CURE Hero

Can you think off a poll that investigates an aspect of CLL life that may make a difference?

Click on polls and you can suggest a poll. There are many topics that we could i...
HAIRBEAR_UK profile image
Founder Admin
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Further development of http://www.cllsupport.org.uk this is your chance to contribute.

Thank you for bearing with me and taking part in recent polls that may aid in th...
HAIRBEAR_UK profile image
Founder Admin

Is there anyone else in Cornwall or Devon, who has CLL and wants to form a support group?

hazelmark profile image

Wife of sufferer

My Husband was diagnosed almost 2 years ago at the age of 71, as with others it ...
engineer profile image

This blog is great!!!!

I have only just discovered this blog, and think it is really great. At last I c...
mitzi2 profile image

Surprised to see Allopurinol mentioned, I used to take this for gout. Don't suffer from it now but how does it help CLL patients ?

barmouthb2 profile image

Although my white cell count has risen to just 35 in two years I am unable to overcome colds etc, easily. Do you have any suggestions ?

barmouthb2 profile image

London 2 Paris 6th-9th June 2013

Hi All I was diagnosed with CLL out of the blue in May 2010 after a r...

Could I make a cheeky plea?

I wonder if site members would feel able to provide even basic information on th...
Newdawn profile image
Administrator

Is there anyone out there who has been on the Arctic trial to treat their CLL

I finished 6 months of treatment 10 weeks ago and have been more unwell post tre...
ruthpen profile image

Has anyone been on the maintenance trial for Lenalidomide? has it been effective? in my case I was removed because of side effects

roan profile image

Hurt and puzzled

Don't you just hate it when close friends discover that you have CLL and start a...
Safta profile image

Anyone have any experience of acute neutropenia ?

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CURRENT CLL TREATMENT GUIDELINES - 2008

This is the 'touchstone' document for the various aspects and treatment of CLL. ...
Cllcanada profile image
Top Poster CURE Hero

Are Taboos a Crime against Humanity?

You may be thinking “A slightly odd question to post on a site about cancer for ...
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Life Over Cancer by Keith I Block M.D. www.lifeovercancer.com

I was diagnosed with CLL in 1997. I have had two lots of chemo in 2004 and 2008...
Tanagergreen profile image

Drug interactions with Grapefruit juice

This is the complete list of drugs that interact with grapefruit juice from the ...
Cllcanada profile image
Top Poster CURE Hero

I'm new too!

So pleased to have found this site. I was diagnosed a year ago now. In the ear...
jules33x profile image

Hello everyone. Do most people here have an LDH test as part of their blood test?

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Hi everyone, I am relatively new to the site but wanted to find out whether any one experiences muscular/skeletal pain?

I was diagnosed 9 years ago at the age of 36 and this has been a constant throug...
mairin profile image

Where do they go?

During a recent hospitalization for a complicated endocrine crisis, my WBC would...
Kjohnsonmay profile image

Welcome and information about polls to aid in the development of the CLLSA website: http://www.cllsupport.org.uk

Welcome everyone, what an incredible response to the launch of our new on-line c...
HAIRBEAR_UK profile image
Founder Admin

When you catch a cold should you try and fight it without any treatment or start taking antibiotics straight away.

Boardman profile image

hi everyone i work in the health service and should know this , can we get our levels of anti bodies checked (response) following flu vac ?

Have we a good response or low response .... Stewie
stewie profile image

What support will my mum need when she has treatment

My mum was diagnosed will CLL over 7yrs ago and so far has not had to have treat...
roo174 profile image

Tests to judge if need more FCR

Hi. Thank you for setting up this site; I am sure it will be a great help to us...
Jupiter profile image

Im new!

Hi to everyone I'm new. What a relief to find this online support at last as I h...
mairin profile image

Dirty Hotels... concerns for the immunocompromised

Canadian investigation probably applies everywhere to some degree... Perhaps ...
Cllcanada profile image
Top Poster CURE Hero