Update three months on acalabrutinib for SLL/CLL, good news
One-100mg acalabrutinib daily for 3 months --SLL in sacrum/tailbone and rest of body
Dec 30th -3 month CT scan showed No masses in sacrum/tailbone at all. But,still in rest of body.
Good news, oncologist was worried about incontinence and bowel problems as I was feeling pressure in bladder like had to urinate all the time but nothing to express.
I am told I have all the bad markers, but perhaps not!
17P Deletion, mutated TP53, IGHV unmutated .
The CLL (lymphocytes)parts are coming down slowly and hopefully hemoglobin will keep rising .