3 months on acalabrutinib for SLL great news - CLL Support

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3 months on acalabrutinib for SLL great news

234me profile image
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Update three months on acalabrutinib for SLL/CLL, good news

One-100mg acalabrutinib daily for 3 months --SLL in sacrum/tailbone and rest of body

Dec 30th -3 month CT scan showed No masses in sacrum/tailbone at all. But,still in rest of body.

Good news, oncologist was worried about incontinence and bowel problems as I was feeling pressure in bladder like had to urinate all the time but nothing to express.

I am told I have all the bad markers, but perhaps not!

17P Deletion, mutated TP53, IGHV unmutated .

The CLL (lymphocytes)parts are coming down slowly and hopefully hemoglobin will keep rising .

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234me
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PoisonDwarf profile image
PoisonDwarf

That's excellent news. May things continue to improve. Best wishes

234me profile image
234me in reply to PoisonDwarf

tks, I just wanted to post to show people there is hope for us that have both cll/sll. And in such short time also.

tks again.

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