I very well can understand your Frustration.
My IVIG introduction was very late, not considering my close to 0 Immunity.
The result was as well Double Pneumonia, unbelievable hurting caught for 6 month,
which produced a Hernia.
After being on a Roller-Coaster I have moe or less settled and try the Atmost to stay out of Trouble.
I find Exercise like walking/Hiking a very well good assistance.
My Very Best,
Traudel